An Examination of the Social Implications of Hypermobility Spectrum Disorder and Hypermobile Ehlers-Danlos Syndrome as New Diagnostic Categories

我的研究是一个社会学研究的诊断HypermobilitySpectrum Disorders（HSD）和Hypermobile Ehlers-Danlos综合征（hEDS）。这些诊断分类于2017年引入，描述了与关节过度活动相关的疾病，取代了之前的关节过度活动综合征（JHS）和Ehlers-Danlos综合征3型（EDS 3）分类，两者之间存在重叠（HMSA 2019）。这样的研究将解决文献中的一个明显空白，尽管在过去十年中，生物医学越来越关注关节过度活动（Castori et al. 2017），但尚未对相关疾病的社会方面进行研究。这将有助于在医学社会学中建立一个繁荣的慢性健康状况研究传统，建立在包括Bury（1982），威廉姆斯（2000）和Charmaz（2002）在内的学者的著名著作之上。这赠款了慢性病患者一个宝贵的发言权，让他们说出他们的个人经历和关心的方式，否则他们将无法说出。我的希望是，这可能会挑战现有的医疗理念和做法，有可能造成伤害，并率先发展改善诊断和支持的做法，为那些与HSD或hEDS，最终促进更好的病人的结果。

My proposed research is a sociological study of the diagnosis of HypermobilitySpectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS). Thesediagnostic classifications were introduced in 2017 and describe conditions related to jointhypermobility, replacing the former classifications of Joint Hypermobility Syndrome (JHS)and Ehlers-Danlos Syndrome Type 3 (EDS 3), between which there were considerableoverlap (HMSA 2019).Such a study will address a glaring gap in the literature, as despite increasedbiomedical attention paid to joint hypermobility in the past decade (Castori et al. 2017),there have been no studies into social aspects of the associated conditions. This willcontribute to a thriving tradition of the study of chronic health conditions within thesociology of medicine, building on notable works by scholars including Bury (1982), Williams(2000) and Charmaz (2002). This grants an invaluable voice to individuals with chronicillnesses, allowing them to speak out about matters of their personal experiences and carein ways that they would otherwise not be able to. My hope is that may challenge existingmedical ideas and practices that have the potential to cause harm, and spearhead thedevelopment of improved diagnostic and support practices for those with HSD or hEDS,ultimately fostering better patient outcomes.