Breast and Prostate Cancer Data Quality and Patterns of Care Study in NC

背景：癌症登记传统上依赖于医院数据来估计特定部位的癌症 在人群中的发病率。在过去的几年里，疾病预防控制中心帮助扩大了登记处的作用， 癌症护理模式的关键信息。因此，登记册数据具有研究以下方面的巨大潜力： 人口中癌症护理的趋势以及护理模式和护理机会的差异， 少数群体和得不到充分服务的群体等弱势群体的成果。随着诊断和 许多癌症的管理从传统的医院环境转移到门诊环境， 从医生办公室和其他非医院机构获得完整的诊断、治疗和随访信息 需要设置。我们已经发现，低数据质量的实例不是随机模式的，因此 可以以已知的精度进行统计预测。在此基础上开展针对性审计是可行的 满足或超过数据质量的程序阈值的TAP协议。 目标：这一为期三年的项目旨在提高《公约》的完整性、及时性、质量和使用。 北卡罗来纳州登记研究中最近的第一个疗程和分期数据;并描述护理模式 在随机选择的600例白色和非白色女性乳腺癌病例的样本中 （N= 1，200）和600例白色和非白色前列腺癌病例，所有分期（N= 1，200）均包含在 NC登记在最近两个诊断年可用这项工作建立在过去的合作 维克森林大学和北卡罗来纳州中央癌症登记处（NC CCR）对癌症模式的研究 癌症护理在我们提出的工作中，我们计划实施有效的数据质量评估策略， 改善，并评估乳腺癌和前列腺癌的癌症模式， 按种族/族裔群体和按贫困标志分列。具体而言，在这三年的研究中，我们将： 1)测试注册表数据的目标审计协议（TAP）的效率和有效性，以提高 登记册数据的总体质量。 2)评估NC CCR收集的分期和第一疗程的质量、完整性， 电子编辑和专业案件记录的重新提取。 3)请描述报告的女性乳腺癌病例中接受标准治疗的百分比， 北卡罗来纳州。 4)描述北卡罗来纳州前列腺癌的护理模式，考虑患者（距离 辐射设施、年龄、种族、疾病状态，如阶段/等级/血清标志物、城市/农村邮政编码），以及 系统或机构级变量（手术量、登记医院、提供者类型）。 5)参与汇总数据的分析，并遵循协作组的共同协议。

Background: Cancer registries traditionally have relied upon hospital data to estimate site-specific cancer incidence in a population. In the last few years, the CDC has helped expand the role of registries to provide key information on patterns of cancer care. As a result, registry data have great potential for research on trends of cancer care in the population as well as patterns of care and disparities in care access and outcomes of vulnerable groups such as minorities and the underserved. With the diagnosis and management of many cancers shifting from the traditional hospital setting to the ambulatory setting, more complete diagnostic, treatment, and follow-up information from physician offices and other non-hospital settings is required. We have found that instances of low data quality are not randomly patterned, and thus can be statistically predicted with known accuracy. On this basis it is feasible to develop targeted audit protocols (TAP) that meet or exceed program thresholds for data quality. Objectives: This 3-year project is designed to improve the completeness, timeliness, quality and use of recent first course of treatment and stage data in the North Carolina registry; and to describe patterns of care in randomly selected samples of 600 white and nonwhite cases of female breast cancer cases stages l-lll (N=1,200) and 600 white and non-white cases with prostate cancer, all stages (N=1,200) contained in the NC registry in the two most recent diagnosis years available This work builds upon the past collaborative work of Wake Forest University and the North Carolina Central Cancer Registry (NC CCR) on patterns of cancer care. In our proposed work, we plan to implement efficient strategies for data quality assessment and improvement, and assessment of patterns of cancer for breast cancer and prostate cancers within the total sample, by race/ethnicity groups, and by markers for poverty. Specifically, in this three year study we would: 1) Test the efficiency and effectiveness of a targeted audit protocol (TAP) for registry data to improve the overall quality of registry data. 2) Assess the quality, completeness of staging and first course of treatment collected by the NC CCRby electronic edits and professional case record re-abstraction. 3) Describe the percentage of reported cases with female breast cancer that receive standard of care in North Carolina. 4) Describe the patterns of care with prostate cancer in North Carolina, considering patient (distance to radiation facility, age, race, disease status such as stage/grade/serum markers, urban/rural zip code) and system, or facility level variables (procedure volume, registry hospital, provider type). 5) Participate in the analysis of aggregate data and follow common protocols of the collaborative PoC group.