Are prospective parents being given sufficient information by medical practitioners in relation to genetic testing to give informed consent?

我的博士项目旨在评估医生向未来父母提供的与基因检测有关的信息的质量，以及是否充分获得了对此类检测的知情同意。我将考虑未出生婴儿的利益和围绕这一问题的伦理争论。我的目标是评估医生和未来父母之间对话中传递的信息的质量，并根据收到的信息来解读父母是否感到有能力做出明智的决定。我亦会评估现时披露资料的法律标准，并考虑法庭有否在医疗专业人士和病人的利益之间取得适当的平衡。我的目标是减少不必要的流产次数，并在未来父母表示同意之前，增加他们对基因检测过程的理解和了解。我还旨在提高医生提供的信息质量，以消除基于恐惧或不确定性的决策。目标是在这种情况下最终做出每一项决定都是正确的决定。

My PhD project aims to assess the quality of information delivered by medical practitioners to prospective parents in relation to genetic testing and whether informed consent to such testing is being sufficiently received. The interests of the unborn child will be taken into consideration and the ethical arguments surrounding this.I will aim to assess the quality of information delivered in conversations between medical practitioners and prospective parents and decipher whether the parents feel able to make an informed decision based on the information received. I will also assess the current legal standard for disclosure of information and consider whether the courts have struck an appropriate balance between the interests of medical professionals and patients. My goal is to reduce the number of unnecessary terminations and increase the understanding and knowledge of prospective parents in relation to the genetic testing process before they deliver their consent. I also aim to increase the quality of information being delivered by medical practitioners to eradicate decision-making that is based on fear or uncertainty. The objective is to ultimately make every decision the correct decision under the circumstances.