Bridging Geographic Barriers: Remote Cancer Genetics Counseling for Rural Women

跨越地理障碍:为农村妇女提供远程癌症遗传学咨询

基本信息

  • 批准号:
    8469399
  • 负责人:
  • 金额:
    $ 3.71万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2009
  • 资助国家:
    美国
  • 起止时间:
    2009-08-13 至 2013-07-31
  • 项目状态:
    已结题

项目摘要

DESCRIPTION (provided by applicant): Persons living in rural and other geographically underserved areas encounter considerable barriers that reduce or prevent convenient access to quality cancer genetic services. In-person genetic counseling for appropriately selected women by cancer genetic specialists has generally been accepted as the standard of care. The use of telecommunications to deliver clinical genetic services at a site distant from specialists has been suggested as an approach to reduce disparity in access in geographically challenged areas. Remote genetic counseling has the potential to improve health and enhance informed decision-making through access to information and communication with experienced providers without adversely affecting the quality of care. Although telephone counseling has been effectively used as a supplement to in-person genetic services, no published data are available that compare telephone genetic counseling as the sole source of pre-test and post-test disclosure counseling to standard in-person genetic counseling among high-risk women. However, many companies and some providers are offering telephone-based genetic counseling and testing services for cancer susceptibility. Many clinicians and policy makers are concerned about the quality of such counseling and whether counseling conducted over the telephone is as effective as standard in- person counseling. Before widespread adoption and diffusion of telephone-delivered cancer genetic services, it is important to determine whether this mode of genetic communication is comparable to the conventional in-person counseling model within the group where remote counseling is likely to be of greatest benefit, women residing in rural and other underserved areas. This two-group randomized equivalency/non-inferiority trial is designed to determine if genetic counseling delivered by telephone is an acceptable alternative to traditional in-person genetic counseling among 1132 geographically isolated women who have a personal and/or family history of breast and/or ovarian cancer strong enough to suggest that genetic counseling and testing is indicated. We will evaluate the following outcomes: genetic testing uptake, psychological distress, and health-related quality of life. We will also compare the two groups with regard to costs, patient centered communication, and informed decision- making outcomes such as decisional conflict, decision regret and perceived personal control as well as decisions regarding preventive strategies. Overall, our study's findings will provide important information to cancer centers and local public health decision makers about the safety, efficacy, and costs of delivering telephone-based clinical cancer genetic services for rural women at risk for having BRCA 1/2 mutations.
描述(由申请人提供):生活在农村和其他地理服务不足地区的人遇到相当大的障碍,减少或阻止方便地获得高质量的癌症遗传服务。由癌症遗传学专家为适当选择的妇女提供面对面的遗传咨询已被普遍接受为护理标准。有人建议利用电信在远离专家的地点提供临床遗传服务,作为减少地理条件恶劣地区获得服务机会不均等的一种办法。远程遗传咨询有可能通过获得信息和与有经验的提供者沟通来改善健康和加强知情决策,而不会对护理质量产生不利影响。虽然电话咨询已被有效地用于补充人的遗传服务,没有公布的数据比较电话遗传咨询作为唯一的来源,测试前和测试后的披露咨询,标准的人的遗传咨询的高风险妇女。然而,许多公司和一些供应商正在提供基于电话的遗传咨询和癌症易感性测试服务。许多临床医生和政策制定者都关心这种咨询的质量,以及通过电话进行的咨询是否和标准的面对面咨询一样有效。在广泛采用和传播电话提供的癌症遗传服务之前,重要的是要确定这种遗传沟通模式是否与传统的面对面咨询模式相媲美,在远程咨询可能受益最大的群体中,居住在农村和其他服务不足地区的妇女。这项两组随机等效性/非劣效性试验旨在确定通过电话提供的遗传咨询是否是传统面对面遗传咨询的可接受替代方案,该试验在1132名地理隔离的女性中进行,这些女性具有足够强的乳腺癌和/或卵巢癌个人和/或家族史,表明需要进行遗传咨询和检测。我们将评估以下结果:基因检测吸收,心理困扰和健康相关的生活质量。我们还将比较两组在成本,以患者为中心的沟通,知情的决策结果,如决策冲突,决策后悔和感知的个人控制以及有关预防策略的决定。总的来说,我们的研究结果将为癌症中心和当地公共卫生决策者提供重要信息,这些信息涉及为有BRCA 1/2突变风险的农村妇女提供基于电话的临床癌症遗传服务的安全性,有效性和成本。

项目成果

期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)

