BREATHE-INDIA: BREATHlEssness in INDIA. Development of a Breathlessness Beliefs and Behaviour education intervention for use in the community-setting

印度呼吸：印度的呼吸。

基本信息

批准号：
MR/X503034/1
负责人：
Miriam Johnson
金额：
$ 18.14万
依托单位：
University of Hull
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2022
资助国家：
英国
起止时间：
2022 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=MR%2FX503034%2F1
关键词：
BREATHE INDIA BREATHlEssness INDIA.Development

项目摘要

1. Summary and Technical Summary, Aims and Objectives and Keywords - please provide the following information in one MS Word document (or equivalent): Summary Describe the research in simple terms in a way that could be publicised to a general audience. This will be made publicly available and Applicants are responsible for ensuring that the content is suitable for publication. No more than, 4000 characters including spaces and returns. Persistent breathlessness is breathlessness which persists despite best treatment of the underlying disease. Causes of persistent breathlessness like cancer and respiratory diseases, environmental factors (e.g. poor air quality) and unhealthy lifestyle choices (e.g. smoking) are common in India. This means that persistent breathlessness is likely to be a widespread problem in India, affecting many people and their families. People with persistent breathlessness commonly try to avoid physical and social activities which they are worried will make them more breathlessness. However, reduced physical activity in fact makes breathlessness worse as people lose fitness and strength, both of which help recovery from breathlessness episodes. People who suffer from persistent breathlessness often have reduced quality of life due to worsening breathlessness and because they stop doing social activities which they enjoy. Family members often have to look after the person with persistent breathlessness. This can cause difficulties as family members are often unsure of how to help and also have to stop doing things like going to work, or doing things they enjoy because they are looking after the person with persistent breathlessness. As a result, household income can be reduced, families can start to feel socially isolated and health can be reduced. In richer countries, low-cost self-management breathlessness interventions are helpful and can be delivered in community-settings (e.g., breathing techniques, fans, lifestyle approaches, paced physical activity). These promote well-being, need little medical knowledge and are teachable to lay workers, relatives or clinical support staff. However, most interventions have been developed in richer countries and due to different cultural beliefs we do not know whether interventions which are helpful in other settings might be acceptable and helpful to people with persistent breathlessness India. We want to understand to develop an intervention to help people with persistent breathlessness in India. To do this, we will begin by reviewing evidence from other countries - particularly countries in Asia - to find out what interventions are already to help people with persistent breathlessness. In particular, we want to know where (e.g. community groups) and how breathlessness interventions are delivered (e.g. by trained volunteers) and what the intervention consists of (e.g. education, breathing techniques). Once we have identified relevant information, our team consisting of clinicians and policy experts will develop understanding of 'what works, for whom, and where.' We will present this information to several different groups in India who are interested in how people with persistent breathlessness can be supported in India (e.g. patients, healthcare professionals, community representatives). Together, we will co-design an intervention aimed at improving how people with persistent breathlessness in India are looked after. Once developed, we hope that in the future we can test whether this intervention can be delivered at a reasonable cost and is acceptable and effective in improving the quality of life of people with persistent breathlessness and their families across India.

1。摘要和技术摘要，目标，目标和关键字 - 请在一个MS Word文档（或同等学历）中提供以下信息：摘要以简单的术语描述研究，以一种可以向普通受众群体公开的方式。这将公开提供，申请人负责确保内容适合发布。不超过4000个字符，包括空格和返回。持续的呼吸困难是呼吸困难，尽管对潜在疾病的最佳治疗也持续存在。印度常见的是持续的呼吸困难的原因，例如癌症和呼吸系统疾病，环境因素（例如空气质量差）和不健康的生活方式选择（例如吸烟）在印度很常见。这意味着在印度，持续的呼吸困难可能是一个普遍存在的问题，影响了许多人及其家人。持续的呼吸困难的人通常会试图避免身体和社交活动，而他们担心的会使他们更加呼吸。但是，实际上，随着人们失去健身和力量，呼吸困难实际上使呼吸困难变得更糟，这两者都有助于从呼吸困难发作中恢复。遭受持续性呼吸困难的人通常由于呼吸困难而导致生活质量降低，因为他们停止进行社交活动。家庭成员通常必须照顾持续呼吸困难的人。这可能会造成困难，因为家庭成员常常不确定如何提供帮助，并且必须停止做诸如上班或做自己喜欢的事情之类的事情，因为他们正在照顾持续的呼吸困难的人。结果，可以减少家庭收入，家庭可以开始感到社会孤立，健康可以降低。在富裕的国家，低成本的自我管理呼吸困难干预措施有帮助，可以在社区安置中（例如，呼吸技术，粉丝，生活方式方法，节奏的体育锻炼）提供。这些促进福祉，几乎不需要医学知识，并且可以教外行工人，亲戚或临床支持人员。但是，大多数干预措施是在富裕国家开发的，由于不同的文化信念，我们不知道对其他环境有帮助的干预措施是否可以接受并且对印度持续呼吸困难的人有帮助。我们想了解开展干预措施，以帮助印度持续呼吸困难的人们。为此，我们将首先审查来自其他国家（尤其是亚洲国家）的证据，以找出已经采取了哪些干预措施来帮助持续的呼吸困难的人。特别是，我们想知道（例如社区团体）在哪里（例如，呼吸困难的干预措施（例如，受过训练的志愿者）以及干预措施包括在哪里（例如，教育，呼吸技术）。一旦确定了相关信息，我们的团队包括临床医生和政策专家组成的团队将对“有效，为谁以及在哪里有效”的理解发展。我们将向印度的几个不同群体展示此信息，他们对印度持续的呼吸困难的人感兴趣（例如，患者，医疗保健专业人员，社区代表）。我们将共同设计一项旨在改善印度持续呼吸困难的人的干预措施。一旦开发，我们希望将来我们可以测试该干预措施是否可以以合理的成本进行，并且可以接受和有效地改善持续的呼吸困难的人的生活质量以及整个印度的家人。