Ten-year Follow-up: Women's Experiences Living with HIV

十年追踪：女性艾滋病毒感染者的经历

• 批准号: 7312164
• 负责人: DONNA B BARNES
• 金额: $ 9.42万
• 依托单位: CALIFORNIA STATE UNIVERSITY HAYWARD
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/7312164
• 关键词: HIV infections; behavioral /social science research tag; child rearing; choice; clinical research; experience; family planning; female; human subject; interview; longitudinal human study; quality of life; reproduction; women' s health

In 1996 highly active antiretroviral therapy (HAART) became available decreasing mortality for people with HIV/AIDS, but with long-term health concerns for women and reproduction. Understanding HIV positive women's reproductive choices and mothering experiences, particularly for long time survivors, is imperative in order to address issues of retention in medical and social service treatments. This follow up study will investigate the reproductive, mothering and living experiences of 60 HIV positive women ten years after their participation in a study of their reproductive decisions. The study will examine what relationships and medical and social contexts influence women's reproduction and mothering experiences and what shapes change over the ten-year period. The study will investigate in what ways providers' care and counseling over the past ten years influence and continue to influence women's reproductive, mothering and life choices. Face -to-face, two-hour interviews of HIV positive women from Oakland, California (n=30) and Rochester, New York (n=30) will be conducted. Recruiters from the original medical and social service agencies will re-contact and recruit the sample. Data will be analyzed using grounded theory and domain analysis qualitative methods. Information of women's issues and concerns of living with HIV/AIDS will identify what kinds of cultural notions, and medical and social interventions support or undermine women's reproductive, mothering and long-term living with HIV/AIDS. Knowledge pertaining to HIV positive women's quality of life, particularly for longtime survivors will inform and enhance current medical and social services and counseling techniques for women with HIV. The findings will have policy implications for implementing innovated family, community based medical services and social programs to promote optimal support and treatment for and enhance retention of HIV positive women and their children in health care.

1996年，出现了高效抗逆转录病毒疗法，降低了艾滋病毒/艾滋病患者的死亡率，但对妇女和生殖健康造成了长期的关切。了解艾滋病毒抗体阳性妇女的生殖选择和育儿经历，特别是长期幸存者的生育选择和育儿经历，对于解决医疗和社会服务治疗的保留问题至关重要。本追踪研究将调查60名HIV阳性妇女在参加生育决策研究十年后的生育、育儿和生活经历。这项研究将探讨什么样的关系和医疗和社会背景影响妇女的生育和育儿经验，以及在十年期间发生了什么样的变化。这项研究将调查过去十年来提供者的护理和咨询以何种方式影响并继续影响妇女的生育、育儿和生活选择。对艾滋病毒呈阳性的妇女进行了两个小时的面对面访谈， 将在加州奥克兰（n=30）和纽约罗切斯特（n=30）进行研究。原医疗和社会服务机构的招聘人员将重新联系并招聘样本。数据将使用扎根理论和领域分析定性方法进行分析。关于妇女问题和感染艾滋病毒/艾滋病的关切的信息将确定哪些文化 传统观念以及医疗和社会干预措施支持或损害妇女的生殖、育儿和长期感染艾滋病毒/艾滋病的能力。有关艾滋病毒阳性妇女生活质量的知识，特别是对长期幸存者的知识，将为艾滋病毒感染妇女提供信息，并加强目前的医疗和社会服务以及咨询技术。研究结果将对实施创新的家庭、社区医疗服务和社会方案产生政策影响，以促进对艾滋病毒阳性妇女及其子女的最佳支持和治疗，并提高其在卫生保健中的保留率。