Understanding the challenges of living with Parkinson's in a post COVID health and social context: a mixed methods proposal

了解帕金森病患者在新冠疫情后的健康和社会背景下生活所面临的挑战：混合方法建议

• 批准号: 2570364
• 金额: --
• 依托单位: Lancaster University
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2570364
• 关键词: Understanding; challenges; living; Parkinson; post

Parkinson's disease is the second most common neurodegenerative condition in the UK,affecting around 145,000 individuals. While age of onset in the early 60s is common,individuals can live with the condition for many years (1). Physical challenges (rigidity,tremor etc.) are most often associated with the condition but psychological difficulties, lowmood, anxiety etc (2) are also reported. Individuals have varying health care needs, requiring,optimally, regular reviews with their consultant and involvement from other healthprofessionals (3).The current COVID-19 pandemic has been associated with social and economic changes on anunprecedented level (4), with psychological effects already demonstrated. In relation to thespecific effects on individuals with Parkinson's, the applicants' latest collaboration hashighlighted various initial impacts (https://www.parkinsons.org.uk/news/how-havecoronavirus-covid-19-restrictions-impacted-people-affected-parkinsons). In this, a survey ofParkinson's UK members in May 2020 was completed by 1491 people with the condition and540 family members. The key findings were:- over a third of individuals with Parkinson's experienced increased slowness of movement,stiffness and fatigue and over a quarter increased tremor and anxiety. Stress and isolationand reduced access to health care and exercise were seen as causes of this physicaldeterioration.- For those in regular contact with health services, many had appointments cancelled withalternatives not routinely offered.

帕金森氏症是英国第二常见的神经退行性疾病，约有14.5万人受到影响。虽然在60年代初发病的年龄很常见，但个人可以在这种情况下生活多年(1)。身体挑战(僵硬、震颤等)通常与这种情况有关，但也有心理困难、情绪低落、焦虑等的报道(2)。每个人有不同的卫生保健需求，最好是与他们的顾问进行定期审查，并得到其他卫生专业人员的参与(3)。当前的新冠肺炎大流行与前所未有的社会和经济变化有关[4]，心理影响已经表现出来。关于帕金森氏症患者的特殊影响，申请者的最新合作突出了(https://www.parkinsons.org.uk/news/how-havecoronavirus-covid-19-restrictions-impacted-people-affected-parkinsons).最初的各种影响在这项研究中，一项于2020年5月对英国帕金森氏症患者的调查由1491名帕金森症患者和540名家庭成员完成。主要发现是：超过三分之一的帕金森氏症患者运动缓慢、僵硬和疲劳，超过四分之一的人感到震颤和焦虑增加。压力和孤立，以及获得医疗保健和锻炼的机会减少，被认为是这种身体状况恶化的原因。-对于那些经常与医疗服务机构接触的人来说，许多人的预约被取消了，没有常规的替代方案。