Chiari Malformation: State of the Research & New Directions

简介（由申请人提供）：Chiari畸形：研究现状和新方向是一个为期两天的专业会议，将于2008年11月6日和7日在伊利诺伊州芝加哥举行。该活动将汇集该领域的顶尖医生和研究人员，以建立有关基亚利氏畸形的最新知识状况，讨论基亚利氏畸形研究的最新进展，并制定研究建议，以提高对基亚利氏畸形的认识和护理水平。为了实现这些目标，会议将由几个会议组成，包括综述报告和分组工作组会议：定义和病理生理学，症状和诊断标准，诊断和研究的工程和成像技术，治疗，儿科问题和相关条件。会议记录将发表在同行评议的医学杂志上，并通过基于网络的视频档案提供。会议活动和结果的传播将对美国约30万名基亚里患者及其家属的经历和结果产生重大而积极的影响。公共卫生相关性：基亚里畸形是一种严重的神经系统疾病，在美国有超过30万人受到影响。由于对奇亚里氏病的定义、病因、诊断和治疗的混淆，患者的经历主要是沮丧、困惑和不必要的治疗延误，成功的结果也受到过度限制。旨在评估当前知识状况并制定具体研究建议的研究会议将对患者体验和结果产生积极影响。

DESCRIPTION (provided by applicant): Chiari Malformation: State of the Research & New Directions is a two day professional conference to be held November 6th & 7th, 2008 in Chicago, Illinois. The event will bring together the top physicians and researchers in the field to establish the current state of knowledge regarding Chiari malformation, discuss recent developments in Chiari research, and develop research recommendations to advance the state of knowledge and care for Chiari malformation. To achieve these objectives, the conference will be comprised of several sessions, including review presentations and breakout working group sessions on: Definition & Pathophysiology, Symptoms & Diagnostic Criteria, Engineering & Imaging Techniques for Diagnosis and Research, Treatment, Pediatric Issues, and Related Conditions. The proceedings of the conference will be published in a peer-reviewed medical journal and made available through a web based video archive. The conference activities and the dissemination of the results will have a significant, positive impact on the experiences and outcomes of the estimated 300,000 Chiari patients in the US and their families. PUBLIC HEALTH RELEVANCE: Chiari malformation is a serious neurological disorder affecting upwards of 300,000 people in the US9. Because of confusion surrounding the definition, underlying cause, diagnosis, and treatment of Chiari, the patient experience is dominated by frustration, confusion, and unnecessary delays in treatment, and successful outcomes are unduly limited. A research conference designed to assess the current state of knowledge and develop specific research recommendations will have a positive effect on patient experiences and outcomes.