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Chronic Kidney Disease Knowledge and Awareness among American Indians

美洲印第安人的慢性肾脏病知识和意识

基本信息

批准号：
8513320
负责人：
Stacey Jolly
金额：
$ 16.85万
依托单位：
CLEVELAND CLINIC LERNER COM-CWRU
依托单位国家：
美国
项目类别：
财政年份：
2011
资助国家：
美国
起止时间：
2011-07-01 至 2016-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8513320
关键词：
Address Advisory Committees Affect Age Alaska Native American Indian and Alaska Native American Indians Area Arizona Awareness Belief Biometry Blood Pressure Cardiovascular Diseases Chronic Chronic Kidney Failure Clinic Clinical Clinical Trials Colorado Committee Members Communication Communities Data Data Collection Data Sources Development Diabetes Mellitus Discipline of Nursing Disease Disease Progression Early Diagnosis Early treatment Education Educational Intervention Educational Materials Effectiveness End stage renal failure Environment Epidemiology Evaluation Focus Groups Foundations Funding General Population Goals Health Health Personnel Health behavior Health education Healthcare Heart High Prevalence Hypertension Image Imagery Incidence Industry Institute of Medicine (U.S.)Internist Intervention Trial K-Series Research Career Programs Kidney Kidney Transplantation Knowledge Lead Learning Life Style Literature Medical Medicine Mentored Patient-Oriented Research Career Development Award Mentors Mentorship Metabolic syndrome Methodology Minority Missouri Modality Music National Heart, Lung, and Blood Institute Nephrology New Mexico Obesity Oklahoma Outcome Participant Patient Self-Report Patients Persons Physicians Pilot Projects Population Prevalence Principal Investigator Public Health Qualitative Methods Renal dialysis Research Research Methodology Research Personnel Research Project Grants Research Training Resources Risk Risk Factors Running Series Sex Education Site South Dakota Staging Surveys Testing Time Training Training Programs Translating Translational Research Tribes United States National Institutes of Health Universities Voice Work base career career development college computerized design digital experience follow-up health disparity high risk improved literacy medication compliance mortality multidisciplinary northern plains prevent professor programs prospective protective behavior research and development research facility screening skills sound tool

项目摘要

DESCRIPTION (provided by applicant): Candidate. The overarching goal of this K23 award is to provide Dr. Stacey Jolly, an Alaska Native academic general internist, with the training, research skills, experience, and professional development to establish an independent program of chronic kidney disease-related research. Her proposed training program consists of three core components: (1) community based and translational research principles; (2) qualitative methods and survey design; and, (3) methodology, implementation, and evaluation of prospective clinical trials. She has proposed formal coursework, tutorials, and practical experience for each of the components. She will learn about and incorporate community based and translational research principles. She will develop new analytic skills in the area of qualitative and mixed methods research. She will learn how to translate rich qualitative data into quantitative approaches, specifically survey development. She will learn how to create culturally and content appropriate chronic kidney disease educational materials in the form of computerized digital stories made by American Indians. She will test this inventive modality in a pilot interventional trial with the aim of increasing chronic kidney disease knowledge and awareness and chronic kidney disease protective behaviors among American Indians, as well as assessing feasibility acceptability, and effect size. At the completion, she will be well suited to obtain independent research funding. Her career will advance not only as a physician researcher but in academic medicine as well moving from the Assistant to Associate Professor level. Environment. The Cleveland Clinic, Cleveland Clinic Lerner College of Medicine, and its affiliate Case Western Reserve University are the major education and research facilities in Cleveland, OH. Dr. Jolly is an Assistant Professor of Medicine at Cleveland Clinic Lerner College of Medicine of Case Western Reserve University. She will benefit from a rich, multidisciplinary mentorship and training environment, which includes experts in nephrology, qualitative methods, public health, epidemiology, biostatistics, and health disparities research. Dr. Ashwini Sehgal is a Professor of Medicine at Case Western Reserve University and Principal Investigator of the Case Center for Reducing Health Disparities will serve as Dr. Jolly's primary mentor. Dr. Spero Manson is a Professor of Medicine at University of Colorado Denver and Principal Investigator of the Centers for American Indian and Alaska Native Health will serve as a co-mentor. Dr. Cheryl Killion is an Associate Professor of Nursing at Case Western Reserve University and qualitative methods expert will serve as a co-mentor. Dr. Jolly brings together a diverse mentorship team, consultants, and advisory committee members that offer extensive research experience, especially among American Indians, and support of her career development program. The site of her research project and data collection will be in South Dakota in which she will work closely with the Strong Heart Study Dakota Center run by Marcia O'Leary of Missouri Breaks Research Industries, Inc. The Strong Heart Study is a well established NIH/NHLBI funded study. Research Project. The goal of this project is to assess chronic kidney disease knowledge and awareness among American Indians in the Northern Plains who have metabolic syndrome. Prior work among the general population and some minority populations adversely affected by chronic kidney disease has shown low knowledge and awareness of the condition. To our knowledge, no study has examined in detail chronic kidney disease knowledge, awareness, and beliefs among American Indians. This study proposes to conduct a series of focus groups and create a chronic kidney disease knowledge and awareness survey. Few educational intervention clinical trials have been conducted among those at risk for or with early chronic kidney disease. To our knowledge none have used digital storytelling as a means to deliver the educational messaged and have been conducted among American Indians, a group with high prevalence of chronic kidney disease and end stage kidney disease. The aims of the research project are to: 1) Quantify levels of chronic kidney disease knowledge and awareness among American Indians with metabolic syndrome. 2) Determine the effectiveness of a culturally tailored health presentation with computerized digital stories made by American Indians compared to a conventional health video presentation only for improving chronic kidney disease knowledge and factors thought to be preventative of chronic kidney disease or its progression at baseline and follow-up in a pilot clinical intervention trial. In summary, with this K23 award, Dr. Jolly will be able to focus the majority of her time and effort on career development and research to acquire the advanced training and receive the critical mentorship needed.

