Web-based Support to Self-Manage Migraine Pain

描述（由申请人提供）：偏头痛是一种常见的慢性疾病，其特征是反复发作的疼痛、残疾、情绪困扰和生产力丧失，在美国影响大约18%的女性和6.5%的男性，估计有2800万美国人。偏头痛的诊断和治疗是复杂的。传统的治疗方法取得了不同程度的成功，这些方法倾向于把病人“医疗化”，使他们处于被动地位，对主动自我管理的重视有限。只有一半的偏头痛患者对目前的治疗感到满意，超过90%的人希望能够预防头痛（Wenzel等人，2004a）。有效治疗的一个关键组成部分是让患者参与自我管理，这样他们就可以学习如何识别、避免和管理头痛的触发因素，并参与其他关键的头痛管理行为。需要可获得的帮助，以促进患者教育和参与采用行为自我管理技能。互联网是帮助偏头痛患者控制头痛的绝佳工具，但现有的偏头痛网站没有提供量身定制的互动体验，许多网站只是冗长的文本页面，没有音频和有限的图形支持。有些人声称“治愈”，但提供的信息科学有效性值得怀疑。没有偏头痛网站已经被测试，看看他们在多大程度上帮助患者改善头痛管理和达到症状减轻。该提案要求开发一个名为managemy偏头痛的交互式网站，为消费者提供有关偏头痛诊断、治疗和管理的最新信息。该网站将为用户提供许多独特的互动功能，如带有定制反馈的自我评估、针对患者优先事项和问题的自我管理建议、用于跟踪个性化患者数据（触发因素、预防策略、药物使用和副作用）的互动工具，以及用于监测减少头痛频率、管理症状和参与预防工作的进展。个人数据将是可打印的，以便用户可以与他们的提供商共享。虽然量身定制的互动网站正在慢慢变得可用，但目前还没有偏头痛网站提供这种自我管理支持的组合；互动内容、功能和工具；量身定制的、个性化的信息来吸引和支持网站用户。通过为更多的人提供更及时的行为支持，可以减少偏头痛相关的残疾。对医疗和行为干预的关注，使managemy偏头痛成为偏头痛护理领域的一个重大创新进展，并有望帮助偏头痛患者更有效地管理他们的病情，避免疾病进展，并降低偏头痛对个人和社会的高成本。偏头痛是一种常见但管理不善的疾病，医学上未被认识到的偏头痛仍然是一个重要的公共卫生问题。当我们考虑到偏头痛的患病率以及与这种疾病相关的个人和社会成本时，准确识别和有效治疗偏头痛是至关重要的。非常有必要对人们进行关于偏头痛行为自我管理的教育。managemy偏头痛，将提供用户定制的交互式教育和跟踪工具，帮助患者记录和组织关键的临床数据，以帮助提供者更准确地评估偏头痛的残疾和对药物治疗的反应。该场所将作为适当医疗的心理社会辅助设施。对医疗和行为干预的关注，使managemy偏头痛成为偏头痛护理领域的一个重大创新进展，并有望帮助偏头痛患者更有效地管理他们的病情，避免疾病进展，并降低偏头痛对个人和社会的高成本。

DESCRIPTION (provided by applicant): Migraine headache is a common, chronic medical condition characterized by recurrent attacks of pain, disability, emotional distress, and loss of productivity that affects approximately 18% of women and 6.5% of men in the United States, an estimated 28 million Americans. Diagnosis and treatment of migraine is complex. Traditional treatment approaches have met with varied success, tending to "medicalize" patients, placing them in a passive role, with limited emphasis on active self-management. Only half of migraineurs are satisfied with their current care, and over 90% wish they could prevent their headaches (Wenzel et al., 2004a). A critical component of effective treatment is engaging the patient in self-management so they can learn how to identify, avoid, and manage headache triggers and engage in other critical headache management behaviors. Accessible help is needed to facilitate patient education and engagement in the adoption of behavioral self-management skills. The Internet is an excellent vehicle for helping migraineurs manage their headaches, but existing migraine Websites don't offer a tailored interactive experience and many are simply long, text-filled pages, offering no audio and limited graphical support. Some profess "cures" but offer information of questionable scientific validity. No migraine Websites have been tested to see how much they help patients improve headache management and attain symptom reduction. This proposal calls for the development of an interactive Website called ManageMyMigraine to provide up-to-date information about diagnosis, treatment, and management of migraine headache, designed for consumers. The site will engage users with many unique interactive features like self-assessments with tailored feedback, self-management recommendations that address patient priorities and problems, interactive tools for tracking individualized patient data (triggers, preventive strategies, medication usage, and side effects), and for monitoring progress in reducing headache frequency, managing symptoms, and engaging in preventive efforts. Individual data will be printable so that users can share it with their providers. While tailored interactive Websites are slowly becoming available, no migraine Website currently offers this combination of self-management support; interactive content, features, and tools; and tailored, individualized messaging to engage and support site users. Migraine related disability can be reduced by making behavioral support available in a more timely way for larger numbers of people. A focus on both medical and behavioral intervention, makes ManageMyMigraine a significantly innovative advance in migraine care, and holds the promise of helping migraineurs manage their condition more effectively, avoid disease progression, and reduce the high cost of migraine to individuals and society. Migraine headache is a common yet poorly managed illness and medically unrecognized migraine remains an important public health problem. Accurate recognition and effective treatment of migraine are critical when we consider the prevalence of migraine and the individual and societal costs associated with this disorder. There is a great need to educate the population about behavioral self-management of migraine. ManageMyMigraine, will provide user-tailored, interactive education and tracking tools for helping patients record and organize key clinical data to assist providers in more accurately assessing migraine disability and response to medical treatment. The site will serve as a psych-social adjunct to appropriate medical treatment. A focus on both medical and behavioral intervention, makes ManageMyMigraine a significantly innovative advance in migraine care, and holds the promise of helping migraineurs manage their condition more effectively, avoid disease progression, and reduce the high cost of migraine to individuals and society.