Exploring the experiences of 'lived ' involved in applied mental health services research: a peer-led study investigating an eme

患者和公众参与（PPI）是许多健康研究资助者的强制性要求。可以理解的是，患者、护理人员和公众可以帮助提高研究质量、相关性，并使其对核心人员更加平等和合乎道德。然而，我们目前没有结构、流程和组织规范来确保其最佳运作。此外，缺乏对从事研究工作的人的经验的研究，部分原因是他们有相关的精神痛苦/神经多样性的生活经验，可以带到项目中，同时也支持通过PPI参与这些知识。在心理健康/应用健康研究的背景下，这些“新兴劳动力”的经历对于进一步理解很重要，因为这些工人拥有“双重身份”，一个介于两者之间或“有限”的空间，不适合研究人员、临床医生或专业工作角色。作为一名从事健康研究的自闭症心理健康服务用户，我将利用我作为PPI协调员的精神痛苦、服务使用和残疾的生活经验，利用我的独特地位，从同行研究员的角度进行研究，以便从经验的角度揭示参与协调员/工作人员所面临的挑战、障碍和促进因素，从而帮助改善PPI实践，建设能力，并通过影响研究中的政策和实践来优化对这一“新兴劳动力”的支持。

Patient and Public Involvement (PPI) is mandatory for many health research funders[1]. It is understood that patients, carers, and the public can help improve research quality, relevance, and make it more equal and ethical to those at its heart[2]. However, we do not currently have the structures, processes, and organizational norms to ensure its optimal functioning. Furthermore, there is a lack of research into the experiences of people working in research in part due to having relevant lived experience of mental distress/neurodiversity to bring to projects, whilst also supporting the involvement of this very knowledge through PPI. The experiences of this 'emerging workforce' within the context of mental health/applied health research is important to understand further as these workers hold a 'dual identity', an in-between or 'liminal' space, that does not fit into researcher, clinician or professional work roles. As an autistic mental health service user working in health research using my lived experience of mental distress, service use and disability as a PPI co-ordinator, I will use my unique position to undertake research from a peer researcher perspective in order to bring to light thechallenges, barriers, and facilitators faced by involvement co-ordinators/staff working from an experiential lens,thereby helping to improve PPI practices, build capacity, and optimize the support for this 'emerging workforce' byinfluencing policies and practice within research.