GENETICS & DISABILITY INSURANCE--ETHICS, LAW & POLICY

遗传学

• 批准号: 6388331
• 负责人: Jeffrey P. Kahn
• 金额: $ 22.12万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-08-01 至 2004-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6388331
• 关键词: behavioral /social science research tag; data collection methodology /evaluation; employment /unemployment; ethics; genetic disorder diagnosis; genetic screening; genetic susceptibility; health care policy; health insurance; health related legal; human rights; human subject; information dissemination; prejudice; publications

DESCRIPTION (Adapted from the Investigator's Abstract): Issues of genetic testing and the potential for discrimination by insurance providers have received considerable scholarly attention during the past decade. This work has not directly addressed disability insurance, which is an important part of the social safety net and has features that are clearly different from either health or life insurance. Similarly, a small fraction of the states prohibiting genetic discrimination in insurance have included disability insurance. The University of Minnesota Center for Bioethics and the University's Joint Degree Program in Law, Health & the Life Sciences plan to complete a comprehensive investigation of the ethical, legal, and policy issues in the use of genetic information in private and public disability insurance and to recommend policies based on our findings. To achieve the goals of this project, the center and Joint degree Program will convene an interdisciplinary working group comprised of some of the best U.S. scholars and experts working on ethical, legal, and social issues raised by genetics, insurance, and disability. The group will include members from the field of ethics, policy and law, social science, medical science, people who live with disabilities, and the insurance industry. The Working Group will convene four times during a two-year period. In conjunction with the group's third meeting, the Center and Joint Degree Program will host an invitational national conference on the ethical, legal, and policy issues raised by genetic testing and disability insurance. Through these efforts the investigators will clarify the issues; develop a consensus about effective responses; author a consensus paper with their recommendations; and produce the first comprehensive collection of articles on the issues to be published as a journal symposium.

描述（改编自研究者摘要）：遗传问题

项目成果

Genetic exceptionalism and legislative pragmatism.

遗传例外论和立法实用主义。

• DOI: 10.1111/j.1748-720x.2007.00154.x
• 发表时间: 2007
• 期刊: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics
• 作者: Rothstein,MarkA

Genetic testing and the future of disability insurance: ethics, law & policy.

基因检测和残疾保险的未来：道德、法律

• DOI: 10.1111/j.1748-720x.2007.00148.x
• 发表时间: 2007
• 期刊: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics
• 作者: Wolf,SusanM;Kahn,JeffreyP;WorkingGrouponGeneticTestinginDisabilityInsurance
• 通讯作者: WorkingGrouponGeneticTestinginDisabilityInsurance

Genetic exceptionalism & legislative pragmatism.

遗传例外论

• 发表时间: 2005
• 期刊: The Hastings Center report.
• 作者: Rothstein,MarkA

Understanding the role of genetics in disability insurance.

了解遗传学在残疾保险中的作用。

• DOI: 10.1111/j.1748-720x.2007.00147.x
• 发表时间: 2007
• 期刊: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics
• 作者: Kahn,JeffreyP;Wolf,SusanM
• 通讯作者: Wolf,SusanM