数据更新时间:{{ journalArticles.updateTime }}

{{ item.title }}
{{ item.translation_title }}
  • DOI:
    {{ item.doi }}
  • 发表时间:
    {{ item.publish_year }}
  • 期刊:
  • 影响因子:
    {{ item.factor }}
  • 作者:
    {{ item.authors }}
  • 通讯作者:
    {{ item.author }}

数据更新时间:{{ journalArticles.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ monograph.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ sciAawards.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ conferencePapers.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ patent.updateTime }}

Anita Y. Kinney其他文献

Project HERO: a randomized trial of Tai Chi qigong versus intensity-matched exercise and usual care for fatigue in older male cancer survivors
  • DOI:
    10.1186/s12906-025-04988-7
  • 发表时间:
    2025-07-04
  • 期刊:
  • 影响因子:
    3.400
  • 作者:
    Anita Y. Kinney;Jinghua An;Yong Lin;Samuel Tundealao;Biren Saraiya;Shou-En Lu;Dolores D. Guest;Elizabeth M. Harding;Fabiano Amorim;Emily Heidt;Evelyn Arana-Chicas;Chunxia Chen;Tawny Boyce;Isaac Y. Kim;Wadih Arap;Cindy K. Blair;Michael R. Irwin
  • 通讯作者:
    Michael R. Irwin
Breast cancer beliefs and screening behaviors among South Asian immigrant women living in the United States
  • DOI:
    10.1186/s12905-025-03634-1
  • 发表时间:
    2025-03-04
  • 期刊:
  • 影响因子:
    2.700
  • 作者:
    Racquel E. Kohler;Tina Dharamdasani;Jacelyn Tarn;Myneka Macenat;Jeanne M. Ferrante;Shailja Mathur;Elisa V. Bandera;Anita Y. Kinney;Jaya M. Satagopan
  • 通讯作者:
    Jaya M. Satagopan
Religiosity, Spirituality, and Cancer Fatalism Beliefs on Delay in Breast Cancer Diagnosis in African
非洲乳腺癌诊断延迟的宗教、灵性和癌症宿命论信仰
  • DOI:
  • 发表时间:
    2010
  • 期刊:
  • 影响因子:
    0
  • 作者:
    M. Gullatte;O. Brawley;Anita Y. Kinney;Barbara D. Powe;Kathi Mooney
  • 通讯作者:
    Kathi Mooney

Anita Y. Kinney的其他文献

{{ item.title }}
{{ item.translation_title }}
  • DOI:
    {{ item.doi }}
  • 发表时间:
    {{ item.publish_year }}
  • 期刊:
  • 影响因子:
    {{ item.factor }}
  • 作者:
    {{ item.authors }}
  • 通讯作者:
    {{ item.author }}

{{ truncateString('Anita Y. Kinney', 18)}}的其他基金

Addressing Genomic Disparities in Cancer Survivors
解决癌症幸存者的基因组差异
  • 批准号:
    10813426
  • 财政年份:
    2023
  • 资助金额:
    $ 3.71万
  • 项目类别:
Multilevel factors associated with disparities in the use of targeted cancer therapies in Medicare
与医疗保险中靶向癌症治疗使用差异相关的多层次因素
  • 批准号:
    10830588
  • 财政年份:
    2023
  • 资助金额:
    $ 3.71万
  • 项目类别:
Comparative Effectiveness of Interventions to Increase Guideline-based Genetic Counseling in Ethnically and Geographically Diverse Cancer Survivors
针对不同种族和地域的癌症幸存者增加基于指南的遗传咨询的干预措施的比较有效性
  • 批准号:
    10053322
  • 财政年份:
    2016
  • 资助金额:
    $ 3.71万
  • 项目类别:
Comparative Effectiveness of Interventions to Increase Guideline-based Genetic Counseling in Ethnically and Geographically Diverse Cancer Survivors
针对不同种族和地域的癌症幸存者增加基于指南的遗传咨询的干预措施的比较有效性
  • 批准号:
    9215545
  • 财政年份:
    2016
  • 资助金额:
    $ 3.71万
  • 项目类别:
Bridging Geographic Barriers: Remote Cancer Genetics Counseling for Rural Women
跨越地理障碍:为农村妇女提供远程癌症遗传学咨询
  • 批准号:
    8756063
  • 财政年份:
    2013
  • 资助金额:
    $ 3.71万
  • 项目类别:
Impact of Remote Familial Risk Assessment and Counseling
远程家庭风险评估和咨询的影响
  • 批准号:
    8756106
  • 财政年份:
    2013
  • 资助金额:
    $ 3.71万
  • 项目类别:
Cancer Control and Population Science Program
癌症控制和人口科学计划
  • 批准号:
    8180716
  • 财政年份:
    2010
  • 资助金额:
    $ 3.71万
  • 项目类别:
Bridging Geographic Barriers: Remote Cancer Genetics Counseling for Rural Women
跨越地理障碍:为农村妇女提供远程癌症遗传学咨询
  • 批准号:
    8128613
  • 财政年份:
    2009
  • 资助金额:
    $ 3.71万
  • 项目类别:
Bridging Geographic Barriers: Remote Cancer Genetics Counseling for Rural Women
跨越地理障碍:为农村妇女提供远程癌症遗传学咨询
  • 批准号:
    8270572
  • 财政年份:
    2009
  • 资助金额:
    $ 3.71万
  • 项目类别:
Biobehavioral Effects of Tai Chi Chih Among Elderly Breast Cancer Survivors
太极拳对老年乳腺癌幸存者生物行为的影响
  • 批准号:
    7662806
  • 财政年份:
    2009
  • 资助金额:
    $ 3.71万
  • 项目类别:

