Development and evaluation of a toolkit to improve access and diagnosis of dementia in memory services for British Urdu speaking population

开发和评估工具包，以改善英国乌尔都语人群记忆服务中痴呆症的获取和诊断

• 批准号: 1916515
• 金额: --
• 依托单位: University of Manchester
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2017
• 资助国家: 英国
• 起止时间: 2017 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-1916515
• 关键词: Development; evaluation; toolkit; improve; access

Validation Study: Following a robust methodology and user involvement we have already developed ACE III Urdu. We will now aim to validate ACE-III Urdu in 100 British Urdu speakers. We will recruit 34 participants with frontotemporal dementia (FTD), 33 with Alzheimer's disease (AD) from memory clinics across the Greater Manchester area, along with 33 healthy participants to form a control group. All participants will be administered the Urdu ACE-III and their scores calculated and validated against clinical diagnosis documented by memory clinics.Implementation Study: To develop a toolkit consisting of the Urdu ACE-III and various resources that will address issues within memory clinics in terms of the service provided to British Urdu speaking service users. Problems and potential solutions will be identified and used to develop the toolkit which will then be implemented and evaluated in memory clinics across the Greater Manchester Area:1. a. Development of the toolkit Two focus groups will be conducted with staff members of memory clinics. We will discuss their experiences interacting with British Urdu speaking service users within memory clinics, issues that have arisen, current protocol for addressing these issues, and any gaps in training and resources and their proposals for potential solutions. We will also conduct ten semi structured interviews of British Urdu speaking memory clinic service users, regarding their user experience from the point of entry into the memory clinic, including the diagnostic process, to their official discharge from the memory clinic. Focus groups and interviews will be audio recorded and transcribed verbatim. Transcriptions will undergo a thematic analysis to identify barriers and facilitators.This combined information will allow us to develop materials for the toolkit that will include staff training, culturally sensitive guidelines and information materials for British Urdu speaking memory clinic attendees. 2. b. Implementation study We will implement this toolkit in 2 memory clinics in the Greater Manchester area and evaluate its effect using a before and after design on completion and quality of dementia assessment. We will also explore staff and user satisfaction with the culturally sensitive toolkit. Potential Outcomes:1. A validated psychometrically robust neuropsychological assessment ACE III for detecting dementia in British Urdu speaking populations.2. A toolkit that addresses gaps identified by staff and British Urdu speaking memory services users by providing culturally appropriate training and solutions.

验证研究：遵循稳健的方法和用户参与，我们已经开发了 ACE III 乌尔都语。我们现在的目标是在 100 名英国乌尔都语使用者中验证 ACE-III 乌尔都语。我们将从大曼彻斯特地区的记忆诊所招募 34 名患有额颞叶痴呆 (FTD) 的参与者、33 名患有阿尔茨海默病 (AD) 的参与者，以及 33 名健康的参与者来组成对照组。所有参与者都将接受乌尔都语 ACE-III 测试，并根据记忆诊所记录的临床诊断计算和验证他们的分数。实施研究：开发一个由乌尔都语 ACE-III 和各种资源组成的工具包，解决记忆诊所内向英国乌尔都语服务用户提供的服务方面的问题。将确定问题和潜在的解决方案，并用于开发工具包，然后在大曼彻斯特地区的记忆诊所中实施和评估：1。一个。工具包的开发 将由记忆诊所的工作人员进行两个焦点小组讨论。我们将讨论他们在记忆诊所内与英国乌尔都语服务用户互动的经验、出现的问题、解决这些问题的当前协议、培训和资源方面的任何差距以及他们对潜在解决方案的建议。我们还将对英国乌尔都语记忆诊所服务用户进行十次半结构化访谈，了解他们从进入记忆诊所（包括诊断过程）到正式退出记忆诊所的用户体验。焦点小组和访谈将被录音并逐字转录。转录内容将进行主题分析，以确定障碍和促进因素。这些综合信息将使我们能够为工具包开发材料，其中包括员工培训、文化敏感指南和针对英国乌尔都语记忆诊所参与者的信息材料。 2.b.实施研究我们将在大曼彻斯特地区的 2 个记忆诊所实施该工具包，并使用前后设计对痴呆症评估的完成和质量来评估其效果。我们还将探讨员工和用户对文化敏感工具包的满意度。潜在成果：1。经验证的心理测量稳健神经心理学评估 ACE III，用于检测英国乌尔都语人群中的痴呆症。2。该工具包通过提供适合文化的培训和解决方案来解决工作人员和英国乌尔都语记忆服务用户发现的差距。