Patient and family participation in hospice team meeting

患者和家属参加临终关怀团队会议

• 批准号: 7074959
• 负责人: Debra Parker Oliver
• 金额: $ 13.97万
• 依托单位: UNIVERSITY OF MISSOURI-COLUMBIA
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-05-03 至 2008-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7074959
• 关键词: caregivers; clinical research; communication; family; hospices; neoplasm /cancer; pain; quality of life

DESCRIPTION (provided by applicant): In congruence with the NCI challenge goal to eliminate suffering due to cancer, and its public health mission related to patient care, this proposal seeks to test a new intervention which will improve the quality of care at the end of life and quality of life for dying cancer patients and family. This project proposes to strengthen hospice care for cancer patients by enabling patient/family participation in hospice interdisciplinary teams (IDTs) through use of a commercially available videophone. The overall purpose of this exploratory project is to test an intervention to improve end of life care by involving cancer patients and family caregivers in hospice IDT meetings. The hypothesis is that the active participation of cancer patients and their primary family caregiver in the hospice IDT meeting will improve communication, pain management and quality of life. The exploratory study will allow for testing of the intervention logistics, identifying sampling and recruitment issues, assessing the qualitative methodology, and testing of specific instruments. The study aims to:1) use observation and interviews to explore communication between the team and patient/family, 2) test measures to assess changes in pain and symptom management, and 3) test measures to assess changes in quality of life. The theoretical model developed by Saltz and Schaefer advocate the assessment of the IDT context, process, structure, and outcomes as a foundation for involving patients and families in the IDT. This exploratory intervention uses a quasi-experimental design in a sequential two-phase mixed methods approach involving qualitative and quantitative methods in parallel and equal status. The qualitative design includes observations of team meetings and interviews with family members. The quantitative component uses previously used instruments to measure the outcomes of participation in IDT meetings. Phase I involves the observation and measurement of hospice cancer patients who are not involved in the IDT meeting to serve as a comparison group. Phase II introduces the videophone as a tool to support patient and family involvement in the IDT meeting. The results of this study will provide preliminary data for a larger multi-phase, multi-site follow-up project.

描述（由申请人提供）：与NCI消除癌症痛苦的挑战目标及其与患者护理相关的公共卫生使命一致，本提案旨在测试一种新的干预措施，该干预措施将改善临终时的护理质量和临终癌症患者及其家人的生活质量。本项目旨在通过使用商用可视电话，使患者/家属能够参与临终关怀跨学科团队（IDT），从而加强对癌症患者的临终关怀。这个探索性项目的总体目的是测试一种干预措施，通过让癌症患者和家庭护理人员参加临终关怀IDT会议来改善临终关怀。假设癌症患者和他们的主要家庭照顾者积极参与临终关怀IDT会议将改善沟通，疼痛管理和生活质量。探索性研究将允许对干预后勤进行测试，确定抽样和招募问题，评估定性方法，并测试特定工具。该研究旨在：1）使用观察和访谈来探索团队与患者/家属之间的沟通，2）测试措施来评估疼痛和症状管理的变化，3）测试措施来评估生活质量的变化。Saltz和Schaefer开发的理论模型主张对IDT背景、过程、结构和结果进行评估，作为让患者和家属参与IDT的基础。这种探索性干预采用准实验设计，采用连续两阶段混合方法，包括平行和平等地位的定性和定量方法。定性设计包括观察团队会议和家庭成员访谈。定量部分使用以前使用的工具来衡量参加IDT会议的成果。第一阶段是对没有参加IDT会议的临终关怀癌症患者进行观察和测量，作为对照组。第二阶段引入可视电话作为支持患者和家属参与IDT会议的工具。本研究的结果将为更大规模的多阶段、多中心随访项目提供初步数据。