Community Based Research of Autoimmune Disease and Asth*

基于社区的自身免疫性疾病和哮喘研究*

• 批准号: 6438924
• 负责人: John Edward Vena
• 金额: $ 32.15万
• 依托单位: STATE UNIVERSITY OF NEW YORK AT BUFFALO
• 依托单位国家: 美国
• 财政年份: 2001
• 资助国家: 美国
• 起止时间: 2001-09-30 至 2006-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6438924
• 关键词: asthma; autoimmune disorder; behavioral /social science research tag; clinical research; community; environmental contamination; environmental health; health care service planning; health science research analysis /evaluation; human subject; information dissemination; medically underserved population; social change; social cooperation; systemic lupus erythematosus; urban poverty area

DESCRIPTION (provided by applicant): The investigators propose that the Environment and Society Institute (ESI) and the Department of Social and Preventive Medicine of the University of Buffalo (UB) continue community participatory research projects currently underway in two targeted communities in Buffalo, New York. Their plan is to strengthen the infrastructural and organizational requirements for the operation of a community environmental health response team which will improve research quality and relevance and maintain the community outreach that will engender community participation at all levels of the research process, including dissemination of the findings. The community and scientist partners have developed and are implementing an outcome-based research agenda focusing on two targeted geographic areas: 1) a community on the east-side of Buffalo concerned with pollution from toxic waste sites and point sources of pollution and a cluster of autoimmune disease, and 2) the westside of Buffalo near a high-traffic corridor with elevated exposures to diesel exhaust and documented higher prevalence of asthma. The research teams in place consist of investigators and staff from the University at Buffalo and an active steering committee with working groups for each community-based study. Specific tasks outlined in the methodology are (1) further implementation of the research agenda, (2) development of communication and dissemination strategies, (3) evaluation of the participatory process, and (4) evaluation of the completion of the research objectives. These steering committees and workgroups provide a forum where science is integrated with decision-making processes. The research teams in place will serve as a scientific and educational resource for the community and will facilitate integration of activities related to health assessment, risk communication, and action. A partnership will be strengthened by the activities proposed herein between research scientists, primary care providers, and citizens, in two high-risk, underserved, poor, minority populations that appear to be adversely impacted by environmental insults. Over the five-year period in each of the study areas, research objectives will include further documentation of the prevalence of disease, validation of diagnosis and organization of exposure assessment protocols, design and implementation of analytic studies, establishment of surveillance systems, dissemination of findings and the development and implementation of interventions.

描述（由申请人提供）： 调查人员建议环境与社会研究所 (ESI) 和 布法罗大学社会与预防医学系 （布法罗大学）继续目前正在进行的社区参与性研究项目 纽约州布法罗的两个目标社区。 他们的计划是加强 运营的基础设施和组织要求 社区环境健康应对小组将改进研究 质量和相关性，并保持社区外展，从而产生 社区参与研究过程的各个层面，包括 传播调查结果。 社区和科学家合作伙伴已经 制定并正在实施基于成果的研究议程，重点关注 两个目标地理区域：1) 布法罗东侧的一个社区 关注有毒废物场和点污染源的污染 以及一系列自身免疫性疾病，以及 2) 布法罗西侧靠近 交通繁忙的走廊，柴油废气暴露量较高，并有记录 哮喘患病率较高。 现有的研究团队包括 来自布法罗大学的研究人员和工作人员以及积极的指导 委员会为每项基于社区的研究设有工作组。 具体任务 该方法概述了 (1) 研究的进一步实施 议程，(2) 制定沟通和传播策略， (3) 参与过程的评估，以及 (4) 参与过程的评估 完成研究目标。 这些指导委员会和工作组提供了一个论坛，让科学 与决策过程相结合。 到位的研究团队将 为社区提供科学和教育资源，并将 促进与健康评估、风险评估相关的活动的整合 沟通、行动。 伙伴关系将得到加强 本文提出的研究科学家、初级保健之间的活动 两个高风险、服务不足、贫困、少数群体的提供者和公民 似乎受到环境损害不利影响的人群。 在每个研究领域的五年期间，研究目标将 包括进一步记录疾病的流行情况、验证 暴露评估方案的诊断和组织、设计和 实施分析研究，建立监测系统， 传播调查结果以及制定和实施 干预措施。