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Evaluation of Sun Protection Education for Kidney Transplant Recipients

肾移植受者防晒教育评价

基本信息

批准号：
8244266
负责人：
JUNE K ROBINSON
金额：
$ 7.73万
依托单位：
NORTHWESTERN UNIVERSITY AT CHICAGO
依托单位国家：
美国
项目类别：
财政年份：
2012
资助国家：
美国
起止时间：
2012-09-01 至 2014-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8244266
关键词：
Acute Anxiety Awareness Behavior Caring Communities Counseling Dermatologic Education Educational Intervention Educational Materials Effectiveness Effectiveness of Interventions Electronic Mail End stage renal failure Ethnic group Evaluation Excision Family Focus Groups Forearm Foundations Fright Goals Health Personnel Hispanics Home environment Incidence Individual Intervention Kidney Kidney Transplantation Learning Life Malignant Neoplasms Measures Mediating Medical Melanins Minority Not Hispanic or Latino Online Systems Outcome Measure Pamphlets Patient Self-Report Patients Performance Phase Pigmentation physiologic function Pilot Projects Postoperative Period Printing Qualitative Research Quality of life Randomized Reaction Reading Recommendation Recovery Research Risk Skin Skin Cancer Skin tanning Squamous cell carcinoma Sun Exposure Sunburn Sunscreening Agents System Text Text Telephone The Sun Therapeutic immunosuppression Time Transplant Recipients Transplantation Ultraviolet Rays United States Writing cancer prevention cancer risk care delivery experience graft function improved indexing preference prevent programs protective behavior public education skin cancer prevention sun protection tertiary care

项目摘要

The goal of this proposal is to develop and evaluate a sun protection educational intervention for kidney transplant recipients (KTRs) to prevent skin cancer. Kidney transplantation is the treatment of choice for patients with end-stage renal disease, however, the requisite life-long immunosuppressive therapy is associated with developing skin cancer, especially squamous cell carcinoma (SCC). SCC afflicts 19% of KTRs between 3-8 years post-transplant,10-45% by 10 years, and 61% by 20 years. Some KTRs develop more than 100 skin cancers in 1 year. Among the approximately living 100,000 KTRs in the United States, many suffer impaired quality of life from disfigurement of surgical removal, anxiety and fear about the return or spread of the cancer, and concern about the reaction of others. Education about the importance of sun protection is necessary for all KTRs, including minorities who comprise 38% of living KTRs. Focus groups convened by the National Kidney Foundation indicate that clinicians rarely provide education after transplantation about skin cancer risk and prevention, nor do clinicians educate patients effectively enough to promote sun protective behaviors. Recipients' perceived importance of SCC and personal risk of developing SCC moderate an individual's sun protection behavior, e.g. applying sunscreen, seeking shade, and avoiding deliberate tanning. Darker-skinned individuals may perceive themselves as either at low or no risk for skin cancer given their limited personal experience with sunburns, and limited public education efforts focused on minorities. Our KTR focus group research examined the optimal time and format for sun protection education. KTRs recommended providing sun protection education before the first summer after transplantation and desired a booklet that can be reviewed with their health care provider and taken home to read with family. The proposed pilot study extends our research by developing and evaluating culturally sensitive, printed sun protection educational materials for KTRs. We will evaluate the effectiveness of educational materials in changing sun protection behavior with an intervention phase that randomizes equal numbers of non-Hispanic White, Hispanic and Black KTRs to the intervention and customary care, and evaluates outcome measures at 3 and 6 months in comparison to baseline measures. By developing educational materials that effectively increase sun protection behaviors, we will be well poised to develop an interactive web-based system to disseminate the material to KTRs. Future research will assess optimal approaches to disseminating a sun protection program to US transplant centers by print or web-based delivery.

本提案的目标是发展和评估防晒教育干预措施