CORE--DATABASE MANAGEMENT AND STATISTICS

核心——数据库管理与统计

• 批准号: 6798082
• 负责人: DAVID Alan SCHOENFELD
• 金额: $ 9.88万
• 依托单位: MASSACHUSETTS GENERAL HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-04-01 至 2009-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6798082
• 关键词: Alzheimer' s disease; biomedical facility; data collection methodology /evaluation; data management; dementia; information dissemination; mental health information system; patient /disease registry; statistical service /center; statistics /biometry

The Massachusetts ADRC established and maintains one of the oldest and most comprehensive clinical databases on AD and related dementias in the country. Its Data Management and Statistics Core was created to support the Center's mission of conducting innovative research on AD and related neurodegenerative disorders, and to sustain collaborative research efforts with other ADCs and national AD research initiatives. Its key personnel work cohesively to: Maintain the ADRC Patient Registry and Neuropathology Brain Registry to serve local ADRC and National Alzheimer's Coordinating Center (NACC) needs; Ensure a seamless transmission of clinical, laboratory and neuropathology data collected during Memory Disorders Unit (MDU) visits and autopsies to the ADRC database; Conduct accurate data entry monitored by computerized range checks and double-checking procedures; Guarantee data confidentiality in accordance with HIPAA (Health Insurance Portability and Accountability Act of 1996) and general patient privacy guidelines; Provide requested data to authorized investigators, both within the ADRC and (inter)nationally, in support of their research endeavors; Submit timely and accurate clinical and neuropathology data to the NACC; Deliver top-quality statistical consultation and execution to ADRC investigators in the various cores and affiliated research projects.

马萨诸塞州ADRC建立并维护着美国最古老、最全面的阿尔茨海默病和相关痴呆临床数据库之一。其数据管理和统计核心的创建是为了支持该中心对AD和相关神经退行性疾病进行创新研究的使命，并维持与其他adc和国家AD研究计划的合作研究努力。其主要人员齐心协力地工作：