Pushing the Boundaries: Frontiers of HRQOL Research

突破界限：HRQOL 研究的前沿

• 批准号: 8204353
• 负责人: KAREN H SOUSA
• 金额: $ 1.5万
• 依托单位: INTERNATIONAL SOCIETY/QUALITY/LIFE RES
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-09-01 至 2012-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8204353
• 关键词: Address; Area; Clinical; Collaborations; Collection; Colorado; Continuing Education; Country; Decision Making; Educational workshop; Effectiveness; Epigenetic Process; Evaluation; Family; Fostering; Friends; Genomics; Goals; Health; Healthcare; Income; Individual; International; Journals; Knowledge; Location; Measurement; Measures; Medicine; Mentors; Mission; Monitor; Oral; Outcome; Paper; Participant; Patient Outcomes Assessments; Patients; Physical environment; Policies; Process; Publishing; Quality of life; Quality-of-Life Assessment; Randomized Clinical Trials; Research; Research Personnel; Resources; Science; Social support; Societies; Statistical Methods; Translational Research; Translations; United States; abstracting; career; clinical application; comparative effectiveness; effectiveness research; experience; frontier; health disparity; health related quality of life; improved; innovation; interest; meetings; member; news; posters; programs; success; symposium; technological innovation; web site

DESCRIPTION (provided by applicant): Health-related quality of life (HRQOL) assessment has become a standard endpoint in randomized clinical trials and other studies. Quality of life encompasses a wide array of domains including health, physical environment, interactions with family and friends, and available resources (e.g., income, wealth, social support). The mission of the International Society for Quality of Life Research (ISOQOL) is the scientific study of HRQOL and healthcare and advancement of the state-of-the-science of HRQOL research and clinical applications of HRQOL measures. The 18th annual meeting of ISOQOL, "Pushing the Boundaries: Frontiers of Health-Related Quality of Life Research", will be held October 26-29, 2011 in Denver, Colorado. The specific aims of the ISOQOL conference are to: 1) introduce the science of HRQOL to new investigators; 2) provide continuing education to experienced investigators; 3) discuss advances in measurement, statistical methods, and clinical applications of HRQOL; 4) promote collaboration within and across countries to enhance the HRQOL of individuals; and 5) explore the interface between HRQOL and the new frontiers of health care. The conference will include an interesting and informative array of conceptual, methodological and practical sessions via a mix of symposia, plenary sessions, and paper and poster presentations. The conference will feature hands-on workshops, invited symposia, plenary, panel, oral and poster sessions highlighting the latest clinical news and research findings in the field of HRQOL research. New opportunities within health care such as personalized medicine, health disparities research, epigenetics and genomics will be explored from a HRQOL perspective. Special programming for investigators early in their careers will be offered, including a Mentor/Mentee program to bring together researchers and clinicians of similar interest but differing experience levels. The success of the conference will be determined by the extent to which the specific aims are achieved. All abstracts that are presented as either posters or oral presentations at the meeting will be published in the Quality of Life Research journal. PUBLIC HEALTH RELEVANCE: The overall objective of this conference is to significantly improve knowledge about health- related quality of life (HRQOL) among participants and to discuss how the new frontiers in health care require vigilant monitoring of patient-reported outcomes and expand opportunities to impact patient HRQOL. It will also foster international collaboration among HRQOL researchers and clinicians and provide access to HRQOL research to trainees and new investigators.

描述（由申请人提供）：健康相关生活质量（HRQOL）评估已成为随机临床试验和其他研究的标准终点。生活质量包括一系列广泛的领域，包括健康、物理环境、与家人和朋友的互动以及可用资源（例如，收入、财富、社会支持）。国际生活质量研究学会（ISOQOL）的使命是对HRQOL和医疗保健进行科学研究，并促进HRQOL研究的科学发展和HRQOL测量的临床应用。ISOQOL第18届年会“突破界限：健康相关生活质量研究前沿”将于2011年10月26日至29日在科罗拉多丹佛市举行。ISOQOL会议的具体目标是：1）向新的研究者介绍HRQOL的科学; 2）为有经验的研究者提供继续教育; 3）讨论HRQOL测量，统计方法和临床应用的进展; 4）促进国家内部和国家之间的合作，以提高个人的HRQOL;（5）探索HRQOL与卫生保健新前沿的接口。会议将通过专题讨论会、全体会议以及论文和海报展示，包括一系列有趣和信息丰富的概念、方法和实践会议。会议将举办实践研讨会、特邀专题讨论会、全体会议、小组讨论、口头和海报会议，重点介绍HRQOL研究领域的最新临床新闻和研究成果。从HRQOL的角度探讨医疗保健领域的新机会，如个性化医疗，健康差异研究，表观遗传学和基因组学。将为职业生涯早期的研究人员提供特别节目，包括导师/学员计划，以汇集兴趣相似但经验水平不同的研究人员和临床医生。会议的成功将取决于具体目标实现的程度。所有在会议上以海报或口头报告形式发表的摘要将发表在《生活质量研究》杂志上。 公共卫生关系：本次会议的总体目标是显著提高与会者对健康相关生活质量（HRQOL）的认识，并讨论医疗保健的新前沿如何需要对患者报告的结局进行警惕性监测，并扩大影响患者HRQOL的机会。它还将促进HRQOL研究人员和临床医生之间的国际合作，并为学员和新研究人员提供HRQOL研究。