Utah Center of Excellence in ELSI Research: UCEER

犹他州 ELSI 研究卓越中心：UCEER

• 批准号: 9274369
• 负责人: JEFFREY R. BOTKIN
• 金额: $ 97.24万
• 依托单位: UNIVERSITY OF UTAH
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-05-16 至 2020-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9274369
• 关键词: Address; Advisory Committees; Applications Grants; Career Mobility; Child; Childhood; Communication; Communication Tools; Complex; Computers; Decision Making; Development; Diagnostic; Disabled Children; Discipline; Discipline of Nursing; Discipline of obstetrics; Education; Educational Activities; Elements; Engineering; Environment; Ethics; Faculty; Family; Family health status; Family member; Fostering; Funding; Future; Genetic; Genetic Counseling; Genetic Screening; Genetic screening method; Goals; Health Communication; Healthcare; Hereditary Disease; Human Genetics; Humanities; Individual; Infant; Informed Consent; Laboratories; Laboratory Research; Laws; Leadership; Legal Liability; Life; Low Prevalence; Medicine; Mentors; Mentorship; Multimedia; Nature; Neonatal Screening; Nurses; Nursing Philosophy; Parents; Participant; Patients; Pediatrics; Pilot Projects; Population; Pregnant Women; Professional Education; Public Health Nursing; Publications; Research; Research Activity; Research Personnel; Research Project Grants; Research Proposals; Resources; Schedule; Science; Services; Structure; Techniques; Technology; Testing; United States; United States National Institutes of Health; Universities; Utah; Woman; Work; biobank; carrier testing; college; cost; cost effectiveness; education cost; experience; faculty support; fine art; genetic information; genetic predictors; genome-wide; health disparity; health literacy; high risk; innovation; legal implication; meetings; new technology; next generation; population based; prenatal; prenatal testing; programs; public health relevance; response; screening; social implication; undergraduate student

 DESCRIPTION (provided by applicant): This application is to fund the University of Utah Center of Excellence in ELSI Research (UCEER). The University of Utah has a strong tradition in human genetics and ELSI research and this proposal will build on our successful development and management of a P20 funded CEER. The proposed UCEER will focus primarily, although not exclusively, on issues relevant to population screening for genetic conditions in the healthcare of women, children, and young families. Our primary emphasis will be on enhancing education and informed decision-making by patients and research participants with innovative approaches including multi-media and interactive computer platforms. Our overall goal is to create a "laboratory" for research and education with a diverse set of scholars and ideas in a creative, supportive academic environment. The CEER will support faculty across 6 colleges at the University of Utah including Medicine, Law, Nursing, Humanities, Engineering, and Fine Arts. Through our Research Core, we propose funding for 6 "Tier I" research projects that are of sufficient size and rigor to warrant publication but also will serve as pilot projects or future NIH grant applications. Through our Education and Career Advancement Core, we will support a variety of ELSI educational activities from across the spectrum from undergraduates to junior faculty and provide a strong mentorship program to foster the next generation of ELSI scholars. The UCEER Administrative Core will support an effective structure for the support, oversight, and integration of the research and educational activities across the University. Our proposed administrative structure includes strong, experienced leadership, communication tools, effective space, functional meeting schedules, and an advisory committee that will engage our CEER leadership, faculty, and trainees.

 描述（由申请人提供）：本申请是为了资助犹他州大学ELSI研究卓越中心（UCEER）。犹他州大学在人类遗传学和ELSI研究方面有着悠久的传统，该提案将建立在我们成功开发和管理P20资助的CEER的基础上。拟议的UCEER将主要关注（但不完全关注）与妇女、儿童和年轻家庭医疗保健中遗传条件人群筛查相关的问题。我们的主要重点将是加强教育和知情决策的病人和研究参与者与创新的方法，包括多媒体和互动的计算机平台。我们的总体目标是创建一个研究和教育的“实验室”，在一个创造性的，支持性的学术环境中，拥有多元化的学者和思想。CEER将支持犹他州大学6所学院的教师，包括医学、法律、护理、人文、工程和美术。通过我们的研究核心，我们建议为6个“一级”研究项目提供资金，这些项目具有足够的规模和严谨性，可以保证出版，但也将作为试点项目或未来的NIH拨款申请。通过我们的教育和职业发展核心，我们将支持从本科生到初级教师的各种ELSI教育活动，并提供强大的导师计划，以培养下一代ELSI学者。UCEER行政核心将支持整个大学的研究和教育活动的支持，监督和整合的有效结构。我们拟议的行政结构包括强大的，经验丰富的领导，沟通工具，有效的空间，功能会议时间表，以及一个咨询委员会，将参与我们的CEER领导，教师和学员。