Data Coordinating Center for Autism & Other Disabilities

自闭症数据协调中心

• 批准号: 6892129
• 负责人: MOHAMMAD HOSSEIN RAHBAR
• 金额: $ 60万
• 依托单位: MICHIGAN STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-05-01 至 2009-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6892129
• 关键词: autism; biomedical facility; children; clinical research; cooperative study; data management; data quality /integrity; developmental disease /disorder; human data; statistics /biometry

DESCRIPTION (adapted from Applicant(s abstract): Autism is a complex behavioral disorder manifesting in infancy or early childhood, although its origin may be genetic or prenatal. Its clinical presentation is characterized by impairments in social interaction and communication, and by repetitive, stereotyped behaviors. The Centers for Disease Control and Prevention (CDC) / National Center on Birth Defects and Developmental Disabilities have awarded a series of multi-year cooperative agreements to states or their designated entities to establish autism surveillance programs, Autism and Developmental Disabilities Research and Epidemiology CADDRE. Currently there are 6 funded CADDRE sites and 7 funded ADDM sites. The purpose of this cooperative agreement, with CDC, is for the Michigan State University Data Coordinating Center (MSU-DCC) to serve as a data coordinating center for a multicenter study to support surveillance data and research data management related developmental disabilities, such as Autism Spectrum Disorders (ASD) and other Developmental Disabilities (DD). The MSU-DCC in partnership with the Radiology Engineering Group (REG) will cooridinate and facilitate data mangement activities across both ADDM and CADDRE grantee sites. MSU-DCC will take the lead role in cooridination of this project and will be responsible for central data collection, quality control, management, design and statistical analysis of the data. The REG will provide technical assistance in developing web-based data collection systems and provide training at various sites. During the first phase of this project a concise and coherent plan of action will be developed in consultation with the CDC staff. The Department of Epidemiology will provide expertise relevant to the methodological and analytical issues. Several consultants from Michigan Department of Community Health, Research Triangle Institute, and the University of North Carolina -Chapel Hill have agreed to to provide their expertise on various aspects of this project.

描述（根据申请人（s摘要）改编：自闭症是一种复杂的行为障碍，尽管其起源可能是遗传或产前的，但其临床表现的特征是社会互动和沟通的损害，以及重复性，定型的行为的损害，疾病控制和预防（CDC）的中心（CDC）的疾病中心（CDC）均具有疾病控制和预防范围，该中心是疾病控制和预防范围。与各州或其指定实体建立自闭症监视计划，自闭症和发育障碍研究和流行病学的协议。以及研究数据管理相关的发育障碍，例如自闭症谱系障碍（ASD）和其他发育障碍（DD）。与放射学工程集团（REG）合作的MSU-DCC将在ADDM和CADDRE GRANTEE网站上辅助并促进数据操作活动。 MSU-DCC将在该项目的配置中发挥主导作用，并负责中央数据收集，质量控制，管理，设计和数据的统计分析。 REG将在开发基于Web的数据收集系统并在各个站点提供培训方面提供技术帮助。在该项目的第一阶段，将与CDC员工协商制定简洁而连贯的行动计划。流行病学系将提供与方法论和分析问题有关的专业知识。密歇根州三角研究所社区卫生部和北卡罗来纳大学 - 教堂山的几名顾问已同意在该项目的各个方面提供他们的专业知识。