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Chronic Kidney Disease Knowledge and Awareness among American Indians

美洲印第安人的慢性肾脏病知识和意识

基本信息

批准号：
8881155
负责人：
Stacey Jolly
金额：
$ 13.19万
依托单位：
CLEVELAND CLINIC LERNER COM-CWRU
依托单位国家：
美国
项目类别：
财政年份：
2011
资助国家：
美国
起止时间：
2011-07-01 至 2016-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8881155
关键词：
Address Advisory Committees Affect Age Alaska Native American Indian and Alaska Native American Indians Area Arizona Awareness Belief Biometry Blood Pressure Cardiovascular Diseases Chronic Chronic Kidney Failure Clinic Clinical Clinical Trials Colorado Committee Members Communication Communities Data Data Collection Data Sources Development Diabetes Mellitus Discipline of Nursing Disease Disease Progression Early Diagnosis Early treatment Education Educational Intervention Educational Materials Effectiveness End stage renal failure Environment Epidemiology Evaluation Focus Groups Foundations Funding General Population Goals Health Health Personnel Health behavior Health education Healthcare Heart High Prevalence Hypertension Image Imagery Incidence Industry Institute of Medicine (U.S.)Internist Intervention Trial K-Series Research Career Programs Kidney Kidney Transplantation Knowledge Lead Learning Life Style Literature Medical Medicine Mentored Patient-Oriented Research Career Development Award Mentors Mentorship Metabolic syndrome Methodology Minority Missouri Modality Music National Heart, Lung, and Blood Institute Nephrology New Mexico Obesity Oklahoma Outcome Participant Patient Self-Report Patients Persons Physicians Pilot Projects Population Prevalence Principal Investigator Public Health Qualitative Methods Renal dialysis Research Research Methodology Research Personnel Research Project Grants Research Training Resources Risk Risk Factors Running Series Sex Education Site South Dakota Staging Surveys Testing Time Training Training Programs Translating Translational Research Tribes United States National Institutes of Health Universities Voice Work base career career development college computerized design digital experience follow-up health disparity high risk improved literacy mathematical ability medication compliance mortality multidisciplinary northern plains prevent professor programs prospective protective behavior research and development research facility screening skills sound tool

项目摘要

DESCRIPTION (provided by applicant): Candidate. The overarching goal of this K23 award is to provide Dr. Stacey Jolly, an Alaska Native academic general internist, with the training, research skills, experience, and professional development to establish an independent program of chronic kidney disease-related research. Her proposed training program consists of three core components: (1) community based and translational research principles; (2) qualitative methods and survey design; and, (3) methodology, implementation, and evaluation of prospective clinical trials. She has proposed formal coursework, tutorials, and practical experience for each of the components. She will learn about and incorporate community based and translational research principles. She will develop new analytic skills in the area of qualitative and mixed methods research. She will learn how to translate rich qualitative data into quantitative approaches, specifically survey development. She will learn how to create culturally and content appropriate chronic kidney disease educational materials in the form of computerized digital stories made by American Indians. She will test this inventive modality in a pilot interventional trial with the aim of increasing chronic kidney disease knowledge and awareness and chronic kidney disease protective behaviors among American Indians, as well as assessing feasibility acceptability, and effect size. At the completion, she will be well suited to obtain independent research funding. Her career will advance not only as a physician researcher but in academic medicine as well moving from the Assistant to Associate Professor level. Environment. The Cleveland Clinic, Cleveland Clinic Lerner College of Medicine, and its affiliate Case Western Reserve University are the major education and research facilities in Cleveland, OH. Dr. Jolly is an Assistant Professor of Medicine at Cleveland Clinic Lerner College of Medicine of Case Western Reserve University. She will benefit from a rich, multidisciplinary mentorship and training environment, which includes experts in nephrology, qualitative methods, public health, epidemiology, biostatistics, and health disparities research. Dr. Ashwini Sehgal is a Professor of Medicine at Case Western Reserve University and Principal Investigator of the Case Center for Reducing Health Disparities will serve as Dr. Jolly's primary mentor. Dr. Spero Manson is a Professor of Medicine at University of Colorado Denver and Principal Investigator of the Centers for American Indian and Alaska Native Health will serve as a co-mentor. Dr. Cheryl Killion is an Associate Professor of Nursing at Case Western Reserve University and qualitative methods expert will serve as a co-mentor. Dr. Jolly brings together a diverse mentorship team, consultants, and advisory committee members that offer extensive research experience, especially among American Indians, and support of her career development program. The site of her research project and data collection will be in South Dakota in which she will work closely with the Strong Heart Study Dakota Center run by Marcia O'Leary of Missouri Breaks Research Industries, Inc. The Strong Heart Study is a well established NIH/NHLBI funded study. Research Project. The goal of this project is to assess chronic kidney disease knowledge and awareness among American Indians in the Northern Plains who have metabolic syndrome. Prior work among the general population and some minority populations adversely affected by chronic kidney disease has shown low knowledge and awareness of the condition. To our knowledge, no study has examined in detail chronic kidney disease knowledge, awareness, and beliefs among American Indians. This study proposes to conduct a series of focus groups and create a chronic kidney disease knowledge and awareness survey. Few educational intervention clinical trials have been conducted among those at risk for or with early chronic kidney disease. To our knowledge none have used digital storytelling as a means to deliver the educational messaged and have been conducted among American Indians, a group with high prevalence of chronic kidney disease and end stage kidney disease. The aims of the research project are to: 1) Quantify levels of chronic kidney disease knowledge and awareness among American Indians with metabolic syndrome. 2) Determine the effectiveness of a culturally tailored health presentation with computerized digital stories made by American Indians compared to a conventional health video presentation only for improving chronic kidney disease knowledge and factors thought to be preventative of chronic kidney disease or its progression at baseline and follow-up in a pilot clinical intervention trial. In summary, with this K23 award, Dr. Jolly will be able to focus the majority of her time and effort on career development and research to acquire the advanced training and receive the critical mentorship needed.

