Youth Mental Health Outcomes Tracking System: Self, Parent, & Clinician-Reported

描述（由申请人提供）：在NIMH的资助下，TeleSage开发了一种最先进的心理健康结果跟踪调查工具，用于公共和私营部门的成年人。这项调查目前在田纳西州和爱荷华州全州范围内使用。遗憾的是，没有针对青年的相应尖端调查工具。TeleSage在两个全州范围的项目中使用了俄亥俄州量表，但该仪器有几个重要的缺点。 该项目的总体目标是开发一个青年心理健康结果跟踪工具和相关软件，供州心理健康机构和管理行为医疗保健组织（MBHO）使用。该软件包将为管理员和临床医生最常请求的领域提供一组项目库，这些领域与患者及其家人和倡导团体最相关。这些项目库将有三个版本：一个由接受心理健康服务的青少年（13-17岁）填写，一个由接受心理健康服务的青少年（5-17岁）的父母填写，一个由接受心理健康服务的青少年（5-17岁）的临床医生填写。国家、机构和MBHO将能够选择与其需求最相关的领域，以及选择技术解决方案（例如，IVR、PC、PDA、触摸屏），用于收集患者报告的数据并向利益相关者提供报告。 该第一阶段项目将使用与NIH PROMIS计划相同的调查开发技术。TeleSage已经为13个领域开发了核心项目池。将根据专家小组的审查制定其他项目。我们将预先测试项目的13个先前开发的领域，以及一个新的育儿压力领域和领域适用于自闭症谱系障碍，使用认知访谈的样本20个青年（13-17岁），20个青少年的父母，和20个临床医生治疗青年。一个专家小组将审查结果，并建议全面验证的项目。使用IRT分析和与金标准仪器的比较对项目进行全面验证将在第II阶段完成。此外，还将创建特定于响应者的域、西班牙语翻译和现有文书相关域的人行横道。 公共卫生相关性：青少年的精神疾病与成年人的精神疾病在性质上是不同的;因此，需要一种针对青少年的工具来为这一人群提供可靠和有效的自我评估。该项目旨在为青少年、他们的父母和临床医生开发一种最先进的、多领域的状态结果跟踪工具。拟议的工具将大大改善现有的措施，通过使用IRT，认知访谈，和DSM为导向的一套领域，以可靠地跟踪5-17岁的青少年的变化。

DESCRIPTION (provided by applicant): With funding from NIMH, TeleSage has developed a state-of-the-art mental health outcomes tracking survey instrument for use with both public- and private-sector adults. This survey is currently in statewide use in Tennessee and Iowa. Unfortunately, no corresponding cutting-edge survey instrument exists for youth. TeleSage has used the Ohio Scales in two state-wide projects, but this instrument has several important shortcomings. The overall aim of this project is to develop a youth mental health outcomes tracking instrument and associated software for use by state mental health agencies and managed behavioral healthcare organizations (MBHO). The package will feature a set of item banks for the domains that are most frequently requested by administrators and clinicians, and which are most relevant to patients, their families, and advocacy groups. There will be three versions of these item banks: one to be completed by youth (ages 13-17) receiving mental health services, one to be completed by parents of youth (ages 5-17) receiving mental health services, and one to be completed by clinicians of youth (ages 5-17) receiving mental health services. States, agencies, and MBHOs will be able to choose the domains most relevant to their needs, as well as select technological solutions (e.g., IVR, PCs, PDAs, touch-screens) for collecting patient-reported data and delivering reports to stakeholders. This Phase I project will utilize the same survey development techniques as those used by the NIH PROMIS initiative. TeleSage has already developed core item pools for 13 domains. Additional items will be developed based on expert panel review. We will pretest items for the 13 previously developed domains, as well as a new parenting stress domain and domains appropriate for use with Autism Spectrum Disorders, using cognitive interviewing with a sample of 20 youth (ages 13-17), 20 parents of youth, and 20 clinicians treating youth. An expert panel will review results and recommend items for full validation. Full validation of items, using IRT analysis and comparisons with gold standard instruments will be completed in Phase II. In addition, respondent-specific domains, a Spanish translation, and crosswalks to the relevant domains of existing instruments will also be created. PUBLIC HEALTH RELEVANCE: Mental illness in adolescents is qualitatively different from mental illness in adults; as such, a youth specific instrument is needed to offer a reliable and valid self-assessment for this population. This project aims to develop a state-of-the-art, multi-domain state outcomes tracking instrument for youth, their parents, and clinicians. The proposed instrument would greatly improve upon existing measures by using IRT, cognitive interviewing, and a DSM-oriented set of domains to reliably track change in youth ages 5-17.