CRANIOFACIAL CLINIC

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目和 研究者（PI）可能从另一个NIH来源获得主要资金， 因此可以在其他CRISP条目中表示。列出的机构是 中心，不一定是研究者的机构。 这项建议的具体目标是在Kapi'olani妇女和儿童医疗中心建立一个综合性、多学科的颅面诊所。 这个诊所的首要目标是双重的。 首先是制定一个多学科的裂缝和颅面疾病计划，在夏威夷州的儿童可以从出生到青春期跟踪。 其次是提供一个基础设施来研究这个独特的儿科人群。 这是临床研究中心的正式请求，以帮助协调我们的共同努力，为唇腭裂儿童提供全面的多学科诊所的发展。 该诊所是为了满足这些患者从出生到21岁的多学科长期管理的需求。 颅面诊所的目标是帮助这些独特儿童的家庭解决他们面临的日常挑战，如喂养，身体发育，神经发育和言语/语言发育。 此外，我们计划协调手术（重建和耳鼻喉科）和牙科干预的适当时间表。 该诊所将由卡皮奥拉尼妇女和儿童医疗中心新生儿特别护理部医学主任Charles Neal博士和卡皮奥拉尼妇女和儿童医疗中心专门研究新生儿听力的听力学家林恩岩本博士领导。 颅面重建小组将由M。Barbera Honnebier，医学博士，博士，皇后区医疗中心的儿科重建外科医生。 诊所团队将包括一名整形外科医生、儿科医生、行为儿科医生、整形外科医生、遗传学家、耳鼻喉科医生、牙医、护士、语言治疗师和听力学家。 我们将由卫生部（DOH）特殊卫生需求司的一名护士病例经理和社会工作者加入，他们将协助家庭获得和协调社区诊所以外的服务。 该格式将遵循美国腭裂颅面协会推荐的护理标准，即每年至少六个半天的诊所。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The specific aim of this proposal is to develop an integrative, multidisciplinary craniofacial clinic at Kapi'olani Medical Center for Women and Children. The overarching goal of this clinic is two-fold. First is to develop a multidisciplinary cleft and craniofacial disorders program where children in the state of Hawaii can be followed from birth to adolescence. Second is to provide an infrastructure to study this unique pediatric population. This is a formal request of the Clinical Research Center to help coordinate our concerted efforts towards the development of a comprehensive, multidisciplinary clinic for the support of children with cleft lip and/or palate. This clinic is in response to an identified need for multidisciplinary long term management for these patients from birth to 21 years of age. The goal of the Craniofacial Clinic is to assist families of these unique children with the daily challenges they face, such as feeding, somatic growth, neurodevelopment and speech/language development. In addition, we plan to coordinate the appropriate scheduling of surgical (reconstructive and otolaryngology) and dental interventions. The clinic will be headed by Charles Neal, MD, PhD, Medical Director of the Newborn Special Care Unit at Kapi'olani Medical Center for Women and Children, and Lynn Iwamoto, MD, a neonatologist at Kapi'olani Medical Center for Women and Children with specialized interest in newborn hearing. The craniofacial reconstruction team will be headed by Dr. M. Barbera Honnebier, MD, PhD, a Pediatric Reconstructive Surgeon out of Queens Medical Center. The clinic team will consist of a neonatologist, pediatrician, behavioral pediatrician, plastic surgeon, geneticist, otolaryngologist, dentist, nurse, speech therapist and audiologist. We will be joined by a nurse case manager and social worker from the Department of Health (DOH) Special Health Needs Division, who will assist families with obtaining and coordinating services outside of the clinic in the community. The format will follow the American Cleft Palate-Craniofacial Association recommended standard of care, which is a minimum of six half day clinics per year.