HEALTH-RELATED QUALITY OF LIFE IN ARTHRITIS AND AIDS

关节炎和艾滋病患者的健康相关生活质量

• 批准号: 6145733
• 负责人: KAREN H SOUSA
• 金额: $ 14.91万
• 依托单位: ARIZONA STATE UNIVERSITY-TEMPE CAMPUS
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-06-01 至 2003-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6145733
• 关键词: AIDS; arthritis; behavioral /social science research tag; chronic disease /disorder; clinical research; extended care; health care model; health care service evaluation; health services research tag; human data; nursing intervention; nursing models; outcomes research; patient care management; quality of life

DESCRIPTION (adapted from the applicant's abstract): For patients with chronic illnesses such as AIDS and rheumatoid arthritis, health-related quality of life (HRQOL) has emerged as an important outcome of health care. Debate continues, however, about the dimensions of and contributors to HRQOL in relation to their relevance and relative importance, the strengths of their influence, and their dynamic nature. While there continues to be debate, there are three general areas of agreement: (1) HRQOL is a multi-dimensional concept; (2) the assessment of HRQOL is subjective; and (3) research on HRQOL should be based on strong conceptual models. This amended application proposes a secondary data analysis to test the Wilson and Cleary (1995) HRQOL model that identifies six dimensions of HRQOL and then to evaluate, longitudinally, how the relationships change. The six dimensions include biological and physiological variables, symptoms status, functional status, general health perception, characteristics of the individual, and characteristics of the environment. Using structural equation modeling, data from The American Rheumatism Association Medical Information System (ARAMIS) and The AIDS Time-Oriented Health Outcome Study (ATHOS), two established databases, will be used. Both of these databases have one or more measured variables that can be used as indicators for each of the dimensions in the model. Understanding the relationships and linkages among the dimensions of HRQOL and how these relationships change over time will facilitate the design and targeting of appropriate interventions for quality patient care, provide rich information to reveal trends, suggest relationships between provider variations and patient outcomes, and identify potentially problematic patterns of care. Traditional HRQOL measures have not provided sufficient information for understanding the outcomes of patient care. With nurses' focus on prevention, health promotion, symptom management, and the alleviation of acute and chronic illness effects, a valid HRQOL model may be the appropriate strategy for capturing their impact on patient care. A valid conceptual model that captures HRQOL throughout the health-illness continuum would be valuable not only to nursing, but to consumers, providers, administrators, and policy makers.

描述（改编自申请人的摘要）：针对慢性病患者 艾滋病和类风湿性关节炎等疾病、与健康相关的生活质量 （HRQOL）已成为医疗保健的重要成果。争论仍在继续， 然而，关于 HRQOL 的维度和贡献者与他们的关系 相关性和相对重要性、影响力的强度以及 动态的性质。尽管争论仍在继续，但普遍存在以下三点： 一致的领域： (1) HRQOL 是一个多维度的概念； （2） HRQOL 的评估是主观的； (3) HRQOL的研究应基于 强大的概念模型。该修改后的申请提出了辅助数据 分析测试 Wilson 和 Cleary (1995) HRQOL 模型，该模型确定了六个 HRQOL 的各个维度，然后纵向评估这些关系如何 改变。六个维度包括生物和生理变量， 症状状态、功能状态、一般健康认知、特征 个人的特点和环境的特点。 使用结构方程模型，数据来自美国风湿病协会 协会医疗信息系统（ARAMIS）与艾滋病时间导向 将使用两个已建立的数据库——健康结果研究（ATHOS）。两者都 这些数据库有一个或多个测量变量，可以用作 模型中每个维度的指标。了解 HRQOL 各维度之间的关系和联系以及这些维度如何 关系随着时间的推移而变化将有助于设计和定位 适当的干预措施以提供优质的患者护理，为患者提供丰富的信息 揭示趋势，建议提供者差异与患者之间的关系 结果，并确定潜在的有问题的护理模式。传统的 HRQOL 措施没有提供足够的信息来理解 患者护理的结果。护士注重预防、健康促进， 症状管理以及缓解急性和慢性疾病的影响， 有效的 HRQOL 模型可能是捕捉其影响的适当策略 病人护理。一个有效的概念模型，可在整个过程中捕获 HRQOL 健康-疾病连续体不仅对护理有价值，而且对 消费者、提供者、管理者和政策制定者。