How feasible is caring for the deceased at home in the UK, and to what extent does this help bereaved families?

在英国在家中照顾死者有多可行？这对死者家属有何帮助？

• 批准号: 2381255
• 金额: --
• 依托单位: University of Bath
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2020
• 资助国家: 英国
• 起止时间: 2020 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2381255
• 关键词: How; feasible; caring; deceased; home

The study will explore the benefits and challenges of caring for a deceased person's body at home, and the extent to which this helps (or hinders) bereaved individuals, families and communities in coming to terms with the death and their grief experience. Extending work undertaken by members of the University of Bath's Centre for Death and Society, including work on dying at home in old age, the project seeks to contribute to the socio-political development of the natural death movement and 'death positive' movement that are reimagining all aspects of death and dying across the UK. The study has the potential to lead to better societal understanding of caring for the deceased at home leading to attitudinal, social, cultural or policy changes, and improved experiences for people who have suffered a bereavement.The project stems from the decline in caring for, or even locating, people in their homes after they have died. Until 150 years ago, before the advent of Victorian hospitals, mortuaries and the modern day funeral director, it was commonplace for people to die at home and for their body to remain there until the day of its burial. Now, most people die in an institution (either a hospital, care home or hospice), and for those that do die at home the vast majority are transferred to a mortuary facility for cold storage before their cremation or burial. Very little is known about the potential benefit that may be derived from caring for the deceased at home after they have died, or having them 'return home after their death in an institution. Previous research has found that viewing (and potentially holding) a stillborn baby can improve the wellbeing of the mother (Radestad et al, 2009) arguably similar benefits to the bereaved could be found in spending time with a deceased adult. Anectotal evidence points to spending time with the deceased allowing the reality and finality of the death to sink in.Key research questions in this project will include:1. How feasible is caring for the deceased at home, and to what extent does this help bereaved families?2. To what extent does spending time with the body after a death effect bereaved individuals' perception of their own mortality or their experience of bereavement?3. What is the feasibility of caring for bodies at home in terms of costs, healthcare/deathcare, staff cooperation, and national/local policy on end of life care?The project will be conducted using semi-structured interviews focusing on the experiences of bereaved families who have cared for a deceased family member at home and will be analysed using thematic analysis. The interviews will be complemented by a comprehensive questionnaire to professionals involved in the care of the body after death which will gather information on awareness of the practice of caring for the body at home (and any relevant policy), their willingness to help facilitate it, any perceived barriers and whether they have experienced it in practice.

这项研究将探讨照顾死者在家中的益处和挑战，以及这有助于（或阻碍）死亡的个人，家庭和社区在死亡和悲伤经历方面有帮助的程度。该项目扩大了巴斯大学死亡与社会中心成员的工作，包括在老年后死亡的工作，该项目试图为自然死亡运动的社会政治发展和“死亡积极”运动做出贡献，这些运动正在重新想象整个英国死亡和死亡的各个方面。这项研究有可能使社会对照顾死者的社会理解，从而导致态度，社会，文化或政策变化，并为遭受丧亲的人提供改善的经历。该项目源于照顾甚至丧生后的照顾甚至位置的人。直到150年前，在维多利亚时代医院，抵押品和现代fun仪馆馆长出现之前，人们很普遍地在家中死去，并让他们的尸体留在那里直到葬礼的日子。现在，大多数人都死于机构（医院，养老院或临终关怀），对于那些在家中死亡的人，绝大多数人都会被转移到太平间，以便在火化或埋葬之前进行冷藏。关于他们去世后在家中照顾死者的潜在利益，或者让他们在机构去世后返回家中所带来的潜在利益知之甚少。先前的研究发现，观看（并有潜在地持有）死产的婴儿可以改善母亲的福祉（Gadestad等，2009），可以说，在与死者的成年人度过时光时，可以发现与丧亲的好处相似。 Anectotal证据指出，与死者一起度过时光，允许死亡的现实和终结性沉入。在家中照顾死者有多可行，这在多大程度上有助于丧亲的家庭？2。死亡效果使丧亲者对自己的死亡率或丧亲经历的死亡效果之后，在多大程度上花费时间？3。在救生期结束的成本，医疗保健/死亡保健，员工合作以及国家/地方政策方面，在家中照顾身体的可行性是什么？将使用半结构化访谈进行该项目，这些访谈着重于丧亲家庭的经验，这些家庭着重于在家中照顾死者的家庭成员，并将使用主题分析进行分析。访谈将得到一份全面的问卷调查，向参与死后身体护理的专业人员的全面问卷调查，这将收集有关在家中照顾身体（以及任何相关政策）的意识的信息，他们愿意帮助促进它，任何感知到的障碍以及他们是否在实践中经历过。