相似海外基金

WELL-CALF: optimising accuracy for commercial adoption
WELL-CALF:优化商业采用的准确性
  • 批准号:
    10093543
  • 财政年份:
    2024
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Collaborative R&D
Investigating the Adoption, Actual Usage, and Outcomes of Enterprise Collaboration Systems in Remote Work Settings.
调查远程工作环境中企业协作系统的采用、实际使用和结果。
  • 批准号:
    24K16436
  • 财政年份:
    2024
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Grant-in-Aid for Early-Career Scientists
Unraveling the Dynamics of International Accounting: Exploring the Impact of IFRS Adoption on Firms' Financial Reporting and Business Strategies
揭示国际会计的动态:探索采用 IFRS 对公司财务报告和业务战略的影响
  • 批准号:
    24K16488
  • 财政年份:
    2024
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Grant-in-Aid for Early-Career Scientists
ERAMET - Ecosystem for rapid adoption of modelling and simulation METhods to address regulatory needs in the development of orphan and paediatric medicines
ERAMET - 快速采用建模和模拟方法的生态系统,以满足孤儿药和儿科药物开发中的监管需求
  • 批准号:
    10107647
  • 财政年份:
    2024
  • 资助金额:
    $ 3.71万
  • 项目类别:
    EU-Funded
Assessing the Coordination of Electric Vehicle Adoption on Urban Energy Transition: A Geospatial Machine Learning Framework
评估电动汽车采用对城市能源转型的协调:地理空间机器学习框架
  • 批准号:
    24K20973
  • 财政年份:
    2024
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Grant-in-Aid for Early-Career Scientists
Ecosystem for rapid adoption of modelling and simulation METhods to address regulatory needs in the development of orphan and paediatric medicines
快速采用建模和模拟方法的生态系统,以满足孤儿药和儿科药物开发中的监管需求
  • 批准号:
    10106221
  • 财政年份:
    2024
  • 资助金额:
    $ 3.71万
  • 项目类别:
    EU-Funded
Our focus for this project is accelerating the development and adoption of resource efficient solutions like fashion rental through technological advancement, addressing longer in use and reuse
我们该项目的重点是通过技术进步加快时装租赁等资源高效解决方案的开发和采用,解决更长的使用和重复使用问题
  • 批准号:
    10075502
  • 财政年份:
    2023
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Grant for R&D
Engage2innovate – Enhancing security solution design, adoption and impact through effective engagement and social innovation (E2i)
Engage2innovate — 通过有效参与和社会创新增强安全解决方案的设计、采用和影响 (E2i)
  • 批准号:
    10089082
  • 财政年份:
    2023
  • 资助金额:
    $ 3.71万
  • 项目类别:
    EU-Funded
De-Adoption Beta-Blockers in patients with stable ischemic heart disease without REduced LV ejection fraction, ongoing Ischemia, or Arrhythmias: a randomized Trial with blinded Endpoints (ABbreviate)
在没有左心室射血分数降低、持续性缺血或心律失常的稳定型缺血性心脏病患者中停用β受体阻滞剂:一项盲法终点随机试验(ABbreviate)
  • 批准号:
    481560
  • 财政年份:
    2023
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Operating Grants
Collaborative Research: SCIPE: CyberInfrastructure Professionals InnoVating and brOadening the adoption of advanced Technologies (CI PIVOT)
合作研究:SCIPE:网络基础设施专业人员创新和扩大先进技术的采用 (CI PIVOT)
  • 批准号:
    2321091
  • 财政年份:
    2023
  • 资助金额:
    $ 3.71万
  • 项目类别:
    Standard Grant
{{ showInfoDetail.title }}

作者:{{ showInfoDetail.author }}

知道了