CRANIOFACIAL CLINIC

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 这项提议的具体目标是在Kapi‘olani妇女和儿童医学中心发展一个综合的、多学科的颅面诊所。这个诊所的总体目标有两个。首先是开发一项多学科的唇裂和颅面部疾病项目，夏威夷的儿童可以从出生到青春期进行跟踪。其次是为研究这一独特的儿科人群提供基础设施。 这是临床研究中心的正式请求，以帮助协调我们的共同努力，以发展一个全面的、多学科的诊所，为唇裂和/或腭裂儿童提供支持。这家诊所是为了满足这些患者从出生到21岁的多学科长期管理的确定需求。颅面诊所的目标是帮助这些独特儿童的家庭解决他们面临的日常挑战，如喂养、躯体生长、神经发育和语言/语言发育。此外，我们计划协调手术(重建和耳鼻喉科)和牙科干预的适当时间表。 该诊所将由卡皮奥拉尼妇女和儿童医学中心新生儿特别护理中心医学主任查尔斯·尼尔博士和对新生儿听力特别感兴趣的卡皮奥拉尼妇女和儿童医学中心新生儿科专家Lynn Iwamoto博士领导。颅面重建小组将由M.Barbera Honnebier博士领导，他是皇后区医学中心的一名儿科重建外科医生。临床团队将由一名新生儿医生、儿科医生、行为儿科医生、整形外科医生、遗传学家、耳鼻喉科医生、牙医、护士、语言治疗师和听力学家组成。卫生署特别健康需要科的一名护士个案经理和社会工作者将会加入我们的行列，协助家庭在社区诊所以外的地方获得和协调服务。这种形式将遵循美国腭裂-颅面协会推荐的护理标准，即每年至少六个半天诊所。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The specific aim of this proposal is to develop an integrative, multidisciplinary craniofacial clinic at Kapi'olani Medical Center for Women and Children. The overarching goal of this clinic is two-fold. First is to develop a multidisciplinary cleft and craniofacial disorders program where children in the state of Hawaii can be followed from birth to adolescence. Second is to provide an infrastructure to study this unique pediatric population. This is a formal request of the Clinical Research Center to help coordinate our concerted efforts towards the development of a comprehensive, multidisciplinary clinic for the support of children with cleft lip and/or palate. This clinic is in response to an identified need for multidisciplinary long term management for these patients from birth to 21 years of age. The goal of the Craniofacial Clinic is to assist families of these unique children with the daily challenges they face, such as feeding, somatic growth, neurodevelopment and speech/language development. In addition, we plan to coordinate the appropriate scheduling of surgical (reconstructive and otolaryngology) and dental interventions. The clinic will be headed by Charles Neal, MD, PhD, Medical Director of the Newborn Special Care Unit at Kapi'olani Medical Center for Women and Children, and Lynn Iwamoto, MD, a neonatologist at Kapi'olani Medical Center for Women and Children with specialized interest in newborn hearing. The craniofacial reconstruction team will be headed by Dr. M. Barbera Honnebier, MD, PhD, a Pediatric Reconstructive Surgeon out of Queens Medical Center. The clinic team will consist of a neonatologist, pediatrician, behavioral pediatrician, plastic surgeon, geneticist, otolaryngologist, dentist, nurse, speech therapist and audiologist. We will be joined by a nurse case manager and social worker from the Department of Health (DOH) Special Health Needs Division, who will assist families with obtaining and coordinating services outside of the clinic in the community. The format will follow the American Cleft Palate-Craniofacial Association recommended standard of care, which is a minimum of six half day clinics per year.