South Bronx EJ Partnership and Ethical Issues in EH

描述（由申请人提供） 南布朗克斯环境正义伙伴关系的使命是改善在南布朗克斯生活和工作的人们的健康，从儿童和孕妇开始，扩大到包括其他成年人。 SBEJP是蒙蒂菲奥里医学中心（MMC）、阿尔伯特·爱因斯坦医学院（AECOM）和南布朗克斯清洁空气联盟（SBCAC）之间的合作伙伴关系。 SBEJP咨询委员会将包括其他社区组织的代表。 在该提案中，SBEJP建议探索最合适的方法，以解决因对生活在南布朗克斯的儿童尿液中汞含量升高的普遍性及其可能来源进行非治疗性流行病学研究而产生的社会、伦理和法律的挑战。 SBEJP的具体目标如下：1）评估南布朗克斯社区对环境汞的健康影响及其在当地环境中的来源的了解程度。 2)制定、实施和评估教育材料和方案，以提高南布朗克斯社区对与开展汞环境健康研究有关的伦理问题和挑战的认识。 3)通过与社区和精神领袖、神职人员、生物伦理学家以及科学和临床专家的持续对话，为社区居民和卫生专业人员制定一项社区驱动的教育干预措施，以减少南布朗克斯儿童的汞暴露。 4)在SBEJP环境卫生科学家、临床医生、生物伦理学家、社区成员、神职人员和精神领袖之间建立持续和长期的对话，讨论与环境卫生研究有关的伦理问题，将元素汞的仪式使用作为案例研究或模型。 将对所有具体活动进行正式评价，包括形成性、过程和结局评价，并由主要研究者负责。

DESCRIPTION (provided by applicant) The mission of the South Bronx Environmental Justice Partnership (SBEJP) is to improve the health of the people who live and work in the South Bronx, beginning with children and pregnant women, and expanding to include other adults. SBEJP is a partnership between the Montefiore Medical Center (MMC), Albert Einstein College of Medicine (AECOM), and South Bronx Clean Air Coalition (SBCAC). The SBEJP Advisory Board will include representatives of other community organizations. In this proposal, the SBEJP proposes to explore the most appropriate methods for addressing the social, ethical, and legal challenges arising from non-therapeutic, epidemiological research on the prevalence of elevated mercury levels in urine of children living in the South Bronx and its possible sources. The specific aims of the SBEJP are as follows: 1) To assess the South Bronx community's level of knowledge regarding the health impacts of environmental mercury and its sources in the local environment. 2) To develop, implement, and evaluate educational materials and programs that enhance the South Bronx's community awareness of the ethical issues and challenges related to conducting environmental health research on mercury. 3) To develop a community-driven educational intervention to reduce childhood exposure to mercury in the South Bronx for both community residents and health professionals informed by on-going dialogue with its community and spiritual leaders, clergy, bioethicists, and scientific and clinical experts. 4) Establish an on-going and long-term dialogue between SBEJP environmental health scientists, clinicians, bioethicists, community members, clergy, and spiritual leaders on ethical issues related to environmental health research on the ritual use of elemental mercury as a case study or model. Formal evaluation will be conducted of all specific activities, including formative, process, and outcome evaluations, and will be the responsibility of the principal investigator.