The Hearthside Book Club: Pioneering Dementia-Level-Appropriate Reading Materials

Hearthside 读书俱乐部：开创性适合痴呆症级别的阅读材料

• 批准号: 8394555
• 负责人: Michael John Skrajner
• 金额: $ 47.43万
• 依托单位: HEARTHSTONE ALZHEIMER CARE, LTD
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-04-01 至 2014-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8394555
• 关键词: Adult; Affect; Agitation; Alzheimer' s Disease; American; Assisted Living Facilities; Behavior; Books; Camping; Caregivers; Caring; Communication; Deglutition; Dementia; Development; Distal; Elderly; Event; Exercise; Financial cost; Home Nursing Care; Judgment; Language; Learning; Length; Marketing; Measures; Medical; Memory; Mental Depression; Nursing Homes; Outcome Measure; Pamphlets; Participant; Pattern; Persons; Phase; Prevalence; Problem Solving; Psyche structure; Public Health; Quality of life; Reading; Reporting; Research; Sampling; Stage Grouping; Staging; Stress; Structure; Time; Training; Writing; advanced dementia; base; communication behavior; cost; depressive symptoms; design; essays; experience; improved; innovation; interest; intervention effect; meetings; mental state; phase 1 study; phase 2 study; programs; skills; trend

DESCRIPTION (provided by applicant): An estimated 5.4 million Americans are currently suffering from Alzheimer's disease (AD), and AD cases are expected to rise at an alarming rate, so market potential exists for products, approaches, and/or training that can help treat and/or circumvent the challenging behaviors associated with the condition. One approach that has been shown to be effective involves the use of Montessori Activity Programming (MAP). This study will involve the further development and refinement an innovative MAP activity called the Hearthside Book ClubTM (HBC), which will be the first-ever dementia-level appropriate reading materials. For each of 32 topics, four different versions of a story/essay will be created. Developed for persons in the early stages of dementia, "A- Grade Level Reading Materials" will be 30 pages in length and be written at an 9th grade level; "AA-Grade Level Reading Materials", developed for persons in the Middle Stages of dementia, will be 25 pages in length and will be written at the 6th grade level; "AAA-Grade Level Stories", created for persons in the Late Stages of Dementia, will be 20 pages in length, and will be written at the 4th grade level; finally, "AAAA Grade Level Stories", created for persons in the Very Late Stages of Dementia, will be 15 pages in length, and be written at the 3rd grade level. So, a total of 128 stories will be created for ths study. Half of the stories will contain pictures. A total of 120 older adults with dementia will participate in the study. They will be assigned to one of four groups: the Early Stage Group (Mini-Mental Status Exam (MMSE) score of 18+), the Middle Stage Group (MMSE, 11-17), the Late Stage Group (MMSE, 5-10), or the Very Late Stage Group (MMSE<5). The engagement of persons taking part in HBC sessions will be compared against their engagement in standard, baseline activities. Engagement during HBC sessions will also be compared against engagement in Reading Roundtable(R) (RR) sessions. RR stories are designed for persons with dementia, but are not adjusted for varying levels of dementia. Key proximal outcome measures include engagement and communication patterns; key distal outcome measures include quality of life, depression, and agitation. Distal measures will be taken at baseline, afte one month of RR sessions, after one month of HBC sessions without pictures, and after one month of HBC sessions with pictures. The Specific Aims of the study are: (1) to develop improved HBC stories based upon lessons learned in Phase 1; (2) to develop a enough number of HBC stories for two months of activity programming; (3) to develop HBC stories for persons with severely advanced dementia (MMSE<5); (4) to implement reading groups at three types of facilities (nursing homes, assisted living facilities, and adult day centers); (5) to examine the proximal and distal effects of the reading groups; (6) to examine the effects of the reading groups on communication patterns of persons with dementia; (7) to examine whether the effects of the intervention varies among the three levels of care; and (8) to use results of the Phase 2 study to create a final, market-ready version of the product. PUBLIC HEALTH RELEVANCE: An estimated 5.4 million Americans are currently suffering from Alzheimer's disease (AD), and AD cases are expected to rise at an alarming rate. Besides affecting the person with the condition, AD also presents a public health concern, due to the significant cost required to care for persons with dementia and due to the mental and physical stress placed upon caregivers of persons with dementia; so, there is an urgent need for products and programs that will engage and stimulate persons with dementia, while at the same time reducing the stress on caregivers. Through the development of special reading materials for persons of varying levels of dementia, the proposed project will help meet this need.

描述（由申请人提供）：目前估计有540万美国人患有阿尔茨海默病（AD），并且AD病例预计将以惊人的速度上升，因此存在市场潜力的产品，方法和/或培训，可以帮助治疗和/或规避与该疾病相关的具有挑战性的行为。一种被证明有效的方法是使用蒙台梭利活动规划（MAP）。这项研究将涉及进一步发展和完善一项名为“炉边读书俱乐部tm”（HBC）的创新MAP活动，这将是有史以来第一个适合痴呆症水平的阅读材料。对于32个主题中的每一个，将创建四个不同版本的故事/文章。“A级阅读材料”是为早期痴呆症患者开发的，长度为30页，写作水平为9年级；“aa级阅读材料”是为处于痴呆症中期阶段的人开发的，长度为25页，将按照六年级的水平编写；“aaa级故事”，为老年痴呆症晚期患者创作，长度为20页，写作水平为4年级；最后,“AAAA级