Understanding the challenges of living with Parkinson's in a post COVID health and social context: a mixed methods proposal

了解帕金森病患者在新冠疫情后的健康和社会背景下生活所面临的挑战：混合方法建议

• 批准号: 2570364
• 金额: --
• 依托单位: Lancaster University
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2570364
• 关键词: Understanding; challenges; living; Parkinson; post

Parkinson's disease is the second most common neurodegenerative condition in the UK,affecting around 145,000 individuals. While age of onset in the early 60s is common,individuals can live with the condition for many years (1). Physical challenges (rigidity,tremor etc.) are most often associated with the condition but psychological difficulties, lowmood, anxiety etc (2) are also reported. Individuals have varying health care needs, requiring,optimally, regular reviews with their consultant and involvement from other healthprofessionals (3).The current COVID-19 pandemic has been associated with social and economic changes on anunprecedented level (4), with psychological effects already demonstrated. In relation to thespecific effects on individuals with Parkinson's, the applicants' latest collaboration hashighlighted various initial impacts (https://www.parkinsons.org.uk/news/how-havecoronavirus-covid-19-restrictions-impacted-people-affected-parkinsons). In this, a survey ofParkinson's UK members in May 2020 was completed by 1491 people with the condition and540 family members. The key findings were:- over a third of individuals with Parkinson's experienced increased slowness of movement,stiffness and fatigue and over a quarter increased tremor and anxiety. Stress and isolationand reduced access to health care and exercise were seen as causes of this physicaldeterioration.- For those in regular contact with health services, many had appointments cancelled withalternatives not routinely offered.

帕金森氏病是英国第二常见的神经退行性疾病，影响约145，000人。虽然发病年龄在60年代初是常见的，但个体可以与这种疾病一起生活多年（1）。身体挑战（僵硬、震颤等）最常与这种情况有关，但也有心理困难、情绪低落、焦虑等（2）的报道。每个人都有不同的医疗保健需求，最好是与他们的顾问进行定期审查，并让其他卫生专业人员参与进来（3）。当前的COVID-19大流行与社会和经济变化的关系达到了前所未有的水平（4），心理影响已经得到证实。关于对帕金森病患者的具体影响，申请人的最新合作强调了各种初始影响（https：//www.parkinsons.org.uk/news/how-havecoronavirus-covid-19-restrictions-impacted-people-impacted-parkinsons）。在这方面，2020年5月对帕金森氏症英国成员的调查由1491名帕金森氏症患者和540名家庭成员完成。关键发现是：超过三分之一的帕金森氏症患者经历了运动缓慢，僵硬和疲劳的增加，超过四分之一的震颤和焦虑增加。压力和孤立以及获得医疗保健和锻炼的机会减少被认为是这种身体恶化的原因。对于那些经常接触卫生服务的人来说，许多人取消了预约，而不是常规提供的替代方案。