Ten-year Follow-up: Women's Experiences Living with HIV

十年追踪：女性艾滋病毒感染者的经历

• 批准号: 6938448
• 负责人: DONNA B BARNES
• 金额: $ 10.08万
• 依托单位: CALIFORNIA STATE UNIVERSITY HAYWARD
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-06-01 至 2009-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6938448
• 关键词: HIV infections; behavioral /social science research tag; child rearing; choice; clinical research; experience; family planning; female; human subject; interview; longitudinal human study; quality of life; reproduction; women' s health

In 1996 highly active antiretroviral therapy (HAART) became available decreasing mortality for people with HIV/AIDS, but with long-term health concerns for women and reproduction. Understanding HIV positive women's reproductive choices and mothering experiences, particularly for long time survivors, is imperative in order to address issues of retention in medical and social service treatments. This follow up study will investigate the reproductive, mothering and living experiences of 60 HIV positive women ten years after their participation in a study of their reproductive decisions. The study will examine what relationships and medical and social contexts influence women's reproduction and mothering experiences and what shapes change over the ten-year period. The study will investigate in what ways providers' care and counseling over the past ten years influence and continue to influence women's reproductive, mothering and life choices. Face -to-face, two-hour interviews of HIV positive women from Oakland, California (n=30) and Rochester, New York (n=30) will be conducted. Recruiters from the original medical and social service agencies will re-contact and recruit the sample. Data will be analyzed using grounded theory and domain analysis qualitative methods. Information of women's issues and concerns of living with HIV/AIDS will identify what kinds of cultural notions, and medical and social interventions support or undermine women's reproductive, mothering and long-term living with HIV/AIDS. Knowledge pertaining to HIV positive women's quality of life, particularly for longtime survivors will inform and enhance current medical and social services and counseling techniques for women with HIV. The findings will have policy implications for implementing innovated family, community based medical services and social programs to promote optimal support and treatment for and enhance retention of HIV positive women and their children in health care.

1996 年，高效抗逆转录病毒疗法 (HAART) 投入使用，降低了艾滋病毒/艾滋病患者的死亡率，但对妇女和生殖健康产生了长期影响。为了解决医疗和社会服务治疗中的保留问题，必须了解艾滋病毒阳性妇女的生殖选择和养育经历，尤其是长期幸存者。这项后续研究将调查 60 名艾滋病毒阳性女性在参与生育决定研究十年后的生育、母性和生活经历。该研究将探讨哪些关系、医疗和社会环境影响女性的生育和养育经历，以及十年期间发生了什么变化。该研究将调查过去十年提供者的护理和咨询以何种方式影响并继续影响女性的生殖、母性和生活选择。对来自以下国家的艾滋病毒阳性女性进行两小时面对面访谈 加利福尼亚州奥克兰 (n=30) 和纽约州罗切斯特 (n=30) 将进行。原医疗和社会服务机构的招募人员将重新联系并招募样本。将使用扎根理论和领域分析定性方法对数据进行分析。有关妇女问题和感染艾滋病毒/艾滋病的关切的信息将确定哪些类型的文化 观念、医疗和社会干预措施支持或损害妇女的生殖、母性和艾滋病毒/艾滋病的长期生活。有关艾滋病毒阳性妇女（特别是长期幸存者）的生活质量的知识将为艾滋病毒感染妇女提供信息并加强当前的医疗和社会服务以及咨询技术。研究结果将对实施创新的家庭、社区医疗服务和社会计划产生政策影响，以促进对艾滋病毒阳性妇女及其子女的最佳支持和治疗，并提高他们继续接受医疗保健的机会。