Are prospective parents being given sufficient information by medical practitioners in relation to genetic testing to give informed consent?

医生是否向准父母提供了与基因检测相关的足够信息以给予知情同意？

• 批准号: 1941037
• 金额: --
• 依托单位: Swansea University
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2017
• 资助国家: 英国
• 起止时间: 2017 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-1941037
• 关键词: prospective; parents; being; given; sufficient

My PhD project aims to assess the quality of information delivered by medical practitioners to prospective parents in relation to genetic testing and whether informed consent to such testing is being sufficiently received. The interests of the unborn child will be taken into consideration and the ethical arguments surrounding this.I will aim to assess the quality of information delivered in conversations between medical practitioners and prospective parents and decipher whether the parents feel able to make an informed decision based on the information received. I will also assess the current legal standard for disclosure of information and consider whether the courts have struck an appropriate balance between the interests of medical professionals and patients. My goal is to reduce the number of unnecessary terminations and increase the understanding and knowledge of prospective parents in relation to the genetic testing process before they deliver their consent. I also aim to increase the quality of information being delivered by medical practitioners to eradicate decision-making that is based on fear or uncertainty. The objective is to ultimately make every decision the correct decision under the circumstances.

我的博士项目的目的是评估信息的质量由医生提供给准父母在基因检测和是否知情同意这种测试是充分接受。未出生的孩子的利益将被考虑在内，围绕这一点的伦理争论。我的目标是评估医疗从业者和准父母之间的对话中提供的信息的质量，并破译父母是否觉得能够根据收到的信息做出明智的决定。我亦会评估现时披露数据的法律的标准，以及考虑法庭有否在医疗专业人士和病人的利益之间取得适当平衡。我的目标是减少不必要的终止数量，并在准父母同意之前增加他们对基因检测过程的理解和知识。我还打算提高医疗从业人员提供的信息的质量，以消除基于恐惧或不确定性的决策。我们的目标是最终使每一个决定都是在这种情况下正确的决定。