Exploring Neurological Effects and Life Experiences of Language Deprivation in the Deaf Community of the Dominican Republic

探索多米尼加共和国聋人社区语言剥夺的神经影响和生活经历

• 批准号: 10002337
• 负责人: TIMOTHY De Ver DYE
• 金额: $ 17.6万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-01 至 2022-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10002337
• 关键词: Active Learning; Acute; Adult; Asthma; Auditory; Caribbean region; Child; Childhood; Cognitive; Collaborations; Communities; Country; Development; Diabetes Mellitus; Dominican; Dominican Republic; Education; Employment; Family; Family member; Foundations; Friends; Funding; Goals; Health; Healthcare; Hearing; Human Development; Human Resources; Income; Infrastructure; Institution; International; Intervention; Language; Language Development; Latin America; Left; Life Experience; Linguistics; Logistics; Medical; Medical center; Mental Depression; Mental Health; Methods; Modeling; Neurologic Effect; Outcome; Pattern; Personal Satisfaction; Pilot Projects; Population; Prevalence; Procedures; Psyche structure; Research; Risk; Running; Schools; Services; Sign Language; Surveys; Sustainable Development; Technology; Television; Testing; Theoretical model; Time; USAID; Unemployment; United States National Institutes of Health; Universities; Visual; base; community organizations; critical period; deaf; deprivation; disability; early childhood; elementary school; ethnographic method; experience; fifth grade; fourth grade; global health; hearing impairment; instrument; interest; literacy; low and middle-income countries; physical conditioning; programs; social; social determinants; social health determinants; years lived with disability

This Deaf-led proposal aims to better understand salient concepts and patterns of language deprivation in Deaf communities of the Dominican Republic (DR), generating research capacity and strengthening partnerships using Popular Education principles and community collaboration around the conduct of a participatory qualitative study. The interference of acquiring language is the greatest threat to the long- term health and well-being of deaf children. “Language deprivation” is the experience of inconsistently accessible language exposure during the critical period of language acquisition – a time-sensitive neurodevelopmental period for establishing a first language foundation. Not having a complete first language foundation before the critical period “window” closes is associated with permanent atypical neurostructural changes in deaf people and may be associated with poor education, health, and employment outcomes seen in the deaf population. Hearing loss is the fourth leading cause of Years Lived with Disability (YLD) worldwide, and is particularly acute in Latin America and the Caribbean. This project proposes to expands two existing partnerships - one long-term existing NIH-funded research partnership between the University of Rochester (UR) and Pontifica Universidad Catolica Madre y Maestra (PUCMM), and another existing USAID- funded partnership between Discovering Deaf Worlds (DDW; an international deaf NGO based in Rochester) and the Asociación Nacional de Sordos de la República Dominicana (ANSORDO; National Association of the Deaf of the Dominican Republic). Little is known about the manifestations and experiences of language deprivation in the DR’s deaf population and strong but heretofore separate existing partnerships can be merged to create a new emphasis and experiential learning on the topic. As such, our aims are to: 1) Investigate and document the health concerns and needs of the DR’s Deaf communities, with particular focus on early childhood language experiences, perceived consequences, and the identification of language dynamics and engagement of Deaf populations; 2) Generate and expand capacity to conduct community- engaged research with Deaf Dominicans, and 3) Grow and strengthen a collaborative research focus on global deaf health and language deprivation between US and Dominican academic institutions and deaf community organizations. The project is guided by principles and methods the involved bi/tri/quadrilingual (ASL/ DSL/ English/ Spanish) teams have already demonstrated, and the project is centered around a model of capacity building and partnership strengthening implemented by the partners in completing a pilot study to develop logistics, instruments, procedures, and personnel for this project.

这一由聋人主导的提案旨在更好地理解语言剥夺的突出概念和模式， 多米尼加共和国聋人社区，培养研究能力并加强 利用大众教育原则和社区合作， 参与性质性研究。语言习得的干扰是对长期学习者的最大威胁。 聋儿的长期健康和福祉。“语言剥夺”是指 在语言习得的关键时期接触无障碍语言-一个时间敏感的 建立第一语言基础的神经发育期。没有完整的第一次 关键期“窗口”关闭前的语言基础与永久性非典型性有关 神经结构的变化，并可能与穷人的教育，健康， 在聋人群体中看到的就业结果。听力损失是第四大主要原因 残疾人生活在世界各地，在拉丁美洲和加勒比地区尤为严重。这 该项目建议扩大两个现有的伙伴关系-一个长期现有的NIH资助的研究 罗切斯特大学（UR）和Pontifica天主教大学之间的伙伴关系 Maestra（PUCMM）和另一个由美国国际开发署资助的发现聋人世界的现有合作伙伴关系 (DDW设在罗切斯特的一个国际聋人非政府组织）和 多米尼加共和国全国聋人协会。之甚少 了解DR聋人中语言剥夺的表现和经历， 强有力但迄今为止相互独立的现有伙伴关系可以合并，以建立一个新的重点， 体验学习的主题。因此，我们的目标是：1）调查和记录健康状况 DR聋人社区的关注和需求，特别关注幼儿语言 经验，感知的后果，以及语言动态和参与的识别 聋人群体; 2）产生和扩大能力，与聋人进行社区参与的研究 多米尼加人，以及3）发展和加强全球聋人健康的合作研究， 美国和多米尼加学术机构与聋人社区之间的语言剥夺 组织的该项目的指导原则和方法涉及的双/三/四语言（ASL/ DSL/ 英语/西班牙语）团队已经展示了，该项目围绕着一个模型， 合作伙伴在完成一项试点研究过程中开展的能力建设和加强伙伴关系工作 为该项目开发后勤、仪器、程序和人员。