Lessons on community participation in research on intimate partner violence and HIV in an informal settlement in Kenya

背景：肯尼亚整合艾滋病毒和基于性别的暴力服务的框架建议社区参与研究和规划，强调伦理利益和改善健康结果的潜力。基于社区的参与性研究（CBPR）是一种经过检验的方法，通过合作调查和行动“与”人们一起进行研究。我的报告介绍了在肯尼亚内罗毕的一个非正式住区中，CBPR在加强亲密伴侣暴力（IPV）和艾滋病毒预防干预方面的经验教训。方法：我们的研究与ALIV[H]E（将暴力侵害妇女和艾滋病毒无处不在的行动联系起来）框架保持一致。2020年8月，我们组建并培训了一个研究小组，包括来自科罗戈乔的研究人员（n=3）、社区卫生服务提供者（n=4）和弱势社区成员（n=7）。我们共同开发工具，进行焦点小组讨论和关键信息提供者访谈，进行小组反思，目前正在分析数据。经验教训：ALIV[H]E原则（包括人权、性别平等、安全等）为我们的方法提供了重要的基础。研究人员和合作研究人员之间的保密和尊重关系是我们研究的支柱。共同研究人员教我们作为局外人如何让边缘化群体参与进来，并澄清了影响IPV和艾滋病毒风险的社会和经济背景。参与和能力建设需要大量时间，但对产出的质量和可持续性至关重要。我们必须在博士研究项目的限制下平衡研究过程和产出。结论：CBPR促进了研究人员和共同研究人员之间的相互学习，打开了讨论性健康和生殖健康问题的平台，并有可能确定满足边缘化人群需求的干预措施。

Background: Kenya's framework for integrating HIV and gender-based violence services, proposes community participation in research and programming, stressing the ethical benefits and potential to improve health outcomes. Community-based participatory research (CBPR) is a tested approach for doing research 'with' people through collaborative investigation and action. My presentation describes lessons from CBPR for strengthening intimate partner violence (IPV) and HIV prevention interventions in an informal settlement in Nairobi, Kenya.Methods: Our study aligns with the ALIV[H]E (Actions Linking Violence Against Women and HIV Everywhere) framework. In August 2020, we formed and trained a research team, involving researchers (n=3), community health providers (n=4) and vulnerable community members (n=7) from Korogocho. We jointly developed tools, conducted focus group discussions and key informant interviews, held group reflection and are now analysing data.Lessons learned: The ALIV[H]E principles (including human rights, gender equity, safety etc.) provided an essential underpinning to our approach. Confidentiality and respectful relationships among researchers and co-researchers were the backbone of our study. Co-researchers taught us as outsiders how to involve marginalised groups and clarified the social and economic context that shapes IPV and HIV risk. Participation and capacity building were time-intensive, but critical for the quality and sustainability of outputs. We had to balance focus on research process and outputs within the constraints of a PhD research project.Conclusions: CBPR facilitated mutual learning among researchers and co-researchers, opened platforms to discuss sexual and reproductive health issues and has potential for identifying interventions that meet the needs of marginalised people.