Parent-Child Collaborative Decision Making for the Management of Chronic Illness

描述（由申请人提供）：本职业发展奖的目的是促进米勒博士过渡到独立研究者，重点是发展研究，将告知与儿童健康相关的决策和儿童同意问题。实现这一长期目标需要综合儿科心理学、儿科伦理学和发展心理学领域的知识，并在定性分析和高级统计方面进行额外培训。米勒博士是研究诚信中心的一名儿科心理学博士后，他将通过课程、研讨会和指导研究来满足这些培训需求。米勒博士选择了一个高素质的导师和合作者团队，代表了与她的培训需求和研究计划相关的学科。米勒博士的研究计划旨在揭示与儿童如何在慢性疾病的管理中获得独立相关的问题，这通常需要每天做出一系列复杂的决定。兴趣的主要结构是亲子合作治疗决策，这被认为是独立有效地管理慢性疾病治疗方案的重要前提。研究一将利用焦点小组的方法，从慢性病患儿及其父母的角度探讨协同治疗决策的构建，并创建一个项目库来评估协同决策的相关领域。研究2将构建一个可靠的工具来测量协同治疗决策，并将建立工具的初步结构效度。研究3将检验合作治疗决策与选定的发展、心理社会和社会生态变量之间的关系。这三项研究将为未来的纵向研究奠定基础，这些研究将检验与合作治疗决策以及健康相关结果相关的发展轨迹和机制。相关性：慢性疾病影响7%至18%的儿童，并可能持续到成年或导致继发性疾病。在儿童期和青春期向更大程度上独立作出与健康有关的决定过渡与健康结果有关，并可能为成年期有效的疾病管理提供基础，使其成为经验调查的一个关键领域。

DESCRIPTION (provided by applicant): The objective of this Career Development Award is to facilitate Dr. Miller's transition to independent investigator, with an emphasis on developmental research that will inform questions related to children's health-related decision making and child assent. The achievement of this long-term goal requires integration of knowledge in the areas of pediatric psychology, pediatric ethics, and developmental psychology and additional training in qualitative analysis and advanced statistics. Dr. Miller, a postdoctoral fellow in pediatric psychology at The Center for Research Integrity, will address these training needs through coursework, seminars, and mentored research. Dr. Miller has selected a highly qualified team of mentors and collaborators, representing disciplines that are relevant to her training needs and research plan. Dr. Miller's research plan is designed to inform questions related to how children achieve independence for the management of a chronic illness, which often requires a series of complex decisions that must be made on a daily basis. The primary construct of interest is parent-child collaborative treatment decision making, which is conceptualized as an important precursor to independent and effective management of the treatment regimen for a chronic illness. Study 1 will utilize focus groups to explore the construct of collaborative treatment decision making from the perspective of children with a chronic illness and their parents and create an item pool that assesses relevant domains of collaborative decision making. Study 2 will construct a reliable instrument that measures collaborative treatment decision making and will establish the preliminary construct validity of the instrument. Study 3 will examine the associations among collaborative treatment decision making and selected developmental, psychosocial, and social-ecological variables. These three studies will lay the groundwork for future longitudinal research that examines developmental trajectories and mechanisms related to collaborative treatment decision making, as well as health-related outcomes. Relevance: Chronic illnesses affect 7% to 18% of children and may persist into adulthood or lead to secondary conditions. The transition to greater independence for health-related decisions during childhood and adolescence is relevant to health outcomes and may provide the foundation for effective disease management during adulthood, making it a critical area of empirical investigation.