GENERIC DATABASE FOLLOW UP STUDY

这项多中心研究是为了评估一大批极低出生体重(ELBW)婴儿的结局。主要目标之一是跟踪并成功跟踪18个月大的婴儿，超过80%的婴儿进入新生儿研究网络通用数据库，出生体重为401-1000克。特别重要的是监测随着时间的推移与护理做法和存活率变化相关的变化。此外，重要的是评估参与了由新生儿研究网络进行的随机临床试验的婴儿的结局。这项研究的结果将提供有关该人群的生长、神经发育和特定疾病流行率的最新信息。此外，还将介绍家庭社会经济地位和家庭压力的影响，以及支助服务的利用情况。

This multicenter study is performed to assess outcome in a large cohort of extremely low birth weight (ELBW) infants. One of the primary aims is to track and successfully follow at 18 months of age, more than 80% of babies entered into the Generic Data Base of the Neonatal Research Network with birth weights 401-1000grams. Of special importance is monitoring changes over time associated with changes in care practices and survival. In addition, it is important to assess outcome in infants who have participated in randomized clinical trials performed by the Neonatal Research Network. The results of this study will provide current information on growth, neurodevelopment, and the prevalence of specific morbidities in this population. Additionally, the effects of family socioeconomic status and family stress, as well as the utilization of support services will be characterized.