TeenMigraineConnection: Web-based self-management training for adolescents with m

TeenMigraineConnection：针对偏头痛青少年的基于网络的自我管理培训

• 批准号: 8000212
• 负责人: Elizabeth Anna Donovan
• 金额: $ 26.47万
• 依托单位: INFLEXXION, INC.
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-08-17 至 2011-07-16
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8000212
• 关键词: Address; Adolescent; Adult; Attention; Behavior; Caregivers; Child; Childhood; Development; Development Plans; Devices; Diagnosis; Educational process of instructing; Exercise; Foundations; Frequencies; Goals; Headache; Health; Health behavior change; Internet; Intervention; Life; Medical; Migraine; Online Systems; Pain; Paper; Patients; Pharmaceutical Preparations; Prevalence; Provider; Public Health; Quality of life; Research; Risk; Risk Factors; Safety; Self Efficacy; Self Management; Side; Site; Social Network; Social support; Symptoms; Technology; Testing; Time; Training; Update; age group; base; college; cost; design; diaries; disability; high school; improved; innovation; neglect; programs; prototype; public health relevance; skills; skills training; technology development; tool; usability; web site

DESCRIPTION (provided by applicant): Headache is a frequent health problem in children and adolescents (Winner & Rothner, 2001). The greatest impact on a child and caregiver is from migraine which can have a significant impact on disability (Hershey, et al., 2001), as well as quality of life (Powers, et al., 2004). For example, adolescents with migraine have lower grades at high school and are less likely to graduate from high school and attend college than adolescents without migraine (Rees & Sabia, 2009). Despite its prevalence and impact, pediatric migraine has received remarkably little attention and is commonly undiagnosed or misdiagnosed (Hershey & Winner, 2005). A number of health behavior changes can reduce migraine attack frequency, decrease the risk of migraine progression (Bigal, 2009) and significantly improve quality of life (Cottrell et al., 2007). Yet, little is available for this age group. We propose to develop an innovative, interactive, online pain self-management program for adolescents who suffer from migraines. This online health intervention, TeenMigraineConnection, will provide clinically reliable information about diagnosis, treatment, and management of migraine. Moreover, the use of Web 2.0 technology will enable the development of innovative features such as a headache diary that can be accessed through a mobile device to facilitate real-time updates; motivational, tailored information to increase self-efficacy for self-management behaviors, as well as video-based testimonies and social networking to enhance social support. On the caregiver side of the program, articles, lessons and tools will provide tailored information to help caregivers to reinforce adolescent self-management behaviors. Our review of websites suggests that no site currently offers this combination of empirically derived self-management features and cutting edge technologies. We believe the program will have a significant public health impact. With the overall total cost of migraine estimated at 13 to 15 billion dollars annually (Stewart, 2003), the program may improve quality of life for millions of adolescents while addressing risk factors for progression into adulthood, thus lowering this considerable cost. The content of this on-line health intervention will be developed and evaluated through the following specific aims: (1) Gather Input from Adolescents with Migraine, Caregivers, and Migraine Experts about Design and Content of the Website and the Mobile Application; (2) Develop Content, Design, and Technology Development Plans; (3) Develop Rapid Flash Prototype of Website and Paper-Prototyping of Mobile Application; (4) Conduct Usability and Acceptance Tests with Adolescent Patients and Caregivers, and (5) Conduct Acceptance Tests with Experts. PUBLIC HEALTH RELEVANCE: We propose to develop an interactive, online pain self-management program for adolescents with migraine and their caregivers. The program will include innovative features, including a headache diary that can be accessed through a mobile device to facilitate real-time updates; motivational, tailored information to increase self-efficacy for self-management behaviors, as well as video-based testimonies and social networking to enhance social support. Overall, TeenMigraineConnection represents a significant innovation that has the potential to have a dramatic public health impact by improving quality of life for millions of adolescents while addressing risk factors for progression into adulthood.

描述（由申请人提供）：头痛是儿童和青少年常见的健康问题（赢家和Rothner，2001）。对儿童和看护者的最大影响来自偏头痛，偏头痛可对残疾具有显著影响（Hershey等人，2001），以及生活质量（Powers等人，2004年）。例如，与没有偏头痛的青少年相比，患有偏头痛的青少年在高中的成绩较低，并且不太可能从高中毕业并进入大学（Rees & Sabia，2009）。尽管其患病率和影响，小儿偏头痛已收到显着很少的关注，通常是未诊断或误诊（好时和赢家，2005）。许多健康行为改变可以降低偏头痛发作频率，降低偏头痛进展的风险（Bigal，2009）并显著改善生活质量（Cottrell等人，2007年）。然而，这一年龄组几乎没有什么可利用的。我们建议为患有偏头痛的青少年开发一个创新的，互动的，在线疼痛自我管理计划。这种在线健康干预，青少年偏头痛连接，将提供有关偏头痛的诊断，治疗和管理的临床可靠信息。此外，使用Web 2.0技术将能够开发创新功能，例如可以通过移动终端访问的头痛日记，以便于实时更新;激励性的定制信息，以提高自我管理行为的自我效能，以及基于视频的证词和社交网络，以加强社会支持。在照顾者方面的计划，文章，课程和工具将提供量身定制的信息，以帮助照顾者加强青少年的自我管理行为。我们对网站的审查表明，目前没有网站提供这种经验性的自我管理功能和尖端技术的组合。我们相信该计划将对公共卫生产生重大影响。每年偏头痛的总成本估计为130亿至150亿美元（Stewart，2003），该计划可以改善数百万青少年的生活质量，同时解决进入成年的风险因素，从而降低这一可观的成本。该在线健康干预的内容将通过以下具体目标进行开发和评估：（1）收集偏头痛青少年、护理人员和偏头痛专家对网站和移动的应用程序的设计和内容的意见;（2）制定内容、设计和技术开发计划;（3）开发网站的快速Flash原型和移动的应用程序的纸质原型;（4）与青少年患者和护理人员进行可用性和验收测试，以及（5）与专家进行验收测试。 公共卫生相关性：我们建议为偏头痛青少年及其护理人员开发一个互动的在线疼痛自我管理计划。该计划将包括创新功能，包括头痛日记，可以通过移动终端访问，以促进实时更新;激励，量身定制的信息，以提高自我管理行为的自我效能，以及基于视频的证词和社交网络，以加强社会支持。总体而言，TeenMigraineConnection代表了一项重大创新，有可能通过改善数百万青少年的生活质量，同时解决进入成年的风险因素，产生巨大的公共卫生影响。

项目成果

Assessing the feasibility of a Web-based self-management program for adolescents with migraines and their caregivers.

评估偏头痛青少年及其照顾者基于网络的自我管理计划的可行性。

• DOI: 10.1177/0009922812447679
• 发表时间: 2013
• 期刊: Clinical pediatrics
• 影响因子: 1.6
• 作者: Donovan,Elizabeth;Mehringer,Stacey;Zeltzer,LonnieK
• 通讯作者: Zeltzer,LonnieK