Breast and Prostate Cancer Data Quality and Patterns of Care Study in NC

背景：癌症登记处传统上依赖医院数据来评估特定部位的癌症 人群中的发病率。在过去的几年里，疾控中心帮助扩大了登记处的作用，以提供 关于癌症护理模式的关键信息。因此，登记处数据具有巨大的研究潜力。 人口中癌症护理的趋势以及护理的模式和获得护理的差距 少数群体和得不到充分服务的弱势群体的结果。有了诊断和 许多癌症的管理从传统的医院环境转移到门诊环境，更多 来自医生办公室和其他非医院的完整诊断、治疗和随访信息 设置是必需的。我们发现，低数据质量的实例不是随机模式的，因此 可以以已知的精确度进行统计预测。在此基础上，开展定向审计是可行的 达到或超过数据质量计划阈值的协议(TAP)。 目标：这个为期3年的项目旨在提高项目的完备性、及时性、质量和利用率 北卡罗来纳州登记处最近的第一疗程和阶段数据；并描述护理模式 在随机抽取的600例白人和非白人女性乳腺癌病例中，L-11期 (n=1,200)和600例白人和非白人前列腺癌患者，所有阶段(N=1,200)包含在 NC注册在最近两个诊断年可用这项工作建立在过去合作的基础上 维克森林大学和北卡罗来纳州中央癌症登记中心(NC CCR)在模式方面的工作 癌症护理。在我们拟议的工作中，我们计划实施有效的数据质量评估策略和 改善和评估乳腺癌和前列腺癌的总癌症类型 样本，按种族/族裔群体，以及贫困的标志。具体地说，在这三年的研究中，我们将： 1)测试针对登记处数据的目标审计协议(TAP)的效率和效力，以改进 登记册数据的总体质量。 2)评估NC CCR收集的分期和第一疗程的质量、完整性 电子编辑和专业病历重新摘要。 3)说明#年接受标准护理的女性乳腺癌报告病例的百分比 北卡罗来纳州。 4)描述北卡罗来纳州前列腺癌的护理模式，考虑到患者(距离 放射设施、年龄、种族、疾病状况，如分期/级别/血清标志物、城市/农村邮政编码)和 系统或设施级别变量(程序量、挂号医院、提供者类型)。 5)参与聚合数据分析，遵循协同PoC组通用协议。

Background: Cancer registries traditionally have relied upon hospital data to estimate site-specific cancer incidence in a population. In the last few years, the CDC has helped expand the role of registries to provide key information on patterns of cancer care. As a result, registry data have great potential for research on trends of cancer care in the population as well as patterns of care and disparities in care access and outcomes of vulnerable groups such as minorities and the underserved. With the diagnosis and management of many cancers shifting from the traditional hospital setting to the ambulatory setting, more complete diagnostic, treatment, and follow-up information from physician offices and other non-hospital settings is required. We have found that instances of low data quality are not randomly patterned, and thus can be statistically predicted with known accuracy. On this basis it is feasible to develop targeted audit protocols (TAP) that meet or exceed program thresholds for data quality. Objectives: This 3-year project is designed to improve the completeness, timeliness, quality and use of recent first course of treatment and stage data in the North Carolina registry; and to describe patterns of care in randomly selected samples of 600 white and nonwhite cases of female breast cancer cases stages l-lll (N=1,200) and 600 white and non-white cases with prostate cancer, all stages (N=1,200) contained in the NC registry in the two most recent diagnosis years available This work builds upon the past collaborative work of Wake Forest University and the North Carolina Central Cancer Registry (NC CCR) on patterns of cancer care. In our proposed work, we plan to implement efficient strategies for data quality assessment and improvement, and assessment of patterns of cancer for breast cancer and prostate cancers within the total sample, by race/ethnicity groups, and by markers for poverty. Specifically, in this three year study we would: 1) Test the efficiency and effectiveness of a targeted audit protocol (TAP) for registry data to improve the overall quality of registry data. 2) Assess the quality, completeness of staging and first course of treatment collected by the NC CCRby electronic edits and professional case record re-abstraction. 3) Describe the percentage of reported cases with female breast cancer that receive standard of care in North Carolina. 4) Describe the patterns of care with prostate cancer in North Carolina, considering patient (distance to radiation facility, age, race, disease status such as stage/grade/serum markers, urban/rural zip code) and system, or facility level variables (procedure volume, registry hospital, provider type). 5) Participate in the analysis of aggregate data and follow common protocols of the collaborative PoC group.