Patients' and families' home care service priorities

患者和家属的家庭护理服务优先事项

• 批准号: 7250234
• 负责人: DAVID J CASARETT
• 金额: $ 36.98万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-08-01 至 2009-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7250234
• 关键词: Advanced Malignant Neoplasm; Caring; Disease; Emotional; Enrollment; Family; Goals; Home Care Services; Hospice Care; Malignant Neoplasms; Methods; Palliative Care; Patients; Services; Subgroup; Supportive care; Symptoms; cancer therapy; care preference; design; hospice environment; interest; patient home care; preference; programs; psychologic

DESCRIPTION (provided by applicant): Patients with cancer and their families have substantial needs for care, including needs for symptom control, spiritual support, emotional and psychological support, and practical assistance. For patients with advanced cancer whose goals focus exclusively on comfort care, hospice offers a widely utilized mechanism for meeting these needs. However, hospice is not an option for patients as long as they continue to pursue disease-modifying cancer treatment. Instead, patients with cancer typically enroll in hospice very late in the course of illness. These patients, and their families, benefit from hospice services only briefly. For this reason, there is rapidly growing interest in supportive home care programs as an "upstream" alternative to hospice for patients who are still seeking disease-modifying treatment. These programs are designed to meet the supportive care needs of patients with cancer and their families before they are eligible to enroll in hospice. These programs offer a promising mechanism for providing supportive care earlier in the illness course. However, it is not known what program services are most important to patients and their families. Nor is it known whether subgroups of patients and families share distinct needs for care and preferences for treatment and may thus prefer unique combinations of services. It is essential to define patients' and families' preferences about supportive home care services in order to design programs that optimally meet patients' and families' needs. The goal of this Project is to define the supportive home care services that are most valuable to patients with cancer and their families and to define subgroups of patients and families with unique priorities.

描述(申请人提供)：癌症患者及其家人有大量的护理需求，包括症状控制、精神支持、情感和心理支持以及实际援助的需求。对于目标完全集中在舒适护理的晚期癌症患者，临终关怀提供了一种广泛使用的机制来满足这些需求。然而，只要患者继续寻求改善疾病的癌症治疗，临终关怀就不是一个选择。相反，癌症患者通常在病程很晚的时候才进入临终关怀中心。这些患者及其家人只能短暂地从临终关怀服务中受益。出于这个原因，人们对支持性家庭护理计划的兴趣迅速增长，将其作为临终关怀的“上游”替代方案，供仍在寻求疾病修正治疗的患者使用。这些计划旨在满足癌症患者及其家人在有资格进入临终关怀之前的支持性护理需求。这些方案为在疾病病程早期提供支持性护理提供了一种有希望的机制。然而，目前尚不清楚哪些项目服务对患者及其家人最重要。也不知道患者和家庭的亚群是否有不同的护理需求和治疗偏好，因此可能更喜欢独特的服务组合。确定患者和家庭对支持性家庭护理服务的偏好是至关重要的，以便设计出最佳地满足患者和家庭需求的方案。该项目的目标是确定对癌症患者及其家人最有价值的支持性家庭护理服务，并确定具有独特优先事项的患者和家庭的亚群。

项目成果

How should we design supportive cancer care? The patient's perspective.

我们应该如何设计支持性癌症护理？

• DOI: 10.1200/jco.2007.12.8371
• 发表时间: 2008
• 期刊: Journal of clinical oncology : official journal of the American Society of Clinical Oncology
• 作者: Casarett,David;Fishman,Jessica;O'Dwyer,PeterJ;Barg,FrancesK;Naylor,Mary;Asch,DavidA
• 通讯作者: Asch,DavidA

Do Phase 1 Patients Have Greater Needs for Palliative Care Compared With Other Cancer Patients?

• DOI: 10.1002/cncr.24025
• 发表时间: 2009-01-15
• 期刊: CANCER
• 影响因子: 6.2
• 作者: Finlay, Esme;Lu, Hien L.;Casarett, David J.
• 通讯作者: Casarett, David J.