描述(申请人提供)：候选人。这一K23奖项的首要目标是为阿拉斯加本土学术普通内科医生Stacey Jolly博士提供培训、研究技能、经验和专业发展，以建立与慢性肾脏疾病相关的独立研究计划。她提出的培训计划由三个核心部分组成：(1)基于社区和转化性研究的原则；(2)定性方法和调查设计；(3)前瞻性临床试验的方法、实施和评估。她建议为每一个组成部分提供正式的课程作业、教程和实践经验。她将学习并融入基于社区的研究原则和翻译研究原则。她将在定性和混合方法研究领域发展新的分析技能。她将学习如何将丰富的定性数据转化为定量方法，特别是调查发展。她将学习如何以美国印第安人制作的计算机化数字故事的形式创建符合文化和内容的慢性肾脏疾病教育材料。她将在一项试点干预试验中测试这一发明模式，目的是提高美国印第安人对慢性肾脏疾病的知识和意识以及慢性肾脏疾病保护行为，并评估可行性、可接受性和效果大小。完成后，她将非常适合获得独立研究资金。她的职业生涯将不仅作为一名内科研究员，而且在学术医学方面也将从助理教授水平提升到副教授水平。环境克利夫兰诊所、克利夫兰诊所勒纳医学院及其附属的凯斯西储大学是俄亥俄州克利夫兰的主要教育和研究机构。乔利博士是凯斯西储大学克利夫兰临床勒纳医学院的医学助理教授。她将受益于丰富的、多学科的指导和培训环境，其中包括肾病学、定性方法、公共卫生、流行病学、生物统计学和健康差距研究方面的专家。阿什维尼·塞格尔博士是凯斯西储大学的医学教授，也是凯斯西储大学减少健康差距中心的首席研究员，他将担任乔利博士的主要导师。斯佩罗·曼森博士是科罗拉多大学丹佛分校的医学教授，也是美国印第安人和阿拉斯加原住民健康中心的首席研究员，他将担任共同导师。谢丽尔·基利安博士是凯斯西储大学护理学副教授，定性方法专家将担任共同导师。乔利博士汇集了不同的导师团队、顾问和咨询委员会成员，他们提供了广泛的研究经验，特别是在美国印第安人中，并为她的职业发展计划提供支持。她的研究项目和数据收集的地点将在南达科他州，在那里她将与密苏里州Breks Research Industries，Inc.的Marcia O‘Leary运营的强心脏研究达科他州中心密切合作。强心脏研究是NIH/NHLBI资助的一项成熟的研究。研究项目。该项目的目标是评估北部平原上患有代谢综合征的美洲印第安人对慢性肾脏疾病的知识和认识。在普通人群和一些受慢性肾脏疾病不利影响的少数群体中进行的先前工作表明，对这种情况的了解和认识很低。据我们所知，没有一项研究详细调查了美国印第安人对慢性肾脏疾病的知识、认识和信念。这项研究建议开展一系列焦点小组，并创建慢性肾脏疾病知识和认知调查。很少有教育干预临床试验在有早期慢性肾脏疾病风险的人中进行。据我们所知，没有人使用数字讲故事作为传递教育信息的手段，并在美国印第安人中进行过，印第安人是慢性肾脏疾病和终末期肾脏疾病的高发群体。该研究项目的目的是： 1)量化患有代谢综合征的美洲印第安人对慢性肾脏疾病的知识和认识水平。 2)通过美国印第安人制作的计算机化数字故事来确定根据文化定制的健康演示的有效性，与仅针对改善慢性肾脏疾病知识和被认为可以预防慢性肾脏疾病或其进展的因素的传统健康视频演示相比，在试点临床干预试验中进行跟踪。总而言之，有了这个K23奖项，乔利博士将能够把她的大部分时间和精力集中在职业发展和研究上，以获得高级培训和接受所需的关键指导。