The Origins of Informed Consent: Cancer Patients/Doctors

描述(由申请人提供)： 这个项目的目的是重新审视引入知情同意的问题。 在20世纪70年代进入临床实践。大多数学者都划清了界限， 认为病人自主的模式取代了医疗家长式作风 这十年。这项研究将解决有关知情人士的文献中的一个空白 同意，检查患者如何响应他们播放的越来越多的呼叫 在治疗决策中发挥更积极的作用。这是一个假设 项目是从家长式作风到自治的转变 太夸张了。相反，患者对女权主义者和其他人的建议做出了回应 健康活动家通过建立基于以下概念的临床接触 谈判、指导、尊重和信任。这种新型的对话利用了 病人和医生互动的社会和文化环境。 拟议的项目将采用历史学家广泛使用的方法， 包括对二次文献的回顾和对 以原始数据为基础的解释性理论。这项研究的核心内容 将检查一组独特的通信之间的通信 乳腺癌患者和20世纪70年代美国领先的患者权益倡导者， 罗斯·库什纳。通过强调患者对引入的一种 以同意为基础的模式，该项目将实现两个相关目标： 实现对知情同意和 为现代患者和从业者提供替代框架 面临着具有挑战性的临床决策。

DESCRIPTION (provided by applicant): The aim of this project is to revisit the introduction of informed consent into clinical practice in the 1970s. Most scholars have drawn a sharp line, arguing that a model of patient autonomy replaced medical paternalism during this decade. This research will address a gap in the literature on informed consent, examining how patients responded to the growing calls that they play a more active role in making treatment decisions. The hypothesis of this project is that the transformation from paternalism to autonomy has been exaggerated. Rather, patients responded to the advice of feminists and other health activists by forging a clinical encounter based on concepts such as negotiation, guidance, respect and trust. This new type of dialogue drew on the social and cultural setting in which patients and physicians interacted. The proposed project will employ methodology widely used by historians, including a review of the secondary literature and the development of explanatory theories based on primary data. The centerpiece of this research will be the examination of a unique collection of correspondence between breast cancer patients and America's leading patient advocate in the 1970s, Rose Kushner. By emphasizing the response of patients to the introduction of a consent-based model, this project will accomplish two related objectives: achieving a more complete historical understanding of informed consent and providing an alternative framework for modern patients and practitioners confronting challenging clinical decisions.