CRANIOFACIAL RESEARCH

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目及 研究者（PI）可能从另一个NIH来源获得了主要资金， 因此可以在其他CRISP条目中表示。所列机构为 中心，但不一定是研究者所在的机构。 这项建议的目标是制定一个多学科的裂缝和颅面疾病计划，在夏威夷的儿童可以从出生到成年。该诊所的研究目标源于研究独特儿科人群的机会。在最近的历史上，夏威夷的每一位唇腭裂患者都没有在同一个多学科团队中接受过服务。一般的做法是初级医生转诊到几个成人整形外科医生之一进行初步修复和重建，并进行零散的门诊随访。牙科和正畸往往不包括在这些转介。虽然许多人由卫生部特殊卫生需要司的护士个案管理员和社会工作者跟踪，但许多人在系统中迷失，没有得到充分的听力和语言跟踪。据推测，该诊所的成立将改善这些婴儿和儿童的全球医疗保健，首先通过积极的喂养评估和康复护理改善生长和发育。将包括改善听力筛查和听力损失治疗，以及必要时的言语和语言评估和治疗。这些措施共同改善了这些儿童在生命头两年的神经发育评估中的认知结果。在持续的照顾下，这些儿童的言语和语言技能将得到改善，从而更好地融入主流学校系统。这将导致改善学校的成果，日常生活和自我概念的儿童年龄的功能，如儿科健康相关的生活质量清单。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The goal of this proposal is to develop a multidisciplinary cleft and craniofacial disorders program where children in Hawaii can be followed from birth through adulthood. The research goals of this clinic stem from the opportunity to study a unique pediatric population. At no time in recent history has every cleft lip/palate patient in Hawaii been serviced within the same multidisciplinary team. The general practice has been primary physician referral to one of several adult plastic surgeons for initial repair and reconstruction, with fragmented outpatient follow-up. Dentistry and orthodontics are often not included in these referrals. Although many are followed by a nurse case manager and social worker from the DOH Special Health Needs Division, many are lost in the system and receive inadequate hearing and speech follow-up. It is hypothesized that the formation of this clinic will result in improved global medical care for these infants and children, beginning with improved growth and development via aggressive feeding evaluations and rehabilitation care. Improved hearing screening and treatment of hearing loss will be included, with speech and language evaluation and therapy when needed. These together should improve cognitive outcomes in these children as measured in neurodevelopmental assessments in the first two years of life. With continued care these children will have improved speech and language skills, improving integration into mainstream school systems. This will lead to improvements in school outcomes, function in daily living and self-concept as the child ages, as measured by a Pediatric Health-Related Quality of Life Inventory.