TELEPHONE COUNSELING INTERVENTION TO PROMOTE CAREGIVER SELF CARE BEHAVIOR

电话咨询干预以促进看护者自我护理行为

• 批准号: 6216979
• 负责人: Cathleen M Connell
• 金额: $ 22.35万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-09-01 至 2000-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6216979
• 关键词: Alzheimer's disease; aging; behavioral /social science research tag; caregivers; clinical research; cognitive behavior therapy; counseling; curriculum; depression; field study; group counseling; health behavior; health services research tag; home health care; human subject; human therapy evaluation; interview; longitudinal human study; outcomes research; personal log /diary; psychometrics; self care; sign /symptom; spouses; telecommunications

Caring for a spouse with Alzheimer's disease or a related disorder (ADRD) is an enormous burden that has been linked with a variety of negative physical and mental health outcomes for the caregiver. Preliminary evidence suggests that caregiving demands may lead to adverse health effects by negatively influencing caregivers' self-care behaviors. The broad objective of this research is to design, implement, and evaluate a telephone counseling intervention based on Social Cognitive Theory to promote self-care behaviors of spouse caregivers. The five specific aims of the proposed research are: 1) to conduct six focus group interviews to inform the process of designing a telephone counseling intervention to promote self-care behaviors among caregivers who provide in-home care to a spouse with ADRD, 2) to design the curriculum for a telephone counseling intervention to improve self-care behaviors (i.e., weight management, exercise, sleep patterns, stress management), 3) to conduct a field test of the intervention with 200 randomly selected experimental and control group subjects recruited from spouse caregivers of patients seen at the Michigan Alzheimer's Disease Research Center (MADRC), 4) to evaluate the process of implementing the intervention, including the extent to which the delivered activities fit the original design and factors external to the program competed with program effects., and (5) to evaluate the impact of the intervention of caregiver self-care behaviors, self-efficacy for self-care, physical health, depression, and caregiver burden. Data will be collected by telephone at baseline and 3,6,9, and 12 month follow-up assessments. Experimental group subjects will be contacted once a week throughout the 9-month intervention period to assess progress on self-care goals. In addition, each subject will record their self-cre behaviors in a daily health diary. Analyses will determine the effects of: 1) the intervention on physical health, depression, and caregiver burden, 2) components of the intervention on specific behavioral and self-efficacy changes, and 3) important mediating variables (e.g., patient severity) on the outcomes. The long-term objective of this research is to test the telephone counseling intervention as part of a randomized clinical trial with a large representative and diverse caregiver population.

照顾患有阿尔茨海默病或相关疾病（ADRD）的配偶是一个巨大的负担，与照顾者的各种负面身心健康结果有关。初步证据显示，过度需求可能会对照顾者的自我照顾行为产生负面影响，进而对健康造成不良影响。本研究的主要目的是设计、实施及评估一套以社会认知理论为基础的电话谘询介入方案，以促进配偶照顾者的自我照顾行为。本研究的五个具体目的是：1）进行六次焦点小组访谈，以告知设计电话咨询干预的过程，以促进为ADRD配偶提供家庭护理的照顾者的自我护理行为，2）设计电话咨询干预的课程，以改善自我护理行为（即，体重管理、锻炼、睡眠模式、压力管理），3）用从密歇根阿尔茨海默病研究中心（MADRC）就诊的患者的配偶照顾者招募的200名随机选择的实验组和对照组受试者进行干预的现场测试，4）评估实施干预的过程，包括交付的活动与原始设计的匹配程度，以及与计划效果相竞争的计划外部因素。（5）评估干预对照顾者自我照顾行为、自我照顾效能、身体健康、抑郁及照顾者负担的影响。将在基线和3、6、9和12个月随访评估时通过电话收集数据。在为期9个月的干预期间，每周联系一次实验组受试者，以评估自我护理目标的进展。此外，每名受试者将在每日健康日记中记录他们的自我行为。分析将确定以下因素的影响：1）干预对身体健康、抑郁和照顾者负担的影响; 2）干预对特定行为和自我效能变化的影响; 3）重要的中介变量（例如，患者的严重程度）。本研究的长期目标是测试电话咨询干预的随机临床试验的一部分，具有较大的代表性和多样化的照顾者人口。