Mobile Self-Management of Irritable Bowel Syndrome for Adolescents

青少年肠易激综合症的移动自我管理

• 批准号: 8900428
• 负责人: Elizabeth Anna Donovan
• 金额: $ 22.5万
• 依托单位: BODIMOJO, INC
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-04-10 至 2016-09-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8900428
• 关键词: 3-Dimensional; Abdominal Pain; Absenteeism; Adherence; Adolescent; Adopted; Adult; Age; Anxiety; Applications Grants; Behavior; Behavioral; Candy; Car Phone; Caregivers; Cellular Phone; Childhood; Chronic; Cognitive; Cognitive Therapy; Common Cold; Complement; Complex; Computational algorithm; Development; Devices; Diarrhea; Direct Costs; Disease; Emotional; Empathy; Facilities and Administrative Costs; Family; Fright; Functional disorder; Funding; Future; Goals; Habits; Health; Health Care Costs; Health Care Reform; Health Promotion; Health behavior; Health behavior change; Health system; Healthcare Systems; Home environment; Intervention; Interview; Intestines; Irritable Bowel Syndrome; Lead; Learning; Life; Loneliness; Medical; Mental Depression; Mind-Body Intervention; Modeling; Monitor; Nausea and Vomiting; North America; Outcome; Pain; Parents; Patients; Performance; Phase; Physicians; Population; Positioning Attribute; Prevalence; Provider; Public Health; Quality of Care; Quality of life; Randomized Controlled Trials; Regimen; Research; Resources; Schools; Self Care; Self Management; Shame; Small Business Innovation Research Grant; Social Functioning; Social isolation; Solutions; Symptoms; Technology; Teenagers; Testing; Time; Training; adolescent patient; base; cost; cost effective; design; evidence base; experience; health organization; improved; innovation; interdisciplinary treatment approach; mHealth; meetings; mindfulness; mobile application; programs; prototype; psychosocial; public health relevance; skills; social; social attachment; tool; virtual; web site; willingness

 DESCRIPTION (provided by applicant): The BodiMojo Buddy mobile app for adolescents with Irritable Bowel Syndrome (IBS) represents a significant new self-management tool that will educate adolescents, build self-care skills and complement patient-physician interactions. IBS is a common digestive condition among adolescents that has profound effects on adolescent quality of life. IBS and related functional bowel disorders have been ranked as a common cause of illness-related absenteeism, second only to the common cold (Cain et al., 2006). IBS is a complex, chronic, functional disorder that has no cure and is characterized by abdominal pain/discomfort and altered bowel habits; other symptoms may include nausea, vomiting, and bloating. Despite the fact that IBS is quite common-prevalence estimates in North America for adults and adolescents are between 10- 15 percent-there is remarkably little available to adolescents to help them self-manage the symptoms of IBS. The goal of this application is to develop a mobile self-management support intervention for adolescents living with IBS that can serve to increase patient engagement through interactive skill-building, self-care, and mindfulness- based cognitive behavioral activities. Evidence-based self-management support will be delivered to adolescents with IBS through a virtual coach or "embodied conversational agent" (ECA). Virtual coaches offer a number of advantages when incorporated into technology-based health interventions, such as: (1) creating empathy and social bonds that can serve to increase adherence to health regimens that are encouraged by the virtual coach; (2) they may be effective for maintaining a number of health behavior changes over a period of time; and (3) they may be well-suited to groups who experience shame about their medical condition, social isolation, and harbor worries about fitting in. This approach, therefore, may be especially helpful for adolescents with IBS. The specific goals of the proposed program are to enhance self-management of IBS through a virtual coach, the BodiMojo Buddy, and help caregivers reinforce their adolescent's self-care with support and health promotion materials. The feasibility of this intervention will be developed and evaluated through these specific aims: (1) conduct in-depth interviews to gather input from adolescents with IBS, caregivers, and providers to inform design and content of the mobile-based intervention; (2) create an educational content plan and emotional modeling technical specifications for the virtual coach; (3) develop the mobile app prototype and parent video tutorials; (4) conduct a pilot test of the BodiMojo Buddy prototype with adolescents who have IBS; (5) conduct acceptance testing with caregivers and providers.

 描述（由申请人提供）：针对肠易激综合征（IBS）青少年的BodiMojo Buddy移动的应用程序代表了一种重要的新型自我管理工具，将教育青少年，建立自我护理技能并补充患者与医生的互动。IBS是青少年中常见的消化系统疾病，对青少年的生活质量有着深远的影响。IBS和相关的功能性肠病已经被列为疾病相关缺勤的常见原因，仅次于普通感冒（Cain等人，2006年）。IBS是一种复杂的慢性功能性疾病，无法治愈，其特征是腹痛/不适和排便习惯改变;其他症状可能包括恶心，呕吐和腹胀。尽管IBS是相当普遍的事实-在北美成人和青少年的患病率估计在10- 15岁之间-但青少年几乎没有什么可以帮助他们自我管理IBS的症状。该应用程序的目标是为患有IBS的青少年开发一种移动的自我管理支持干预措施，该干预措施可以通过互动技能建设、自我护理和基于正念的认知行为活动来增加患者参与度。基于证据的自我管理支持将通过虚拟教练或“具体对话代理”（ECA）提供给IBS青少年。当虚拟教练被纳入基于技术的健康干预措施时，虚拟教练提供了许多优势，例如：（1）创造同理心和社会纽带，可以用来增加对虚拟教练所鼓励的健康养生法的坚持;（2）它们可以有效地在一段时间内保持一些健康行为的改变;以及（3）它们可能非常适合那些对自己的健康状况感到羞耻、社会孤立并担心融入社会的群体。因此，这种方法可能特别有用 针对患有IBS的青少年。拟议计划的具体目标是通过虚拟教练BodiMojo Buddy加强IBS的自我管理，并帮助护理人员通过支持和健康促进材料加强青少年的自我护理。该干预的可行性将通过以下具体目标进行开发和评估：（1）进行深入访谈，以收集IBS青少年、护理人员和提供者的意见，为基于移动的干预的设计和内容提供信息;（2）为虚拟教练创建教育内容计划和情感建模技术规范;（3）开发移动的应用程序原型和家长视频教程;（4）对患有IBS的青少年进行BodiMojo Buddy原型的试点测试;（5）与照顾者和提供者进行验收测试。

项目成果

Pediatric Irritable Bowel Syndrome: Perspectives on Pain and Adolescent Social Functioning.

小儿肠易激综合症：疼痛和青少年社会功能的观点。

• DOI: 10.1093/pm/pny056
• 发表时间: 2019
• 期刊: Pain medicine (Malden, Mass.)
• 作者: Donovan,Elizabeth;Martin,SarahR;Lung,Kirsten;Evans,Subhadra;Seidman,LauraC;Cousineau,TaraM;Cook,Elizabeth;Zeltzer,LonnieK
• 通讯作者: Zeltzer,LonnieK