Disability from Pediatric Trauma Brain Injury

基于人群的研究估计了TBI的发病率，但没有提供基于人群的后续残疾估计。这种基于人口的信息对于适当规划和向因创伤性脑损伤而残疾的儿童提供服务非常重要。 目的：（1）确定0-18岁儿童和青少年中轻度、中度和重度TBI的发生率 （2）根据不同年龄组儿童TBI的严重程度确定残疾程度; (3)确定这种残疾在受伤后如何随着时间的推移而变化;（4）确定 TBI的残疾。 研究设计：在本项目中，我们将对儿童和青少年进行基于人群的监测 关于TBI从这次监测中，我们将确定一个儿童TBI患者的样本， 并参加了这项研究。该样本将按严重程度和年龄分层，以允许足够数量的 每个严重程度和每个年龄组的个体进行研究。初始和基线测量将 获得，并将随时间推移对患者进行随访，以确定TBI的结局。 设置：受试者将在King的急诊室、医院和医学检查人员中确定 县，华盛顿，费城县，宾夕法尼亚州。 参与者：1000名0-18岁的轻度、中度或重度TBI患者。 结果测量：我们将在伤前和伤后3、12、24和36个月检查患者和家属的残疾情况 TBI后。这将包括患者的生活质量、社会、情感、行为和学业残疾， 家庭功能和养育压力。 意义：这项研究将解决许多这些悬而未决的问题，围绕儿科创伤性脑损伤。它将 提供基于人群的TBI（包括轻度、中度和重度）的发病率和残疾率 根据医疗记录和访谈数据。它将跟踪患者及其家属三年， 损伤，检查TBI后几个月恢复平台的程度。它将研究各种因素， 与损伤相互作用产生残疾，对结果产生积极或消极影响。的 研究团队代表了一个由经验丰富的研究人员组成的跨学科小组， 为今后的研究、护理和政策提供信息。

Population based studies have estimated the incidence of TBI but have not provided population-based estimates of subsequent disability. This population-based information is important for the appropriate planning and delivery of services to children disabled by TBI. Objectives: (1) Determine the incidence of mild, moderate, and severe TBI in children and adolescents 0-18 years of age; (2) Determine the disability from different severities of TBI in children of different age groups; (3) Determine how this disability changes over time after injury; (4) Identify risk and protective factors for disability from TBI. Study Design: In this project, we will conduct a population-based surveillance of children and adolescents with TBI. From this surveillance, we will identify a sample of pediatric patients with TBI who will be recruited and enrolled in the study. This sample will be stratified by severity and age to allow adequate numbers of individuals at each severity level and each age group for study. Initial and base line measurements will be obtained, and patients will be followed over time to determine outcomes from TBI. Setting: Subjects will be identified in Emergency Departments, Hospitals and Medical Examiners in King County, Washington, and Philadelphia County, Pennsylvania. Participants: 1000 patients 0-18 years of age with mild, moderate or severe TBI. Outcome Measures: We will examine patient and family disability pre-injury and at 3, 12, 24, and 36 months post-TBl. This will include quality of life, social, emotional, behavioral and academic disability in patients and family functioning and parenting stress. Implications: This study will address many of these unanswered questions surrounding pediatric TBI. It will provide population-based rates of the incidence and disability fromTBI, including mild, moderate and severe based on medical record and interview data. It will follow patients and their families for three years after injury, examining the degree to which recovery plateaus in the months following TBI. It will examine factors which interact with the injury to produce disability, be they positive or negative influences on outcomes. The study team represents an interdisciplinary group of very experienced investigators to carry out a rigorous study to provide information to inform future research, care and policy.