FABRY REGISTRY

本子项目是利用由NIH/NCRR资助的中心赠款提供的资源的众多研究子项目之一。子项目和研究者（PI）可能已经从另一个NIH来源获得了主要资金，因此可以在其他CRISP条目中表示。列出的机构是中心的，不一定是研究者的机构。法布里登记是一个持续的、观察性的数据库，跟踪法布里病患者的自然病史和结果。所有管理法布里病患者的医生均可参与。鼓励医生合作，分享观察结果，为评估提出假设，并协助收集临床数据，以指导和评估未来的治疗干预措施。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The Fabry Registry is an ongoing, observational database that tracks the natural history and outcomes of patients with Fabry disease. Participation is open to all physicians managing patients with Fabry disease. Physicians are encouraged to collaborate, share observations, and generate hypotheses for evaluation, as well as assist in the collection of clinical data in an effort to guide and assess future therapeutic interventions.