The End-of-Life Family Workshop

临终家庭研讨会

• 批准号: 6549689
• 负责人: RUTH ANDERSON
• 金额: $ 10万
• 依托单位: TALARIA, INC.
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-07-09 至 2003-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6549689
• 关键词: DVD /CD ROM; Internet; awareness; behavioral /social science research tag; caregivers; clinical research; communication; computer assisted instruction; computer program /software; computer system design /evaluation; death; decision making; family therapy; human subject; interactive multimedia; interpersonal relations; psychological adaptation; workshop

DESCRIPTION (provided by applicant): We propose to develop The End-of-Life Family Workshop, a multimedia computer program to aid families in the end-of-life care of a loved one. Research shows that communication and decision-making continues to challenge families of patients facing end of life. Misunderstandings and conflicts can arise when family members are ill equipped to assume the roles of caregiver, proxy, and advocate, which are often thrust upon them as their loved one is dying. The task of guiding families through the dying process has generally fallen to healthcare providers. Too often, however, these healthcare professionals lack the time, resources, and/or the interpersonal skills to fully and sensitively support the family at this difficult time. The End-of-Life Family Workshop is designed to enhance traditional provider-family education by 1) raising family members' awareness of issues and topics that are germane to end-of-life decision-making, and 2) improving communication skills in specific EOL interactions. The Workshop will supplement the information services currently available through the medical community. Deliverable on CD-ROM or via the Internet, this multimedia tool is intended for families, where "family" includes all persons (relatives and non-relatives) who are important to and interact with the patient at end of life.

描述（由申请人提供）：我们建议开发临终家庭研讨会，这是一项多媒体计算机计划，旨在帮助家庭在亲人的终止护理中。研究表明，沟通和决策继续挑战面临生命终结的患者家庭。当家庭成员不足能够承担照料者，代理和倡导者的角色时，可能会出现误解和冲突，这些角色通常会随着他们所爱的人快要死的而被推向他们。指导家庭通过垂死过程的任务通常落在医疗保健提供者身上。但是，这些医疗保健专业人员常常缺乏时间，资源和/或人际交往能力，无法在这个困难时期充分而敏感地支持家庭。临终家庭研讨会旨在通过1）提高家庭成员对问题和主题的意识来增强传统提供者教育，这些问题和主题是对临终决策终止的终结，以及2）提高特定EOL互动中的沟通技巧。研讨会将补充当前通过医学界获得的信息服务。该多媒体工具在CD-ROM上或通过Internet上的可交付方式适用于家庭，其中“家庭”包括所有对生命终结并与患者互动并与患者互动的人（亲戚和非依赖者）。