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Patient activism in an era of disinformation: charting the struggle between legitimised and stigmatised voices in media discourses about type 2 diabet

虚假信息时代的患者行动主义：描绘有关 2 型糖尿病的媒体话语中合法声音与污名声音之间的斗争

基本信息

批准号：
2497755
负责人：
金额：
--
依托单位：
Keele University
依托单位国家：
英国
项目类别：
Studentship
财政年份：
2021
资助国家：
英国
起止时间：
2021 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=studentship-2497755
关键词：
Patient activism era disinformation charting

项目摘要

Diabetes is frequently framed as a 'global epidemic', which kills 'more people worldwide than HIV/AIDS and breast cancer combined' (Moran-Thomas: 2019: 8). Yet despite its relationship with structural problems, type 2 diabetes* has been stigmatised as a 'lifestyle disease' by the mainstream media for its links to excessive consumption (Gollust and Lantz, 2009; Moran-Thomas, 2019). Identified by my BA (1st class) and MA (Distinction) research, it is evident that diabetics are rejecting such discourses, and are instead pushing counter-narratives that combat stigma and create possibilities for social change.This proposed PhD project will build on my previous work by exploring how patient counter-narratives about diabetes can inform media discourses. It will identify the possibilities and barriers patient activists face in a contemporary media sphere, particularly at a time when both 'fake news' fears are rife and online/social media platforms allow for the growth of alternative narratives. The project will document how 'post-truth' narratives challenge the relationship dynamics between the media, experts and public. The project proposes a mixed-methodological approach that combines a Foucauldian discourse analysis with stakeholder interviews and is supported by interdisciplinary expertise from a supervisory team across Keele and Manchester

糖尿病经常被认为是一种“全球流行病”，它导致的死亡人数“超过了艾滋病毒/艾滋病和乳腺癌的总和”(Moran-Thomas：2019：8)。然而，尽管它与结构性问题有关，但由于与过度消费有关，2型糖尿病*已被主流媒体定性为“生活方式疾病”(Gollust and Lantz，2009；Moran-Thomas，2019)。通过我的学士(一等)和硕士(区别)研究，很明显，糖尿病患者正在拒绝这样的话语，相反，他们正在推动与耻辱作斗争并为社会变革创造可能性的反叙事。这个拟议的博士项目将以我之前的工作为基础，探索患者对糖尿病的反叙事如何为媒体话语提供信息。它将确定耐心的积极分子在当代媒体领域面临的可能性和障碍，特别是在人们对假新闻的恐惧普遍存在，在线/社交媒体平台允许另类叙事增长的时候。该项目将记录“后真相”叙事如何挑战媒体、专家和公众之间的关系动态。该项目提出了一种混合方法的方法，将福柯话语分析与利益相关者访谈相结合，并得到了基尔和曼彻斯特监督团队的跨学科专业知识的支持