CRANIOFACIAL CLINIC

颅面诊所

• 批准号: 7725336
• 负责人: CHARLES RICHARD NEAL
• 金额: $ 1.78万
• 依托单位: UNIVERSITY OF HAWAII AT MANOA
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-07-01 至 2009-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7725336
• 关键词: Adolescence; Age-Years; American; Behavioral; Birth; Caring; Case Manager; Child; Child Support; Childhood; Cleaved cell; Cleft Lip; Cleft Palate; Clinic; Clinical Research; Communities; Computer Retrieval of Information on Scientific Projects Database; Daily; Dental; Dentists; Development; Disease; Doctor of Philosophy; Face; Family; Funding; Goals; Grant; Growth; Hawaii; Head; Health; Hearing; Institution; Intervention; Language Development; Medical center; Newborn Infant; Nurses; Operative Surgical Procedures; Otolaryngologist; Otolaryngology; Palate; Patients; Physician Executives; Plastic Surgeon; Population; Research; Research Infrastructure; Research Personnel; Resources; Schedule; Services; Social Workers; Source; Speech; Speech Therapist; Standards of Weights and Measures; Surgeon; United States National Institutes of Health; Woman; craniofacial; day; feeding; interest; multidisciplinary; neurodevelopment; pediatrician; programs; reconstruction; response

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The specific aim of this proposal is to develop an integrative, multidisciplinary craniofacial clinic at Kapi'olani Medical Center for Women and Children. The overarching goal of this clinic is two-fold. First is to develop a multidisciplinary cleft and craniofacial disorders program where children in the state of Hawaii can be followed from birth to adolescence. Second is to provide an infrastructure to study this unique pediatric population. This is a formal request of the Clinical Research Center to help coordinate our concerted efforts towards the development of a comprehensive, multidisciplinary clinic for the support of children with cleft lip and/or palate. This clinic is in response to an identified need for multidisciplinary long term management for these patients from birth to 21 years of age. The goal of the Craniofacial Clinic is to assist families of these unique children with the daily challenges they face, such as feeding, somatic growth, neurodevelopment and speech/language development. In addition, we plan to coordinate the appropriate scheduling of surgical (reconstructive and otolaryngology) and dental interventions. The clinic will be headed by Charles Neal, MD, PhD, Medical Director of the Newborn Special Care Unit at Kapi'olani Medical Center for Women and Children, and Lynn Iwamoto, MD, a neonatologist at Kapi'olani Medical Center for Women and Children with specialized interest in newborn hearing. The craniofacial reconstruction team will be headed by Dr. M. Barbera Honnebier, MD, PhD, a Pediatric Reconstructive Surgeon out of Queens Medical Center. The clinic team will consist of a neonatologist, pediatrician, behavioral pediatrician, plastic surgeon, geneticist, otolaryngologist, dentist, nurse, speech therapist and audiologist. We will be joined by a nurse case manager and social worker from the Department of Health (DOH) Special Health Needs Division, who will assist families with obtaining and coordinating services outside of the clinic in the community. The format will follow the American Cleft Palate-Craniofacial Association recommended standard of care, which is a minimum of six half day clinics per year.

该子项目是利用该技术的众多研究子项目之一 资源由 NIH/NCRR 资助的中心拨款提供。子项目和 研究者 (PI) 可能已从 NIH 的另一个来源获得主要资金， 因此可以在其他 CRISP 条目中表示。列出的机构是 对于中心来说，它不一定是研究者的机构。 该提案的具体目标是在卡皮奥拉尼妇女儿童医疗中心建立一个综合性、多学科颅面诊所。 该诊所的总体目标有两个。 首先是制定一个多学科的唇裂和颅面疾病计划，可以对夏威夷州的儿童从出生到青春期进行跟踪。 其次是提供基础设施来研究这一独特的儿科人群。 这是临床研究中心的正式请求，旨在帮助协调我们的共同努力，开发一个综合性、多学科的诊所，为唇裂和/或腭裂儿童提供支持。 该诊所是为了满足这些从出生到 21 岁的患者对多学科长期管理的明确需求。 颅面诊所的目标是帮助这些独特儿童的家庭应对他们面临的日常挑战，例如喂养、躯体生长、神经发育和言语/语言发展。 此外，我们计划协调外科（重建和耳鼻喉科）和牙科干预的适当安排。 该诊所将由卡皮奥拉尼妇女和儿童医疗中心新生儿特殊护理科医学主任 Charles Neal 医学博士和医学博士林恩·岩本 (Lynn Iwamoto) 领导，林恩·岩本是卡皮奥拉尼妇女和儿童医疗中心的新生儿科医生，专门研究新生儿听力。 颅面重建团队将由皇后医学中心的儿科重建外科医生 M. Barbera Honnebier 博士领导。 诊所团队将由新生儿科医生、儿科医生、行为儿科医生、整形外科医生、遗传学家、耳鼻喉科医生、牙医、护士、言语治疗师和听力学家组成。 卫生部 (DOH) 特殊健康需求部门的一名护士个案经理和社会工作者将加入我们，他们将协助家庭获得和协调社区诊所以外的服务。 该形式将遵循美国腭裂-颅面协会推荐的护理标准，即每年至少有六个半日制诊所。