GENETICS & DISABILITY INSURANCE--ETHICS, LAW & POLICY

描述(改编自《调查者摘要》)：遗传问题 保险提供商的测试和歧视的可能性 在过去的十年里，受到了相当大的学术关注。这项工作有 没有直接涉及残疾保险，这是 社会安全网，并具有明显不同于 健康保险或人寿保险。同样，有一小部分州禁止 保险中的基因歧视包括残疾保险。 明尼苏达大学生物伦理中心和该大学的联合 法律、健康和生命科学学位课程计划完成一项 对使用中的伦理、法律和政策问题进行全面调查 在私人和公共残疾保险中提供遗传信息，并 根据我们的调查结果推荐政策。为了实现这个项目的目标， 中心和联合学位项目将召开跨学科合作 该小组由一些致力于 由遗传学、保险和社会问题引发的伦理、法律和社会问题 残疾。该小组将包括来自道德、政策和政策领域的成员 法律、社会科学、医学、残疾人和 保险业。 工作组将在两年期间召开四次会议。在……里面 与该小组的第三次会议、中心和联合学位方案相结合 将主持一次关于道德、法律和政策的全国邀请性会议 基因检测和残疾保险带来的问题。通过这些 调查人员将努力澄清问题；就以下问题达成共识 有效的应对措施；编写一份载有建议的协商一致文件；以及 制作关于以下问题的第一个全面的文章集 以期刊研讨会的形式发表。

DESCRIPTION (Adapted from the Investigator's Abstract): Issues of genetic testing and the potential for discrimination by insurance providers have received considerable scholarly attention during the past decade. This work has not directly addressed disability insurance, which is an important part of the social safety net and has features that are clearly different from either health or life insurance. Similarly, a small fraction of the states prohibiting genetic discrimination in insurance have included disability insurance. The University of Minnesota Center for Bioethics and the University's Joint Degree Program in Law, Health & the Life Sciences plan to complete a comprehensive investigation of the ethical, legal, and policy issues in the use of genetic information in private and public disability insurance and to recommend policies based on our findings. To achieve the goals of this project, the center and Joint degree Program will convene an interdisciplinary working group comprised of some of the best U.S. scholars and experts working on ethical, legal, and social issues raised by genetics, insurance, and disability. The group will include members from the field of ethics, policy and law, social science, medical science, people who live with disabilities, and the insurance industry. The Working Group will convene four times during a two-year period. In conjunction with the group's third meeting, the Center and Joint Degree Program will host an invitational national conference on the ethical, legal, and policy issues raised by genetic testing and disability insurance. Through these efforts the investigators will clarify the issues; develop a consensus about effective responses; author a consensus paper with their recommendations; and produce the first comprehensive collection of articles on the issues to be published as a journal symposium.