Scientific Integrity in Community-Based Participatory Research

基于社区的参与式研究（CBPR）强调社区参与研究各个方面的重要性，包括研究问题的定义，数据收集和分析以及研究结果的应用。CBPR还强调了教育和纠正社区合作伙伴，研究人员和参与者之间知识不平衡的重要性。CBPR框架被认为促进了对疾病和治疗结果发生的社会背景的更好的科学理解，从而为与之相关的问题提供了更有效和更适合文化的解决方案。迄今为止，CBPR的研究和文献主要集中在其优点，社区合作伙伴和研究人员在合作努力中遇到的困难，以及改善合作和更好地确保项目成功和传播成果的方法。对CBPR研究诚信保证的关注由来已久，并与涉及的不同领域，学科，文化和社区相关的各种规范和公约有关。缺乏系统地研究CBPR科学行为的潜在威胁的原始研究，这项探索性研究将评估CBPR完整性的潜在威胁，这些CBPR项目涉及社区成员和组织，医疗保健提供者（护士，医生等），基于实践的研究网络（PBRN）和传统学术研究机构的联盟。该项目的具体目标是：（1）在社区成员和组织、医疗保健提供者、PBRN成员和学术研究人员中描述可能影响CBPR项目科学完整性的目的、方法和预期结果的知识和理解;（2）描述影响CBPR项目科学严谨性的结构性因素，包括财政资源的可用性，数据收集和分析工具，或CBPR团队成员的研究培训不平衡;（3）确定将增加和保持CBPR研究完整性的教育内容。这项R21探索性研究的结果将促进标准CBPR培训模块的开发，供社区成员和组织、医疗保健提供者以及从事CBPR项目的学术研究人员使用。该项目将通过系统地调查CBPR中影响研究诚信的因素，并制定方法来解决对研究诚信的威胁，来解决对CBPR科学价值的担忧。在实现其目标，该项目将确定的方法，负责任的行为标准可能会纳入CBPR，以确保研究的完整性。这些方法将有助于提高CBPR结果的可靠性和有效性，从而使社区参与的转化科学更有意义和更有效。

DESCRIPTION (provided by applicant): Community-based participatory research (CBPR) emphasizes the importance of community participation in all aspects of research, including the definition of research questions, data collection and analysis, and application of findings. CBPR also emphasizes the importance of education and rectification of knowledge imbalances between community partners, researchers, and participants. The CBPR framework has been credited with facilitating better scientific understanding of the social context in which disease and treatment outcomes occur and, thereby, more effective and culturally tailored solutions to problems associated with them. To date, much of the CBPR research and literature focuses on its merits, the difficulties community partners and researchers encounter in their efforts to cooperate, and methods to improve that cooperation and better ensure project success and dissemination of findings. Concern for assurance of CBPR research integrity is long standing and connected to the variety of norms and conventions associated with the diverse fields, disciplines, cultures, and communities involved. Original research that systematically examines potential threats to the scientific conduct of CBPR is lacking and this exploratory study will evaluate potential threats to CBPR integrity across a broad sample of CBPR projects involving coalitions of community members and organizations, healthcare providers (nurses, physicians, and others), Practice Based Research Networks (PBRNs), and traditional academic research institutions. The specific aims of this project are: (1) to delineate knowledge and understanding among community members and organizations, healthcare providers, members of PBRNs, and academic researchers about purposes, methods, and desired consequences that may affect the scientific integrity of CBPR projects; (2) to delineate structural factors that affect the scientific rigor of CBPR projects, including availability of financial resources, data collection and analysis tools, or imbalances in research training of CBPR team members; and (3) to determine educational content that will increase and maintain CBPR research integrity. The results of this R21 exploratory study will facilitate development of standard CBPR training modules to be utilized by community members and organizations, health care providers, and academic researchers engaged in CBPR projects. This project will address concerns about the scientific merits of CBPR by systematically investigating the factors that influence research integrity in CBPR and developing methods to address threats to research integrity. In accomplishing its aims, this project will identify methods by which standards of responsible conduct may be incorporated into CBPR to ensure research integrity. These methods will facilitate increased reliability and validity of CBPR findings, and, thereby, more meaningful and effective community-engaged, translational science.