Admin Core and other aspects

行政核心将负责以下工作的规划、发展、协调和整体管理 以便利用翻译研究机会更好地理解和处理 硬皮病。主任将是Frank C.Arnett医学博士和副主任Maureen D.Mayes医学博士， 时速。一个科学咨询委员会，包括两名外部顾问、两名内部顾问和一名非执行董事 顾问将每年举行会议，并在必要时审查进展情况，并向领导层和调查人员提供建议。 一名信息学家将帮助设计CORT领导层，并为其提供最有效和最有效的建议 生物信息学系统。 行政核心的一项关键职能是确保每个项目实现其具体目标 并将新的科学发现通知其他项目。 与此同时，将通过以下途径吸引新的想法和方法以及更多的调查人员 试点和可行性研究的可用性。 该中心将负责征集、评审和评选最具科学功绩的飞行员 以及二年级和三年级的可行性研究。 该核心还将继续促进互动、信息和资源共享以及 与硬皮病登记和DNA储存库(由Mayes博士指导)的科学合作 世卫组织也是CORT的副主任)，以及其他调查人员和研究项目 在这个机构和其他机构正在进行。 提出了一项数据共享计划和一项适度的丰富计划。

The Administrative Core will conduct the planning, development, coordination and overall administration of this CORT so as to exploit translational research opportunities for the better understanding and treatment of scleroderma. The Director will be Frank C. Arnett, MD and the Associate Director, Maureen D. Mayes, MD, MPH. A Scientific Advisory Committee including two External Advisors, two Internal Advisors, and a Lay Advisor will meet yearly and as necessary to review progress and to advise the leadership and investigators. An informaticist will help design and advise the CORT leadership on the most efficient and effective bioinformatics systems. A key function of the Administrative Core will be to guarantee that each project pursues its specific aims and informs the other projects of new scientific findings. At the same time, novel ideas and approaches, as well as additional investigators, will be attracted through the availability of Pilot and Feasibility Studies. This Core will be responsible for solicting, reviewing and selecing the most scientifically meritorious Pilot and Feasibility Studies in years 2 and 3. This Core also will continue to promote interactions, the sharing of information and resources, as well as scientific collaboration with the Scleroderma Registry and DNA Repository (which is directed by Dr. Mayes who also is Associate Director of the CORT), as well as with other investigators and research projects ongoing at this and other institutions. A Data Sharing Plan is proposed as well as a modest Enrichment Program.