FAS/FAE Multimedia Tools for Care Providers

描述（由申请人提供）：在美国，产前暴露于酒精是导致出生缺陷的主要原因。最近的研究显示，在美国的患病率可能高达活产的1%（Burd L，Cotsonas-Hassler等人，2003年）。这意味着每年有多达39，000名婴儿出生时患有FAS。更多的人出生时就有胎儿酒精效应（FAE）。早期诊断和适当的治疗一再被证明可以显著降低继发性残疾的风险并增加积极的结局（Streissguth et al. 1997）。AEI正在开发一套关于FAS的多媒体和网络组件，目标是非专业护理提供者，特别是寄养和收养父母。该项目旨在增加对产前接触酒精的儿童的早期和准确诊断，并促进对患有胎儿酒精综合症及其相关疾病的儿童的适当治疗和持续管理。 第一阶段顺利通过了可行性技术和评价测试，远远超出了最初设想的交付成果。第一阶段制作了一个商业质量的光盘，重点是帮助非专业护理提供者认识问题和寻求诊断。在一项随机对照田间试验中对该光盘进行了检查，发现与对照条件相比，该光盘可显著增加受试者对FAS的了解。受试者还认为该程序在有用性、对置信度的影响和可用性方面优于比较条件。该程序超过了所有可用性测量的实验假设值。质量反馈进一步支持了项目的成功。第一阶段FAS多媒体指南和评估结果有力地支持继续进行第二阶段。该项目的第二阶段将通过以下方式继续这一努力：（1）创建一个关于治疗和管理的重要新模块，（2）修订和扩展第一阶段模块，（3）加强和扩展第一阶段网站，（4）创建VMS和DVD版本，以便更广泛地分发核心材料。评价将通过以下方式进行：（1）主题专家评审，（2）最终用户焦点小组，（3）准实验性田间试验，以及（4）通过母公司协会、经销商和国家机构将I期和II期产品商业化。

DESCRIPTION (provided by applicant): Prenatal exposure to alcohol is the leading causing of birth defects in the United States. Recent studies show prevalence rates in the US may be as high as 1% of live births (Burd L, Cotsonas-Hassler, et al., 2003). This means that each year, as many as 39,000 babies are born with FAS. Many more are born with fetal alcohol effects (FAE). Early diagnosis and appropriate management has repeatedly been shown to significantly reduce the risk of secondary disabilities and increase positive outcomes (Streissguth et al. 1997). AEI is developing a set of multimedia and web components about FAS that target lay care providers, particularly foster and adoptive parents. The project seeks to increase early and accurate diagnosis of children exposed to alcohol prenatally and to facilitate appropriate treatment and ongoing management of those affected by the Fetal Alcohol Syndrome and its associated disorders. Phase I resoundingly met its technical and evaluative tests of feasibility, going well beyond the originally envisioned deliverables. Phase I produced a commercial quality CD-ROM that focused on helping lay care providers recognize problems and seek diagnosis. This CD-ROM was examined in a randomized, controlled field trial and was found to increase subject knowledge of FAS significantly more than the comparison condition. The program was also considered by subjects to be better than the comparison condition on measures of usefulness, effect on confidence, and usability. The program surpassed the experimentally postulated values for all usability measures. Qualitative feedback further supported success of the project. The Phase I FAS Multimedia Guide and the results of the evaluation strongly support continuance to Phase II. Phase II of the project will continue this effort by (1) creating a significant new module on treatment and management, (2) revising and extending the Phase I module, (3) enhancing and extending the Phase I web site, (4) creating VMS and DVD versions for wider distribution of the core materials. Evaluation will be conducted through (1) subject matter expert reviews, (2) end-user focus groups, and (3) a quasi-experimental field trial, and (4) commercializing the products from Phases I and II through parent associations, distributors, and state agencies.