Development and evaluation of a toolkit to improve access and diagnosis of dementia in memory services for British Urdu speaking population

验证研究：遵循稳健的方法和用户参与，我们已经开发了ACE III乌尔都语。我们现在的目标是在100名英国乌尔都语使用者中验证ACE-III乌尔都语。我们将从大曼彻斯特地区的记忆诊所招募34名患有额颞叶痴呆（FTD）的参与者，33名患有阿尔茨海默病（AD）的参与者，以及33名健康参与者组成对照组。所有参与者都将接受乌尔都语ACE-III测试，并根据记忆诊所记录的临床诊断计算和验证他们的分数。实施研究：开发一个工具包，包括乌尔都语ACE-III和各种资源，以解决记忆诊所向英国乌尔都语服务用户提供服务方面的问题。问题和潜在的解决方案将被确定并用于开发工具包，然后将在大曼彻斯特地区的记忆诊所实施和评估：a.开发工具包将与记忆诊所的工作人员进行两个焦点小组讨论。我们将讨论他们在记忆诊所与英国乌尔都语服务用户互动的经验，出现的问题，解决这些问题的现行方案，培训和资源方面的差距以及他们对潜在解决方案的建议。我们还将对英国乌尔都语记忆诊所的服务用户进行十次半结构化访谈，了解他们从进入记忆诊所开始的使用体验，包括诊断过程，直到他们正式从记忆诊所出院。焦点小组和访谈将被录音并逐字抄写。将对抄本进行专题分析，以确定障碍和促进因素。这些综合信息将使我们能够为工具包开发材料，其中包括员工培训、文化敏感指南和针对英国乌尔都语记忆诊所参与者的信息材料。2. b.实施研究我们将在大曼彻斯特地区的2家记忆诊所实施该工具包，并使用痴呆症评估完成度和质量的前后设计来评估其效果。我们还将探讨员工和用户对文化敏感工具包的满意度。潜在的结果:1。在英国乌尔都语人群中，一项心理测量学上可靠的神经心理学评估ACE III用于检测痴呆。一个工具包，通过提供文化上合适的培训和解决方案，解决工作人员和英国乌尔都语记忆服务用户发现的差距。

Validation Study: Following a robust methodology and user involvement we have already developed ACE III Urdu. We will now aim to validate ACE-III Urdu in 100 British Urdu speakers. We will recruit 34 participants with frontotemporal dementia (FTD), 33 with Alzheimer's disease (AD) from memory clinics across the Greater Manchester area, along with 33 healthy participants to form a control group. All participants will be administered the Urdu ACE-III and their scores calculated and validated against clinical diagnosis documented by memory clinics.Implementation Study: To develop a toolkit consisting of the Urdu ACE-III and various resources that will address issues within memory clinics in terms of the service provided to British Urdu speaking service users. Problems and potential solutions will be identified and used to develop the toolkit which will then be implemented and evaluated in memory clinics across the Greater Manchester Area:1. a. Development of the toolkit Two focus groups will be conducted with staff members of memory clinics. We will discuss their experiences interacting with British Urdu speaking service users within memory clinics, issues that have arisen, current protocol for addressing these issues, and any gaps in training and resources and their proposals for potential solutions. We will also conduct ten semi structured interviews of British Urdu speaking memory clinic service users, regarding their user experience from the point of entry into the memory clinic, including the diagnostic process, to their official discharge from the memory clinic. Focus groups and interviews will be audio recorded and transcribed verbatim. Transcriptions will undergo a thematic analysis to identify barriers and facilitators.This combined information will allow us to develop materials for the toolkit that will include staff training, culturally sensitive guidelines and information materials for British Urdu speaking memory clinic attendees. 2. b. Implementation study We will implement this toolkit in 2 memory clinics in the Greater Manchester area and evaluate its effect using a before and after design on completion and quality of dementia assessment. We will also explore staff and user satisfaction with the culturally sensitive toolkit. Potential Outcomes:1. A validated psychometrically robust neuropsychological assessment ACE III for detecting dementia in British Urdu speaking populations.2. A toolkit that addresses gaps identified by staff and British Urdu speaking memory services users by providing culturally appropriate training and solutions.