描述（由申请人提供）：候选人。该K23奖项的总体目标是为阿拉斯加原住民学术普通内科医生Stacey Jolly博士提供培训，研究技能，经验和专业发展，以建立一个独立的慢性肾脏疾病相关研究项目。她提出的培训计划包括三个核心组成部分：（1）基于社区和转化研究原则;（2）定性方法和调查设计;（3）前瞻性临床试验的方法，实施和评估。她为每个组成部分提出了正式的课程，教程和实践经验。她将学习并融入基于社区和转化研究的原则。她将在定性和混合方法研究领域开发新的分析技能。她将学习如何将丰富的定性数据转化为定量方法，特别是调查开发。她将学习如何创建文化和内容适当的慢性肾病教育材料的形式由美国印第安人制作的计算机数字故事。她将在一项试点干预试验中测试这种创造性的方式，目的是增加美洲印第安人对慢性肾病的知识和认识以及慢性肾病的保护行为，并评估可行性、可接受性和效应大小。在完成后，她将非常适合获得独立的研究资金。她的职业生涯将不仅作为一个医生研究员，但在学术医学以及从助理移动到副教授的水平。环境克利夫兰诊所，克利夫兰诊所勒纳医学院及其附属的凯斯西储大学是俄亥俄州克利夫兰的主要教育和研究机构。乔利博士是凯斯西储大学克利夫兰诊所勒纳医学院的医学助理教授。她将受益于丰富的多学科指导和培训环境，其中包括肾脏病学，定性方法，公共卫生，流行病学，生物统计学和健康差异研究专家。Ashwini Sehgal博士是凯斯西储大学的医学教授，减少健康差异案例中心的首席研究员将担任Jolly博士的主要导师。Spero曼森博士是科罗拉多丹佛大学的医学教授，美国印第安人和阿拉斯加土著健康中心的首席研究员将担任共同导师。谢丽尔·基利昂博士是凯斯西储大学护理学副教授，定性方法专家将担任共同导师。乔利汇集了一个多元化的导师团队，顾问和咨询委员会成员，提供广泛的研究经验，特别是在美国印第安人，并支持她的职业发展计划。她的研究项目和数据收集的网站将在南达科他州，在那里她将与强大的心脏研究达科他州中心密切合作，该中心由密苏里州的Marcia O 'Leary经营。Strong Heart Study是一项由NIH/NHLBI资助的研究。研究项目。该项目的目标是评估北方平原上患有代谢综合征的美洲印第安人对慢性肾脏疾病的认识。在一般人群和一些受慢性肾脏疾病不利影响的少数人群中的先前工作显示出对该疾病的知识和意识较低。据我们所知，还没有研究详细调查美国印第安人对慢性肾脏疾病的知识、认识和信仰。本研究建议进行一系列的焦点小组，并创建一个慢性肾脏病知识和意识的调查。很少有教育干预临床试验在患有早期慢性肾病或有慢性肾病风险的人群中进行。据我们所知，没有人使用数字讲故事作为传递教育信息的手段，并且在美国印第安人中进行，这是一个慢性肾病和终末期肾病患病率高的群体。该研究项目的目的是： 1)量化患有代谢综合征的美国印第安人对慢性肾脏疾病的认识和认识水平。 2)确定与传统的健康视频演示相比，美洲印第安人制作的计算机化数字故事的文化定制健康演示的有效性，仅用于改善慢性肾脏疾病知识和被认为是预防慢性肾脏疾病或其在基线和随访时进展的因素。总之，有了这个K23奖，Jolly博士将能够将大部分时间和精力集中在职业发展和研究上，以获得高级培训并获得所需的关键指导。