Low Vision Rehabilitation Consensus Project

低视力康复共识项目

• 批准号: 6889186
• 负责人: ROBERT W. MASSOF
• 金额: $ 16.35万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-05-01 至 2007-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6889186
• 关键词: behavioral /social science research tag; blindness; clinical research; decision making; functional ability; health care model; health care personnel; health care service planning; health science research; health services research tag; human subject; mathematical model; medical rehabilitation related tag; outcomes research; quality of life; questionnaires; rehabilitation; statistics /biometry; vision disorders

DESCRIPTION (provided by the applicant): Low vision is a state of chronic visual impairment that causes disability. Low vision rehabilitation consists of vision enhancing and adaptive devices; visual skills, adaptive skills, ADL, and mobility training; environmental modifications; and psychosocial counseling. Low vision rehabilitation service providers most likely differ in the extent of patient evaluation, intervention options available, estimates of rehabilitation potential, estimates of the costs of intervention and the value of outcomes, and criteria for successful outcomes. The proposed project has the aims of developing a model for rehabilitation potential that incorporates clinical decision-making, estimating the distributions of decision-making variables in the population of low vision rehabilitation service providers, developing methods of gathering clinical data and measuring outcomes in a future clinical study, and organizing collaborators for a future clinical study. The proposed research will use consensus methods, classic Delphi and nominal group, to develop a consensus among experts on model parameters, to sample the distribution of opinions and parameter estimates among experienced low vision rehabilitation service providers, and to develop a consensus on details of the research plan for the future collaborative study.

描述(申请人提供)：低视力是一种导致残疾的慢性视力损害状态。低视力康复包括视力增强和适应装置；视觉技能、适应技能、日常生活能力和行动能力训练；环境调整；以及心理社会咨询。低视力康复服务提供者很可能在患者评估的程度、可用的干预选择、康复潜力的估计、干预成本和结果价值的估计以及成功结果的标准方面存在差异。拟议的项目旨在开发一个包含临床决策的康复潜力模型，估计决策变量在低视力康复服务提供者人群中的分布，开发在未来临床研究中收集临床数据和衡量结果的方法，并组织合作者进行未来的临床研究。建议的研究将使用共识方法，经典的德尔菲法和名义小组，在专家之间就模型参数达成共识，抽样有经验的低视力康复服务提供者的意见和参数估计的分布，并为未来的合作研究就研究计划的细节达成共识。