Young People's Experiences of Living with Chronic Pain and its Impact on Social Connectedness with Peers

年轻人的慢性疼痛经历及其对同龄人社会联系的影响

• 批准号: 2885897
• 金额: --
• 依托单位: University of Leeds
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2885897
• 关键词: Young; People; Experiences; Living; Chronic

Aim: To explore and describe young peoples' experiences of living with chronic pain and its impact on social connectedness with peers.Design and methods: Participants are eligible if aged between 11-18 years, able to speak and understand English, and diagnosed with chronic pain. Participants will be recruited via the chronic pain clinic of Leeds Children's Hospital. I will go into clinic and speak directly to young people, but if this is not possible, clinicians have offered assistance with recruiting participants.Work package 1 (WP1): WP1 is a mixed-methods systematic review answering the question: What do young people aged 11-18 say about the impact of chronic pain on their social connectedness with peers. Results will be filtered via inclusion and exclusion criteria based on my participant demographics. I will carry out a meta-statistical analysis of quantitative results and thematic analysis of qualitative results, combining the findings to inform the following work packages. The results of the mixed-methods systematic review will give a sense of the topic within contemporary literature and what young people have already voiced in research. This will inform the other work packages by establishing existing themes and statistics relevant to both my qualitative project and survey.Work package 2 (WP2): WP2 consists of qualitative interviews to explore young people's experiences of social connectedness with peers. Interviews will be online or in person. Participants will be asked to provide images which they feel represent their experiences of chronic pain and social life with peers. They can be provided with optional prompts to assist with this task. They will be invited to describe and group these images. This method is based on the success of photo-elicitation and image sorting in health research. Interviews will be recorded, transcribed and anonymised. Interpretative Phenomenological Analysis will be carried out on these transcripts.Work package 3 (WP3): WP3 will consist of a mixed-methods survey to understand how a larger sample of young people experience chronic pain and social connectedness with peers. PPIE members will be involved in the design of the survey by influencing what should be asked and how. They will review and complete the survey themselves before distribution. Clinicians from the chronic pain clinic confirmed they would be happy to distribute the survey, and would find the results valuable. The survey will produce a combination of quantitative and qualitative data which can be taken back to the main themes from WP2 and compared in order to give a holistic understanding of both detailed experiences and significant factors of social connectedness in school for participants. PPIE: Potential collaborators have been identified and involved from the early stages of the project design, and will be involved throughout. This includes clinicians from the Leeds Children's Hospital chronic pain services and a young person with chronic pain who will act as PPIE advisor. The PPIE advisor has read the proposal and had input in the design of the work packages, as well as highlighting what outcomes may be most beneficial. A PPIE panel will be established and will influence various stages of the project, including designing the qualitative focus groups, carrying out participatory analysis, designing the survey, assisting in analysis and reviewing the results. Outcomes: I will produce a set of recommendations based on the results of all three work packages. These can be provided to teachers and clinicians to facilitate ways of understanding and improving social connectedness for young people with chronic pain. By establishing the challenges and significant elements of social connectedness for young people with chronic pain, results from the project will form the starting point for an intervention or support package that can be used in schools with a view to producing applicable means of improving social connectedness

目的：探讨和描述患有慢性疼痛的年轻人的生活经历及其对同龄人社会联系的影响。设计和方法：参与者年龄在11-18岁之间，能够说并理解英语，并且被诊断患有慢性疼痛。参与者将通过利兹儿童医院的慢性疼痛诊所招募。我将进入诊所，直接与年轻人交谈，但如果这是不可能的，临床医生提供帮助，以招募参与者。工作包1 (WP1): WP1是一项混合方法的系统综述，回答了以下问题：11-18岁的年轻人对慢性疼痛对他们与同龄人的社会联系的影响有何看法。结果将根据我的参与者人口统计数据通过纳入和排除标准进行过滤。我将对定量结果进行元统计分析，对定性结果进行专题分析，并结合研究结果为以下工作包提供信息。混合方法系统综述的结果将在当代文学和年轻人已经在研究中表达的话题中给出一个感觉。这将通过建立与我的定性项目和调查相关的现有主题和统计数据，为其他工作包提供信息。工作包2 (WP2): WP2包括定性访谈，以探索年轻人与同龄人的社会联系经验。面试将进行在线或面对面的面试。参与者将被要求提供他们认为代表他们慢性疼痛经历和与同龄人社交生活的图像。可以为它们提供可选的提示，以协助完成此任务。他们将被邀请描述和分组这些图像。这种方法是基于在健康研究中成功的图像激发和图像分类。采访将被记录、转录和匿名。解释性现象学分析将在这些文本上进行。工作包3 (WP3): WP3将包括一项混合方法调查，以了解更大样本的年轻人如何经历慢性疼痛和与同龄人的社会联系。公共政策研究所的成员将通过影响应该问什么和如何问来参与调查的设计。他们将在分发之前自行审查并完成调查。来自慢性疼痛诊所的临床医生证实，他们很乐意分发这份调查，并认为调查结果很有价值。该调查将产生定量和定性数据的结合，这些数据可以追溯到WP2的主要主题，并进行比较，以便对参与者在学校的社会联系的详细经历和重要因素有一个全面的了解。PPIE：从项目设计的早期阶段就已经确定并参与了潜在的合作者，并将自始至终参与其中。这包括来自利兹儿童医院慢性疼痛服务的临床医生和一名患有慢性疼痛的年轻人，他们将担任PPIE顾问。PPIE顾问已经阅读了提案，并对工作包的设计进行了输入，并强调了哪些结果可能是最有益的。将设立一个政策评估小组，影响项目的各个阶段，包括设计定性焦点小组、进行参与性分析、设计调查、协助分析和审查结果。成果：我将根据所有三个工作包的结果提出一组建议。这些可以提供给教师和临床医生，以促进理解和改善患有慢性疼痛的年轻人的社会联系。通过为患有慢性疼痛的年轻人建立社会联系的挑战和重要因素，项目的结果将形成干预或支持一揽子计划的起点，这些计划可以在学校中使用，以产生改善社会联系的适用方法