Development & user-testing of a communication intervention decision-making support tool for non-specialist SLTs working with people with Alzheimer's

发展

• 批准号: 2715816
• 金额: --
• 依托单位: University College London
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2715816
• 关键词: Development; user; testing; communication; intervention

There are 850,000 UK dementia cases, with Alzheimer's disease (AD) accounting for two-thirds. The cost of dementia in the UK is expected to more than double in the next 25 years (Alzheimer's Research UK). Language difficulties occur in all dementia sub-types, affecting e.g. word-finding, and understanding others. Worsening language difficulties correlate with increased problem behaviours. People with AD experience declining ability to communicate thoughts and needs, and increasing difficulties with social interaction and sustaining relationships. Communication challenges negatively affect caregivers. Speech and language therapists (SLTs) are healthcare professionals with expertise in assessing and treating language and communication disorders. Few SLTs work in specialist dementia services - most encounter people with AD within a non-specialist caseload, e.g. during acute hospital admission or within a general community therapy team. As AD diagnosis improves, non-specialist SLT services need effective ways to manage referrals, determining which people with AD would benefit from what communication intervention at what time point. The project's primary aim is to coproduce with stakeholders and user-test a communication intervention decision-making support tool for non-specialist SLTs treating AD. It applies research methods in linguistics to healthcare to tackle the neglected communication-related social and psychological impacts of AD. It addresses the ESRC's priority areas of mental health and innovation in healthcare, specifically the challenges of SLT service delivery in dementia, with implications for service-user/carer relationships and quality-of-life. This is a four stage project. Stage 1 involves a scoping review of communication interventions in AD. Stage 2 seeks to understand the experiences, practice and needs of non-dementia specialist SLTs through thematic analysis of focus groups. Stage 3 comprises stakeholder workshops to coproduce a communication intervention decision-making support tool, using experience-based co-design and consensus methodologies. Stage 4 user-tests the tool in non-specialist SLT services to explore and address issues of change using implementation science theory.

英国有85万痴呆症病例，其中阿尔茨海默病（AD）占三分之二。在英国，痴呆症的成本预计在未来25年内将增加一倍以上（英国阿尔茨海默氏症研究）。语言困难发生在所有痴呆亚型中，影响例如单词查找和理解他人。语言困难的恶化与问题行为的增加有关。AD患者的沟通能力和需求下降，社交互动和维持关系的困难增加。沟通方面的挑战对照顾者产生负面影响。言语和语言治疗师（SLT）是在评估和治疗语言和沟通障碍方面具有专业知识的医疗保健专业人员。很少有SLT在专科痴呆症服务中工作-大多数在非专科病例中遇到AD患者，例如在急性住院期间或在一般社区治疗团队中。随着AD诊断的改善，非专业的咨询服务需要有效的方法来管理转诊，确定哪些AD患者将在什么时间点从什么沟通干预中受益。该项目的主要目的是与利益相关者共同制作和用户测试一个沟通干预决策支持工具，用于治疗AD的非专业SLT。它将语言学的研究方法应用于医疗保健领域，以解决被忽视的与传播相关的AD社会和心理影响。它解决了ESRC的精神健康和医疗保健创新的优先领域，特别是在痴呆症中提供个性化服务的挑战，以及对服务用户/护理人员关系和生活质量的影响。这是一个四阶段的项目。第一阶段是对广告传播干预的范围进行审查。第二阶段旨在通过对焦点小组进行主题分析，了解非痴呆症专科学习小组的经验、做法和需求。第三阶段包括利益攸关方讲习班，利用基于经验的共同设计和共识方法，共同制作一个交流干预决策支持工具。第四阶段，在非专业的信息技术服务中对该工具进行用户测试，以利用实施科学理论探索和解决变革问题。